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Purpose: In visually impaired older patients, it is unclear which coexisting conditions patients suffer from and whether all co-existing conditions are reported by the patient. Our purpose was to present the level of agreement between patients' and their general practitioners' co-morbidity reports. Methods: Analyses were performed on data from an observational study among 296 visually impaired older patients. Agreement between patients and 165 general practitioners was obtained from twelve (chronic) condition categories. Cohen's Kappa was used to assess the level of agreement. Results: Patients reported a median number of co-existing conditions of 1 (range: 0-4) and general practitioners 3 (range: 0-7). Agreement was 'very good' for diabetes (Kappa 0.82; 95% CI [0.73;0.92]) and 'moderate' for heart conditions (Kappa 0.48; 95% CI [0.33;0.62]) and COPD or asthma (Kappa 0.60; 95% CI [0.45;0.75]). Kappa values were 'fair' (0.29 to 0.34) for cancer, musculo-skeletal conditions, hearing impairments and stroke, and 'poor' (−0.01 to 0.18) for psychological problems, chronic skin problems, gastrointestinal conditions, chronic allergies, thyroid gland conditions and hypertension. Conclusions: Agreement between patients and their general practitioners differed per condition, but was for most conditions poor to fair. Rehabilitation services, ophthalmologists and rehabilitation researchers should be aware that patients often under report co-morbidity. We recommend using medical charts or asking visually impaired older patients for co-existing conditions using pre-structured questionnaires in order to obtain a more complete view of the patient's health status.
Purpose: In visually impaired older patients, it is unclear which coexisting conditions patients suffer from and whether all co-existing conditions are reported by the patient. Our purpose was to present the level of agreement between patients' and their general practitioners' co-morbidity reports. Methods: Analyses were performed on data from an observational study among 296 visually impaired older patients. Agreement between patients and 165 general practitioners was obtained from twelve (chronic) condition categories. Cohen's Kappa was used to assess the level of agreement. Results: Patients reported a median number of co-existing conditions of 1 (range: 0-4) and general practitioners 3 (range: 0-7). Agreement was 'very good' for diabetes (Kappa 0.82; 95% CI [0.73;0.92]) and 'moderate' for heart conditions (Kappa 0.48; 95% CI [0.33;0.62]) and COPD or asthma (Kappa 0.60; 95% CI [0.45;0.75]). Kappa values were 'fair' (0.29 to 0.34) for cancer, musculo-skeletal conditions, hearing impairments and stroke, and 'poor' (−0.01 to 0.18) for psychological problems, chronic skin problems, gastrointestinal conditions, chronic allergies, thyroid gland conditions and hypertension. Conclusions: Agreement between patients and their general practitioners differed per condition, but was for most conditions poor to fair. Rehabilitation services, ophthalmologists and rehabilitation researchers should be aware that patients often under report co-morbidity. We recommend using medical charts or asking visually impaired older patients for co-existing conditions using pre-structured questionnaires in order to obtain a more complete view of the patient's health status.
BackgroundCo-morbidity is a common phenomenon in the elderly and is considered to be a major threat to quality of life (QOL). Knowledge of co-existing conditions or patient characteristics that lead to an increased QOL decline is important for individual care, and for public health purposes. In visually impaired older adults, it remains unclear which co-existing conditions or other characteristics influence their health-related QOL. Our aim was to present a risk profile of characteristics and conditions which predict deterioration of QOL in visually impaired older patients.MethodsAnalyses were performed on data from an observational study among 296 visually impaired older patients from four Dutch hospitals. QOL was measured with the EuroQol-5D (EQ-5D) at baseline and at five-month follow-up. Nine co-existing condition categories (musculoskeletal; diabetes; heart; hypertension; chronic obstructive pulmonary disease (COPD) or asthma; hearing impairment; stroke; cancer; gastrointestinal conditions) and six patient characteristics (age; gender; visual acuity; social status; independent living; rehabilitation type) were tested in a linear regression model to determine the risk profile. The model was corrected for baseline EQ-5D scores. In addition, baseline EQ-5D scores were compared with reference scores from a younger visually impaired population and from elderly in the general population.ResultsFrom the 296 patients, 50 (16.9%) were lost to follow-up. Patients who reported diabetes, COPD or asthma, consequences of stroke, musculoskeletal conditions, cancer, gastrointestinal conditions or higher logMAR Visual Acuity values, experienced a lower QOL. After five months, visual acuity, musculoskeletal conditions, COPD/asthma and stroke predicted a decline in QOL (R2 = 0.20). At baseline, the visually impaired older patients more often reported moderate or severe problems on most EQ-5D dimensions than the two reference groups.ConclusionIn visually impaired older patients, visual acuity, musculoskeletal conditions, COPD/asthma and stroke predicted a relatively rapid decline in health-related QOL. With this risk profile, a specific referral by the ophthalmologist to another sub-specialty may have a beneficial effect on the patient's health-related QOL. A referral by the ophthalmologist or optometrist to a multidisciplinary rehabilitation service seems appropriate for some patients with co-morbidity. The current results need to be confirmed in studies using pre-structured questionnaires to assess co-morbidity.
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