Changing everyday activities of couples in late life: Converging and keeping up

Nes, Fenna van; Jonsson, Hans; Abma, Tineke; Deeg, Dorly J. H.

doi:10.1016/j.jaging.2012.09.002

Cited by 14 publications

(11 citation statements)

References 41 publications

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“…These findings are in line with previous research (McRae, 2011;van Nes, Jonsson, Abma & Deeg, 2013;Genoe & Dupuis, 2014;Torrington, 2009) and further imply that couples, where one partner has a diagnosis of dementia, need to be supported in the context of an everyday normal life. Self-management support targeting the everyday, therefore, may be an important aspect in such a care approach.…”

Section: Meaningful Activities and Relationshipssupporting

confidence: 91%

“…Woods et al 2012;van Nes, 2013;Genoe & Dupuis, 2014;Hill et al 2017;Mondini et al 2016;Spector et al, 2017 Individual activities Individual activities as a source to gain strength and to nurture social relationships.…”

Section: Methodsmentioning

confidence: 99%

“…van Nes, 2013;Robinson et al 2005;Bergman et al 2016;Solum et al 2013; Meeting with peers Having the opportunity to share experiences with people in a similar situation. Söderhamn et al 2014Clare et al 2008Leung et al 2015;Toms et al 2015;Keyes et al 2016 Planning ahead for future impact of the condition with the aim of increased sense of control.…”

Section: Methodsmentioning

confidence: 99%

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Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia

et al. 2018

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The aim of this study is to identify relevant content for a self-management guide by using the outcomes of previous research in combination with knowledge and experiences from couples where one partner has a diagnosis of dementia. The study was carried out in three phases: 1) Literature search of previous research related to wellbeing and couplehood in dementia; 2) Interviews with couples with dementia based on the findings of the literature search; 3) Further authentication of the findings within expert groups of people with dementia and carers. For analysis of data we used a hybrid approach of thematic analysis with combined deductive and inductive approaches. The findings of this study indicated that the four main themes "Home and Neighborhood", "Meaningful activities and Relationships", "Approach and Empowerment" and "Couplehood" with related sub themes could be appropriate targets for a self-management guide for couples where one partner has a diagnosis of dementia.

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Section: Meaningful Activities and Relationshipssupporting

confidence: 91%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

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Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia

et al. 2018

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“…Separating these (own vs. informal helpers’ efforts) is theoretically possible, but does not by definition provide realistic or usable information about care situations. We found that operating together or ‘co-performing’ seemed to be a naturally occurring phenomenon whenever people had entered a phase of old age, impairment, and multiple care use [ 6 , 19 , 33 ] and that own involvement in care (decisions) would decrease in such circumstances [ 34 , 35 ]. Caregivers’ and older people’s actions then seemed to become gradually interwoven.…”

Section: Discussionmentioning

confidence: 99%

Development and validation of a questionnaire assessing the perceived control in health care among older adults with care needs in the Netherlands

et al. 2015

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Purpose In response to the increased emphasis placed on older people’s self-reliance in many welfare societies, we aimed to develop and validate a measurement instrument, assessing perceived control in health care among older adults with care needs. The target group consists of older people who live (semi-)independently and use professional health care, with or without informal care.MethodsPhase I (development) of the study consisted of the construction of the instrument based on the input from a variety of stakeholders. Phase II (validation) entailed a quantitative study in a sample of 247 respondents selected from the Longitudinal Aging Study Amsterdam, to assess the instrument’s construct validity (structural validity and hypotheses testing) and reliability (internal consistency).ResultsThe questionnaire consists of 29 items, related to organizing professional care, communication with care professionals, health management in the home situation, planning (more) complex care in the future, and perceived support from the social network. Based on a factor analysis, we identified three subscales: (I.) ‘perceived personal control in health care’; (II.) ‘anticipated personal control regarding future health care’; and (III.) ‘perceived support from the social network,’ with internal consistencies varying from Cronbach’s α = .71 to .90. Factor I was associated with mastery, self-efficacy, self-esteem (r = .31–.35) and factor III with social loneliness (r = −.42). Factor II correlated less strongly with mastery, self-efficacy, and self-esteem (r < .30).ConclusionOur questionnaire revealed sufficient construct validity and internal consistency. The instrument provides a basis for further quantitative research regarding control, especially in relation to health care-related outcomes.

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“…Research has shown how older couples' everyday activities are closely related during different phases of their lives when experiencing declining health (1) and the way in which their relationship might change when one partner suffers declining health due to, for example, dementia (2,3) or stroke (4,5). Using formal support to manage everyday life is one solution that can involve both opportunities and limitations in everyday life management (6,7).…”

Section: Introductionmentioning

confidence: 99%

Healthcare professionals’ perspective on how to promote older couples’ participation in everyday life when using respite care

Riekkola

Rutberg

Lilja

et al. 2018

Scandinavian Caring Sciences

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Aims The aim is to describe healthcare professionals’ perspectives on how they understand and promote older couples’ participation in everyday life when using residential respite care. Design and Methods Eighteen healthcare professionals with varying degrees of competence and from one residential respite care facility participated in four focus group interviews. Data were analysed through qualitative latent content analysis. Findings The findings revealed a broad, multifaceted view of participation and ways in which participation in everyday life is promoted by these professionals. Trustworthy relationships between professionals, spousal caregivers and clients were implicated. Promoting participation also necessitated that clients have access to meaningful activities. In addition, participation entailed an environment that supported various needs. Conclusion Promoting participation for older couples that are using respite care involves multifaceted perspectives that consider social–relational aspects including both the client and their spouse. Furthermore, attention is needed to the meaning a change of context between home and the respite care facility has on relationships, environments and activities in everyday life. Such an approach could benefit the couples’ shared everyday life situation and in a wider perspective, also influence their health and well‐being when ageing in place together.

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Changing everyday activities of couples in late life: Converging and keeping up

Cited by 14 publications

References 41 publications

Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia

Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia

Development and validation of a questionnaire assessing the perceived control in health care among older adults with care needs in the Netherlands

Healthcare professionals’ perspective on how to promote older couples’ participation in everyday life when using respite care

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