Changing needs of Chinese family caregivers of stroke survivors

Mak, Annie K.M.; Mackenzie, Ann; Lui, May How-Lin

doi:10.1111/j.1365-2702.2006.01754.x

Cited by 36 publications

(48 citation statements)

References 31 publications

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“…None of the studies assessed the sample size a priori or reported confidence intervals. Seven studies achieved a response rate above 60%, 72, 74–76, 78, 79, 81 six utilized reliable and valid measurements, 74, 77–81 and seven assessed statistical significance. 72, 74, 76–80 All mixed-methods studies appraised using MMAT used the methodology appropriately, used relevant sources to collect the qualitative and quantitative data, and had sample representing the population.…”

Section: Resultsmentioning

confidence: 99%

Needs of Stroke Survivors as Perceived by Their Caregivers

Krishnan

Pappadis

Weller

et al. 2017

American Journal of Physical Medicine &Amp; Rehabilitation

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Objective Caregivers usually are not involved while planning the stroke survivor’s medical and rehabilitation goals and interventions. This review aimed to identify the needs of stroke survivors as perceived by their caregivers. Design A literature search from 2003 until 2014 was conducted using Medline, CINAHL, PsychINFO and Google Scholar. Sixty-six studies were included. Most studies excluded did not encompass caregivers’ perspectives. Four reviewers screened the titles, abstracts, and full texts of the articles for inclusion. The data extracted from these studies were synthetized into meta-themes. Results Fifty-two qualitative, ten quantitative survey, and four mixed methods studies were included in the final synthesis. The studies came from eleven countries. The data synthesis produced three meta-themes: a) body functional needs, including psychological function, physical function, cognitive function, and uncertainty related to function; b) activity and participatory needs, including healthy lifestyle, physical activities, speech, independence, cognitive activities, and uncertainty related to activities and participation; and c) environmental needs, encompassing support, services, safety, accommodation and accessibility, and uncertainty related to environmental factors. Conclusion This scoping review identified a range of needs of stroke survivors as perceived by their caregivers. Incorporating the caregiver’s preference and values into clinical decisions may improve outcomes among stroke survivors.

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Section: Resultsmentioning

confidence: 99%

Needs of Stroke Survivors as Perceived by Their Caregivers

Krishnan

Pappadis

Weller

et al. 2017

American Journal of Physical Medicine &Amp; Rehabilitation

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“…Caregivers' support needs can be viewed as a spectrum of needs, including practical, spiritual, psychosocial, informational, emotional, and physical support needs, as adapted from the supportive care needs framework model for caregivers of cancer patients (Fitch, 1994). A number of studies have shown that the need for information is a top priority among caregivers of persons with dementia (Muangpaisan et al, 2010;Wackerbarth & Johnson, 2002), stroke (Hare, Rogers, Lester, McManus, & Mant, 2006;Kim & Moon, 2007;MacIsaac, Harrison, & Godfrey, 2010;Mak, Mackenzie, & Lui, 2007;), spinal cord injury (SCI; Meade, Taylor, Kreutzer, Marwitz, & Thomas, 2004;Post, Bloemen, & de Witte, 2005), traumatic brain injury (TBI; Arango-Lasprilla et al, 2010;Blake, 2008, Rotundi, Sinkule, & Spring, 2005Sander, Clark, Atchison, & Rueda, 2009), Parkinson's disease (PD; Hasson et al, 2010;Kristjanson, Aoun, & Oldham, 2006;Thomas & Sweetnam, 2002), and multiple sclerosis (MS; Corry & While, 2009;Kersten et al, 2000;Koopman, Benbow, & Vandervoort, 2006;Kristjanson et al, 2006). In general, caregivers of persons with chronic disease have been shown to desire two types of information: general information about the medical condition of the care recipient and specific, understandable information tailored to their situation.…”

Section: Introductionmentioning

confidence: 98%

Information Needs of Family Caregivers of Persons With Cognitive Versus Physical Deficits

Koenig

Steiner

Pierce

2011

Gerontology & Geriatrics Education

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This study compared information needs of caregivers of persons with dementia with caregivers of those who received rehabilitation treatment. Caregivers were provided a 48-item survey and asked to choose their top ten information needs. Dementia caregivers' (n = 33) top needs were dealing with forgetfulness/confusion (91%) and repeating questions/actions (61%) in care recipients. Rehabilitation caregivers' (n = 40) top needs were handling care recipients' mobility problems (75%) and dealing with their own stress (65%). Dementia caregivers focused on care recipients' needs related to behavioral symptoms, whereas rehabilitation caregivers focused on needs related to physical care of care recipients and their own needs.

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“…Over 20% of services reported that they did not provide information about risk factor awareness and secondary prevention, which is of concern as it is particularly important that community-based clients receive information about these topics. 10,11,14,15,17,18 …”

Section: Content Of Information Provisionmentioning

confidence: 99%

“…[9][10][11][12][13][14] This mix of information needs typically continues into the chronic or community-based stage of living with the consequences of stroke. [15][16][17][18] A fear of recurrence of stroke and the subsequent need for information regarding secondary prevention is particularly strong for community-based clients with stroke and their carers.…”

mentioning

confidence: 99%

“…[15][16][17][18] A fear of recurrence of stroke and the subsequent need for information regarding secondary prevention is particularly strong for community-based clients with stroke and their carers. 10,11,14,15,17,18 Therefore, information about a wide range of topics, including clinical information but with a focus on the consequences of stroke, practical management strategies, available services and benefits, and secondary prevention, should be available to people living in the community after stroke. It is crucial to regularly assess clients' and carers' information needs 10,[19][20][21] and to tailor the information provision to these needs.…”

mentioning

confidence: 99%

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Community-Based Stroke Information for Clients with Stroke and Their Carers: Is There Congruency Between Actual and Recommended Practice?

Eames

Hoffmann

McKenna

et al. 2008

Topics in Stroke Rehabilitation

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Stroke is a leading cause of death and disability in the Western world, 1-3 with up to two thirds of stroke survivors living with some level of disability. 1,4 The provision of information is recognised as a key feature of poststroke management for clients with stroke, their carers, and their families, [5][6][7] and it can improve client and carer knowledge, reduce client depression, and increase some aspects of client satisfaction. 8 However, details of postdischarge information provision for community-dwelling stroke clients and their carers have received little attention in the literature. This article begins with a discussion of the recommendations from the literature regarding the content, format, delivery style, and timing components of information provision about stroke. Where stroke-specific recommendations do not exist in the literature, general health education recommendations are provided. A study that explored the way in which services provide information to community-based clients with stroke and/or their carers is then described and the literature recommendations are subsequently compared to the results of the study.Purpose: Information provision is an integral part of poststroke care, and there is a need to identify how to provide it most effectively. Intervention details, such as content, delivery style, format, and timing, are infrequently reported in the literature. This project describes in detail the provision of information to clients with stroke and their carers by community services in Brisbane, Australia, and compares these to current recommendations in the literature. Method: Fifty-seven metropolitan-based community services were surveyed regarding the content, delivery style, format, and timing of information available to clients with stroke and their carers, using a telephone-administered questionnaire designed for this study. Results: Services provided information using a range of formats and delivery styles. The most frequently provided topics were information on services and benefits available and practical management strategies. Less than 75% of services provided written information to most of their clients and/or carers. Less than 40% of services considered client and carer input when designing written information materials. Conclusion: Community services surveyed in this study demonstrated congruency with some, but not all, of the current content, format, and delivery style recommendations in the literature. Areas for improvement are discussed. Key words: cerebrovascular accident, consumer health information, health education, patient education, stroke, teaching Content of Information ProvisionAs clients with stroke transition from inpatient care to the early post hospital-discharge phase, their need, and that of their carers, for clinical 15-18 A fear of recurrence of stroke and the subsequent need for information regarding secondary prevention is particularly strong for community-based clients with stroke and their carers. 10,11,14,15,17,18 Therefore, information about a wide r...

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Changing needs of Chinese family caregivers of stroke survivors

Abstract: Ongoing need assessment by nurses who are in regular contact with caregivers in hospital and community will enable appropriate interventions such as providing education and emotional support both before and after discharge to be offered to Chinese communities.

Cited by 36 publications

References 31 publications

Needs of Stroke Survivors as Perceived by Their Caregivers

Needs of Stroke Survivors as Perceived by Their Caregivers

Information Needs of Family Caregivers of Persons With Cognitive Versus Physical Deficits

Community-Based Stroke Information for Clients with Stroke and Their Carers: Is There Congruency Between Actual and Recommended Practice?

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