Chapter 15: Monitoring tuberculosis program performance

Heffernan, Courtney; Haworth‐Brockman, Margaret; Plourde, Pierre; Wong, Tom; Ferrara, Giovanni; Long, Richard

doi:10.1080/24745332.2022.2035123

Cited by 4 publications

(3 citation statements)

References 62 publications

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“…Fourteen relevant references about the strategies used by peer support workers, community support workers, or social workers to engage their clients with TB who face barriers were identified for this report. [2][3][4][5][6][7][8][9][10][11][12][13][14][15] Guidance describing engagement with people with TB by TB programs were published in reports from Canada, [2][3][4][5] the UK, [8][9][10] Europe, 6,12,13 and globally. 7,11 A retrospective cohort study and a descriptive survey study were from the UK 14 and Europe, 15 respectively.…”

Section: Overall Summarymentioning

confidence: 99%

Community Supports for People with Tuberculosis

Ritchie¹,

Horton²

2023

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A limited literature search was conducted to identify evidence about the use of peer support workers, community support workers, or social workers to assist people with tuberculosis who are facing barriers and the types of interventions used by these workers. Fourteen reports are included in this report that describe strategies used by support workers to engage people with tuberculosis who face barriers. The interventions identified that support continued engagement and reduce attrition of people with tuberculosis focused on involving the clients in the decision-making process and overcoming potential hurdles to treatment. Strategies included culturally relevant education at all levels (e.g., worker, patient, family, community), referral to applicable programs or care, incentives, and enablers.

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Section: Overall Summarymentioning

confidence: 99%

Community Supports for People with Tuberculosis

Ritchie¹,

Horton²

2023

cjht

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“…This framework would motivate relevant, timely reporting of surveillance data, while providing benchmarks to guide evidence-based decisions regarding approaches to tuberculosis elimination at provincial and territorial levels as well as nationally. Such a framework has been provided in the most recent edition of the Canadian Tuberculosis Standards (Heffernan et al, 2022 ), and its use should be encouraged as a first step.…”

Section: What Is the Way Forward?mentioning

confidence: 99%

The state of tuberculosis surveillance in Canada

Campbell

Faust

Paulsen

et al. 2023

Can J Public Health

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Tuberculosis incidence in Canada has remained essentially unchanged over the past decade. A strategic plan to reduce the burden of disease, underpinned by high-quality surveillance data, is sorely needed. However, tuberculosis surveillance data are lacking in Canada for multiple reasons. There is no single entity responsible for coordinating a tuberculosis response, including strategies for surveillance, thus inhibiting effective solutions. This in turn affects the timeliness and comprehensiveness of national tuberculosis surveillance reporting: between 2000 and 2020, there was an average 25-month delay to publication of annual surveillance data and the comprehensiveness of reports has precipitously fallen over time. Compounding these issues are case report forms for tuberculosis surveillance data which have not been updated since 2011, failing to keep up with the changing tuberculosis epidemiology and to provide information required for strategic planning. Common-sense steps can be taken to vastly improve the utility of collected tuberculosis surveillance data, and the development of a strategic plan for tuberculosis elimination. These include initiating a country-wide consultation on surveillance needs; allocating resources for data collection and analysis and data sharing; setting precise, measurable goals; and, importantly, establishing an oversight committee with representation from all provincial/territorial tuberculosis program leads who are held to account for performance. RésuméL'incidence de la tuberculose au Canada est demeurée essentiellement inchangée au cours de la dernière décennie. Un plan stratégique visant à réduire le fardeau de la maladie, étayé par des données de surveillance de haute qualité, est grandement nécessaire. Cependant, les données de surveillance de la tuberculose font défaut au Canada pour de multiples raisons. Il n'existe pas d'entité unique chargée de coordonner la réponse à la tuberculose, y compris les stratégies de surveillance, ce qui empêche de trouver des solutions efficaces. Cette situation a une incidence sur la rapidité et l'exhaustivité des rapports nationaux de surveillance de la tuberculose : entre 2000 et 2020, la publication des données annuelles de surveillance a été retardée de 25 mois en moyenne, et l'exhaustivité des rapports a chuté de façon vertigineuse au fil du temps. Ces problèmes sont aggravés par le fait que les formulaires de déclaration des cas pour les données de surveillance de la tuberculose n'ont pas été mis à jour depuis 2011, ce qui entrave leur capacité à suivre l'évolution de l'épidémiologie de la tuberculose et à fournir les informations nécessaires à la planification stratégique. Des mesures de bon sens peuvent être prises pour améliorer considérablement l'utilité des données de surveillance de la tuberculose collectées et le développement d'un plan stratégique pour l'élimination de la tuberculose. Il s'agit notamment de lancer une consultation à l'échelle du pays sur les besoins en matière de surveillance, d'allouer des ressources pour la c...

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“… 19 Another new addition to these Standards promotes monitoring and evaluation of the integration of best practices into programmes and for associated reports to be made public as a means of building bridges of trust to underserved, equity-seeking, groups. 20 Finally, a multi-year project, funded by the Canadian Institutes of Health Research signature initiative, Pathways to Health Equity for Indigenous Peoples, provides Indigenous communities on the Prairies with surveillance data, and therefore their own epidemiological experience of TB disease that, in turn, generates community-identified and led solutions. 21 , 22 A sustained biosocial, all-stakeholder and community-centred response is needed to reverse disease disparity and diminish the impact of the failures of residential schools to Indigenous peoples of Canada.…”

mentioning

confidence: 99%