Characteristic Quality of Life Children with Rheumatic Heart Disease

Abstract

Background: Rheumatic heart disease is an acquired disease that has characterized damaged valve and it effects the quality of life in children.
 Aim: To asses quality of life in patient with rheumatic heart disease by using Pediatric Quality of Life Inventory (PedsQL) instrument at pediatric cardiologist.
 Methods: A descriptive study with cross sectional study conduct among children aged 5 to 18 years old attend the Pediatric Cardiology at Haji Adam Malik Hospital Medan, from 2016 to 2018.
 Result: A hundred children with rheumatic heart disease in this study who had affected quality of life-based on group age with 5 to 7 year old in physical function was 6 subjects (85.7%), social function was 1 subject (14.2%), and school function was 2 subjects (28.5%) (Table 3); group age with 8 to 12 year old in physical function was 100 subjects (100%), emotional function was 3 subjects (3%), social function was 1 subject (3%), and school function was 5 subjects (15.1%); group aged 13 to 18 year old in physical function was 60 subjects (100%), emotional function was 1 subject (16.7%), and school function was 51 subjects (85%).
 Conclusion: From 100 children with RHD dominant in group aged 13-18 years old and male, mal malnutrition status, using of erythromycin, high senior school of level parents’ education, and valve disorder was mitral regurgitation. The quality of life was affected in all age groups, especially in the domain of physical function, and school functions with RHD.

Challenges in Management of Pediatric Rheumatic Heart Disease in Indonesia: A Narrative Review

“…The assessment employing Pediatric Quality of Life Inventory (PedsQL) 4.0 displayed that physical and school functions were the most impaired aspect in all groups of age. All subjects owned problems with intense physical movements whereas the function of sedentary activities is not affected [32,33]. Additionally, children with RHD imposed problem of exercise tolerance due to the impaired strength of respiratory muscle, as presented by lower score on the six-minute walk test (6MWT) than expected, even if they were considered clinically stable [34].…”

“…The social function of older children (8-12 years old and 13-18 years old) possessed more impaired compared to the younger age group (5-7 years old) since they were not able to perform common activities like children of their age. Older children also owned lower school function, obtained by self-report or parents demonstrating the loss of attending school because of not feeling well or not having routine visits to the physician [32,35]. Their emotional function is also more affected by the course of the disease, as illustrated with a feeling of scared, anger, and worry, compared to no one in the group of age 5-7 years old [32].…”

“…Older children also owned lower school function, obtained by self-report or parents demonstrating the loss of attending school because of not feeling well or not having routine visits to the physician [32,35]. Their emotional function is also more affected by the course of the disease, as illustrated with a feeling of scared, anger, and worry, compared to no one in the group of age 5-7 years old [32].…”