Characteristics of a Cohort of Home Parenteral Nutrition Patients at the Time of Enrollment in the Sustain Registry

Winkler, Marion F.; DiMaria‐Ghalili, Rose Ann; Guenter, Peggi; Resnick, Helaine E.; Robinson, Lawrence A.; Lyman, Beth; Ireton‐Jones, Carol; Banchik, Lillian Harvey; Steiger, Ezra

doi:10.1177/0148607115586575

Cited by 56 publications

(93 citation statements)

References 23 publications

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“…In a large case series in the United Kingdom, HPN was given to 143 patients with ECF for a median of 5 weeks (range, 1–94 weeks) 43 . Based on data collected in the Sustain National Patient Registry for Nutrition Care, 44 the indication for HPN was ECF in 19% of adult patients enrolled. This rate is similar (10%–36%) to rates reported by other international HPN registries 45 .…”

Section: Resultsmentioning

confidence: 99%

ASPEN‐FELANPE Clinical Guidelines

Kumpf

Aguilar-Nascimento

Graf

et al. 2016

J Parenter Enteral Nutr

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In adult patients with enterocutaneous fistula: (1) What factors best describe nutrition status? (2) What is the preferred route of nutrition therapy (oral diet, enteral nutrition, or parenteral nutrition)? (3) What protein and energy intake provide best clinical outcomes? (4) Is fistuloclysis associated with better outcomes than standard care? (5) Are immune-enhancing formulas associated with better outcomes than standard formulas? (6) Does the use of somatostatin or somatostatin analogue provide better outcomes than standard medical therapy? (7) When is home parenteral nutrition support indicated?

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Section: Resultsmentioning

confidence: 99%

ASPEN‐FELANPE Clinical Guidelines

Kumpf

Aguilar-Nascimento

Graf

et al. 2016

J Parenter Enteral Nutr

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“…Readmissions are commonly associated with complex therapies, not only conditions. Home parenteral nutrition (HPN) is a life‐sustaining, complex therapy for children and adults with short bowel syndrome (SBS) and other severe digestive diseases …”

Section: Introductionmentioning

confidence: 99%

Innovative Discharge Process for Families with Pediatric Short Bowel Syndrome: A Prospective Nonrandomized Trial

Raphael

Jorina

Gallotto

et al. 2018

J Parenter Enteral Nutr

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“…Yet, published information about HPN indications and outcomes in the pediatric population is limited and inconsistent. Studies have been conducted either in small or single‐center samples, or registries consisting mostly of adult patients . As a result, statistics reported for pediatric patients have varied widely.…”

Section: Introductionmentioning

confidence: 99%

Pediatric Home Parenteral Nutrition: Indications and Short‐Term Outcomes in a Large National Sample of Commercially Insured Children and Adolescents

Afolabi

Fairman

2018

Nut in Clin Prac

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Background To support families managing the complex requirements of home parenteral nutrition (HPN) in pediatric patients, health professionals need information about HPN indications and complications. Nationally representative information is limited. Methods A retrospective cohort analysis of the Truven Health MarketScan Commercial Claims and Encounters Database was performed and identified 683 patients aged ≤18 years receiving HPN during dates of service from January 2013 through September 2015. Baseline diagnoses were measured in the 30 days before the first observed HPN claim (preindex). Indications for older (aged 13–18 years) and younger (aged ≤12 years) children were compared. Hospital and emergency department (ED) utilization rates were measured for 30 postindex days. Results Gastrointestinal diagnoses and/or symptoms affected more than three‐quarters of patients. Short bowel syndrome was more common in younger than in older patients (24% vs 7%, respectively), and colitis was less common (13% vs 33%; both P < .01). Cancer was common in both age groups (22%–23%). Additional diagnoses indicating complex medical conditions were observed in a minority of patients: sepsis (9%), convulsions/epilepsy (7%), encephalopathy (3%), and immune deficiency (3%). From the preindex to postindex periods, rates of inpatient hospitalization declined from 78% to 41%, but hospital ED visits increased from 10% to 14%. In both periods, >95% of hospital and ED use was disease related. Conclusion In a nationally representative sample of commercially insured pediatric patients treated with HPN, complex medical conditions were common. Findings highlight the importance of American Society for Parenteral and Enteral Nutrition recommendations for team‐based care.

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Characteristics of a Cohort of Home Parenteral Nutrition Patients at the Time of Enrollment in the Sustain Registry

Abstract: This is the first report of descriptive data from the Sustain Registry. The data reveal important characteristics of patients receiving HPN in 29 U.S. sites.

Cited by 56 publications

References 23 publications

ASPEN‐FELANPE Clinical Guidelines

ASPEN‐FELANPE Clinical Guidelines

Innovative Discharge Process for Families with Pediatric Short Bowel Syndrome: A Prospective Nonrandomized Trial

Pediatric Home Parenteral Nutrition: Indications and Short‐Term Outcomes in a Large National Sample of Commercially Insured Children and Adolescents

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