Characteristics of dementia-friendly hospitals: an integrative review

Manietta, Christina; Purwins, Daniel; Reinhard, Anneke; Knecht, Christiane; Roes, Martina

doi:10.1186/s12877-022-03103-6

Cited by 9 publications

(9 citation statements)

References 36 publications

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“…Furthermore, the development of a quality standard [30] could be done in a participatory manner by involving relevant stakeholders and people with dementia and their relatives and thus include individual preferences of people with dementia and their relatives [64]. This approach appears to be in line with the national dementia strategy in Germany [30] and would support the overall idea of the German dementia strategy to make health care systems more dementia-friendly [65].…”

Section: Discussionmentioning

confidence: 99%

Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review

Rommerskirch-Manietta

Manietta

Purwins

et al. 2023

BMC Health Serv Res

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Background Care counseling is an important psychosocial intervention for people with care needs and their relatives and can contribute to maintaining and/or improving a patient’s quality of life and reducing the burden of caregivers. This is especially the case for people with dementia and their relatives, in which the methods of care counseling need to be different than those for individuals with non-dementia related care needs. Furthermore, the counseling content needs to be adjusted to the specific form and stage of dementia. In Germany, every person who receives support per the German Social Law Book XI (SBG XI) can take advantage of care counseling according to §7a SGB XI. To date, there is no systematic overview of counseling services for people with dementia and their relatives related to this specific provision in Germany. Methods We conducted a gray-shaded scoping review with a focus on the evaluation of care counseling according to §7a SGB XI for people with dementia and their relatives. For this purpose, we applied five search strategies. We researched (1) national electronic databases, (2) Google, (3) targeted websites, (4) experts, and (5) academic electronic databases. Additionally, for the included gray literature, we conducted backward citation tracking via reference lists and forward citation tracking via Google Scholar for scientific articles. Screening of the identified potentially relevant records was performed independently by two reviewers. Results We identified 985 records and included 6 studies in our review. We divided the identified studies into three themes: understanding conceptual dimensions, digitalization of counseling, and understanding the perspective of those being counseled. No studies investigated the perspective and experience of people with dementia and their relatives regarding the counseling service according to §7a SGB XI. Conclusions Our results show that further research is needed, especially regarding the experience of people with dementia and their relatives who participated in counseling according to §7a SGB XI. It seems essential to understand the perspective of people with dementia and their relatives to improve and tailor counseling services in Germany. Registration The review protocol was prospectively published (BMJ Open 12:e059771, 2022).

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Section: Discussionmentioning

confidence: 99%

Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review

Rommerskirch-Manietta

Manietta

Purwins

et al. 2023

BMC Health Serv Res

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“…We also identified two new challenges associated with persons with dementia's health crisis events: challenges in resolving conflicts within informal care networks and care partners' frustration with the lack of support. Few interventions thus far address these challenges for dementia care partners (Manietta et al, 2022;Spillman et al, 2019). Care partners' behavioral responses to these challenges were used to validate and expand the multi-dimensional behavioral CP-R framework.…”

Section: Discussionmentioning

confidence: 99%

Validation and expansion of a behavioral framework for dementia care partner resilience (CP-R)

et al. 2023

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Background and objectives Resilience – the ability to bounce back after a stressor - is a core component of successful family caregiving for people living with dementia. In this manuscript, we describe the preliminary empirical validation of a new behavioral framework developed from existing literature for assessing care partner resilience, CP-R, and propose its potential value for future research and clinical care. Methods We selected 27 dementia care partners who reported significant challenges prompted by a recent health crisis of their care recipient from three local university-affiliated hospitals in the United States. We conducted semi-structured interviews to elicit care partners’ accounts of what they did to address those challenges that helped them recover during and after the crisis. Interviews were transcribed verbatim and analyzed using abductive thematic analysis. Findings When persons with dementia experienced health crises, care partners described various challenges in managing new and often complex health and care needs, navigating informal and formal care systems, balancing care responsibilities with other needs, and managing difficult emotions. We identified five resilience-related behavioral domains, including problem-response (problem-solving, -distancing, -accepting, and -observing), help-related (help-seeking, -receiving, and -disengaging), self-growth (self-care activities, spiritual-related activities, and developing and maintaining meaningful relationships), compassion-related (self-sacrifice and relational compassion behaviors), and learning-related (learning from others and reflecting). Discussions and implications Findings support and expand the multidimensional CP-R behavior framework for understanding dementia care partner resilience. CP-R could guide the systematic measurement of dementia care partners’ resilience-related behaviors, support individual tailoring of behavioral care plans, and inform the development of resilience-enhancing interventions.

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Section: Introductionmentioning

confidence: 99%

“…Older persons with Alzheimer's disease and related dementias (ADRD) or mild cognitive impairment (MCI) are often underserved when in need of acute inpatient care (Manietta et al, 2022; Naef et al, 2018). Hospitalisation poses significant challenges to their health and well‐being, resulting in negative health outcomes such as higher risks for mortality, longer lengths of stay and more nursing home admissions compared to same‐age persons without cognitive impairment (Fox et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

Participatory development and implementation of a dementia care pathway with intervention bundles in acute care during the coronavirus pandemic: A process evaluation study

Petry

Ernst

Naef

2023

Journal of Clinical Nursing

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AimsTo explore the implementation of a dementia care pathway in an acute care setting.BackgroundDementia care in acute settings is often constrained by contextual factors. We developed an evidence‐based care pathway with intervention bundles, and implemented it on two trauma units, with the aim to empower staff and improve quality care.DesignProcess evaluation using quantitative and qualitative methods.MethodsPre‐implementation, unit staff completed a survey (n = 72) assessing family and dementia care skills and level of evidence‐based dementia care. Post‐implementation, champions (n = 7) completed the same survey, with additional questions on acceptability, appropriateness and feasibility, and participated in a focus group interview. Data were analysed using descriptive statistics and content analysis guided by the Consolidated Framework for Implementation Research (CFIR).Reporting GuidelineStandards for Reporting Qualitative Research Checklist.ResultsPre‐implementation, staff's perceived skills in family and dementia care were moderate overall, with high skills in ‘building relationships’ and ‘sustaining personhood’. Evidence‐based interventions were delivered seldom to frequent, with ‘individualized care’ scoring lowest and ‘assessing cognition’ scoring highest. Implementation of the care pathway/intervention bundles was overshadowed by the pandemic, and failed due to major organisational‐ and process‐related barriers. Acceptability scored highest and feasibility lowest, with concerns relating to complexity and compatibility of pathways/bundles when introduced into clinical routines.ConclusionsOur study implies that organisational and process factors are the most influential determinants to the implementation of dementia care in acute settings. Future implementation efforts should draw on the evolving evidence within implementation science and dementia care research to ensure effective integration and improvement process.Relevance to Clinical PracticeOur study provides important learning around improving care for persons with dementia and their families in hospitals.Patient or Public ContributionA family caregiver was involved in the development of the education and training programme.

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Characteristics of dementia-friendly hospitals: an integrative review

Cited by 9 publications

References 36 publications

Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review

Counseling regarding the care of people with dementia with a focus on §7a SGB XI in Germany: a "gray-shaded" scoping review

Validation and expansion of a behavioral framework for dementia care partner resilience (CP-R)

Participatory development and implementation of a dementia care pathway with intervention bundles in acute care during the coronavirus pandemic: A process evaluation study

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