Characteristics of Environmental influences on Child Health Outcomes (ECHO) Cohorts Recruited During Pregnancy

Faro, Elissa Z.; Sauder, Katherine A.; Anderson, Amber L.; Dunlop, Anne L.; Kerver, Jean M.; McGrath, Monica; Roary, Mary; Roman, Carolyn W.; Weidinger, Cara; Huddleston, Kathi

doi:10.1097/nmc.0000000000000725

Cited by 3 publications

(1 citation statement)

References 26 publications

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“…7,8 While these data provide valuable information, few studies examine the home environments where children spend most of their early life. 9,10 Here, children may be exposed to chemicals, noise, microbes, and stress. [11][12][13][14][15] To characterize these pediatric exposomes, researchers must collect data from the household and from children while at home.…”

Section: Introductionmentioning

confidence: 99%

Parental Perceptions of Early Childhood Research with In-Home Monitoring: A Qualitative Study

Smith,

Jones,

Akel

et al. 2023

Preprint

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BackgroundDespite growing interest in novel approaches to measure home environmental effects on the developing child (the exposome), parental perceptions remain poorly understood. Parents’ perspectives are important for building trust, assessing feasibility, and increasing participation in research that includes home monitoring technologies. We aimed to explore parents’ perceptions regarding these topics.MethodsA diverse group of new and expecting mothers participated in semi-structured interviews. A single interviewer conducted all sessions and introduced a hypothetical longitudinal observational early childhood home-based research study including novel home monitoring approaches: 1) wearable devices, 2) audio monitoring, and 3) environmental sampling. Interviews were audio-recorded, transcribed, and coded. A constant comparative approach identified themes from transcripts.ResultsTwenty-four interviews were completed. Emerging themes included 1) Positive Perceptions; 2) Incentives; 3) Transparency and Purpose; 4) Privacy and Safety Concerns; and 5) Logistics and Feasibility. Perceptions were similar across racial, ethnic, and socioeconomic groups. Overall perceptions were positive with several central motivators for hypothetical participation. Participants desired additional information related to feasibility and the purpose of studies. Many had concerns related to wearable device safety and data privacy; a trusting relationship with the research team was a priority.ConclusionMany participants had positive sentiments regarding longitudinal observational studies involving pregnancy and infancy with various incentives, yet they expressed concerns about safety, privacy, feasibility, and transparency. These findings can inform future perinatal and early childhood research study design, particularly those that novel home monitoring approaches, to ensure protocols and communication are transparent, inclusive, and appealing to parents.

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Section: Introductionmentioning

confidence: 99%

Parental Perceptions of Early Childhood Research with In-Home Monitoring: A Qualitative Study

Smith,

Jones,

Akel

et al. 2023

Preprint

View full text Add to dashboard Cite

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Parental Perceptions of Early Childhood In-Home Research with Monitoring: A Qualitative Study

Smith,

Jones,

Akel

et al. 2024

The Journal of Pediatrics

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Recruitment and retention strategies to promote research engagement among caregivers and their children: A scoping review

Corr,

Jusufagic,

Basting

et al. 2024

J. Clin. Trans. Sci.

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Long-term health and developmental impact after in utero opioid and other substance exposures is unclear. There is an urgent need for well-designed, prospective, long-term observational studies. The HEALthy Brain and Child Development Study aims to address this need. It will require optimizing recruitment and retention of caregivers and young children in long-term research. Therefore, a scoping review of original research articles, indexed in the PubMed database and published in English between January 1, 2010, and November 23, 2023, was conducted on recruitment and retention strategies of caregiver–child (≤6 years old) dyads in observational, cohort studies. Among 2,902 titles/abstracts reviewed, 37 articles were found eligible. Of those, 29 (78%) addressed recruitment, and 18 (49%) addressed retention. Thirty-four (92%) articles focused on strategies for facilitating recruitment and/or retention, while 18 (49%) described potentially harmful approaches. Recruitment and retention facilitators included face-to-face and regular contact, establishing a relationship with study personnel, use of technology and social platforms, minimizing inconveniences, and promoting incentives. This review demonstrates that numerous factors can affect engagement of caregivers and their children in long-term cohort studies. Better understanding of these factors can inform researchers about optimal approaches to recruitment and retention of caregiver–child dyads in longitudinal research.

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Characteristics of Environmental influences on Child Health Outcomes (ECHO) Cohorts Recruited During Pregnancy

Cited by 3 publications

References 26 publications

Parental Perceptions of Early Childhood Research with In-Home Monitoring: A Qualitative Study

Parental Perceptions of Early Childhood Research with In-Home Monitoring: A Qualitative Study

Parental Perceptions of Early Childhood In-Home Research with Monitoring: A Qualitative Study

Recruitment and retention strategies to promote research engagement among caregivers and their children: A scoping review

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