Characteristics of non-responders to self-reported questionnaires in a large inflammatory bowel disease cohort study

Abstract

Characteristics of non-responders differed between UC and CD. The risk of non-response to repetitive solicitations (longitudinal versus transversal study) seemed to decrease with age. Assessing non-respondents' characteristics is important to document potential bias in longitudinal studies.

Sociodemographic, personal, and disease-related determinants of referral to patient-reported outcome-based follow-up of remote outpatients: a prospective cohort study

“…We found that lower sociodemographic status was associated with a decreased probability of referral to PRO-based follow-up. This finding is supported by studies regarding questionnaire non-response [8,9]. A Danish study among patients with endometrial cancer found that welleducated patients more often sought medical attendance if symptoms of recurrence occurred than did less educated patients [44].…”

“…Age, gender, cohabitation status, education, and co-morbidity were included in the adjusted analyses. The confounder variables were selected a priori based on associations between these factors and questionnaire non-response in previous studies [8][9][10][11][12][13].…”

“…We have not been able to identify other PRO systems that use PRO measures as the basis for follow-up of outpatients with epilepsy or in any other outpatient population, nor studies that have investigated factors associated with patients who participate in PRO-based follow-up. However, studies regarding non-response to questionnaires have found that factors associated with non-response were lower socioeconomic status [8,9], male sex [8,10,11], younger age [9,10,12], not living with a partner [8,10,13], different ethnic background than Danish [10,12], and poorer health or quality of life [8,9]. It is therefore important that the clinicians consider these and similar aspects when deciding whether to refer a patient to PRO-based follow-up.…”

Information Needs and Concerns of Patients with Inflammatory Bowel Disease: What Can We Learn from Participants in a Bilingual Clinical Cohort?

“…A limitation to our study might be linked with the generalisation of the results to the whole IBD population, knowing that some differences were noticed comparing responders and non-responders to the survey, even if those were in accordance with characteristics of non-responders found in one of our previous study [ 44 ]. Generalisation of results concerning the internet might also be limited for countries where internet access is restricted or limited, which will obviously affect the amount of information that patients could find by themselves.…”

Understanding Response Rates to Surveys About Family Members' Psychological Symptoms After Patients' Critical Illness

“…Using data from a randomized trial of an intervention to improve communication between clinicians and families of critically ill patients (17), we examined patient- and family-level predictors of the return of usable study questionnaires from family members at baseline as well as at 3- and 6-month follow-up assessments. Based on existing evidence about predictors of non-response and attrition (11–15, 18, 19), we chose to assess family member symptoms of psychological distress, decisional independence preference, and attachment style as predictors of return of usable surveys. We hypothesized that family members with fewer symptoms of psychological distress, a preference for less decisional independence (reflecting more trust in clinicians), and secure attachment style would be more likely to return usable questionnaires at the specified time points.…”