Characteristics of personal health records: findings of the Medical Library Association/National Library of Medicine Joint Electronic Personal Health Record Task Force

Jones, Dixie A.; Shipman, Jean P.; Plaut, Daphne A.; Selden, Catherine R.

doi:10.3163/1536-5050.98.3.013

Cited by 88 publications

(58 citation statements)

References 6 publications

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“…From a sample of 8 PHR vendors selected based upon size and influence within the market, we observed there exists a low level of adoption of existing PHR standards, consistent with previous reports in the literature [22]. For critical data components, inclusion into existing PHR products range greatly by vendor between 50-83%.…”

Section: Resultssupporting

confidence: 83%

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Standards and Guidelines for Personal Health Records in the United States: Finding Consensus in a Rapidly Evolving and Divided Environment

Tran¹,

Gonzáles²

2012

J Health Med Inform

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Health care spending in the U.S. over the past decade has dramatically increased over the past decade and is expected to rise to 20% of GDP in the United States by the end of the decade. In 2010, the U.S. Congress approved the Health Care Reform Act with a critical component of this legislation being the adoption of health information technologies (i.e. EMRs, EHRs, PHRs, etc.) aimed at transforming the health care system. Consumer-driven health care models are seen as essential to control the escalating costs of health care. The objective of this research is to canvas the landscape of existing standards and guidelines relating to electronic personal health records (PHRs) and to evaluate the level of adoption of these standards and guidelines amongst current vendors. Through this effort, we propose a consensus standard for PHRs consisting of 14 data components, 11 of which should be essential for all PHRs and 3 additional recommended data components. Through a survey of existing PHR vendors, we observe a low level of adoption of existing standards in commercially available PHR products and note a wide variation (36-73%) of inclusion of critical and desired data components. Further, we propose 4 key features and services based upon a review of the existing literature to facilitate consumer adoption and to improve usefulness of PHRs. By proposing a consensus standard for PHR data components and features, we seek to provide clarity to developers and vendors of HIT products to facilitate product development, interoperability, and integration and data exchange with existing EMR/EHR products.

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Section: Resultssupporting

confidence: 83%

“…A report on standard adoption made by Joint Electronic Personal Health Record Task Force indicated a lack of standard adoption among PHR vendors [22]. The reports highlights from a total of 117 PHR vendors sampled, only 34% (44) followed some kind of standard.…”

Section: Recommended Phr Featuresmentioning

confidence: 99%

Standards and Guidelines for Personal Health Records in the United States: Finding Consensus in a Rapidly Evolving and Divided Environment

Tran¹,

Gonzáles²

2012

J Health Med Inform

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“…Girard, 2014;Shahrasbi & Paré, 2014;Cram, 2012;Jones et al, 2010) each merit more attention in itself: health co-ops, open source ePHR, social values alignment, and the psychological and structural dimensions of organizational readiness. A limitation of our study is in the depth of the findings that could have been enhanced with a multi-theoretic lens and a more interpretive stance.…”

Section: Resultsmentioning

confidence: 99%

Healthcare service innovation based on information technology : The role of social values alignment

Marsan¹,

Audebrand²,

Croteau³

et al. 2017

Systèmes d'Information &Amp; Management

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Le dossier de santé personnel informatisé (DSPI) est une technologie de l’information (TI) conçue pour l’autonomisation des patients en matière d’autogestion de la santé. Toutefois, son déploiement réel reste moindre que prévu en raison de deux barrières principales que doivent adresser les fournisseurs de DSPI : manque de confiance envers le fournisseur dans la confidentialité des données et manque de flexibilité de l’outil. Pour outrepasser ces barrières, nous envisageons la possibilité que les DSPI soient offerts par les coopératives de santé en collaboration avec la communauté de développement open source partageant des valeurs similaires. En mobilisant le concept d’alignement social qui met l’accent sur les valeurs, nous explorons d’abord la possibilité d’alignements sociaux entre les valeurs sous-jacentes à la mission des coopératives de santé et celles sous-jacentes à la finalité des DSPI, et entre les valeurs fondamentales des coopératives de santé et celles des communautés de développement open source. Nous explorons aussi l’effet de ces alignements potentiels sur l’intérêt des coopératives de santé à innover avec un service de santé basé sur le DSPI. Pour atteindre nos objectifs de recherche 17 entrevues ont été menées dans des coopératives de santé au Québec, une province du Canada où le réseau des coopératives de santé est particulièrement actif. Nos résultats montrent que le concept d’alignement des valeurs sociales est utile dans le contexte de l’innovation de service basé sur un DSPI dans les coopératives de santé. Toutefois, notre analyse des données montre que l’alignement des valeurs sociales ne suffit pas pour qu’une telle innovation se produise. En effet, nos résultats nous ont conduits vers le concept de prédisposition organisationnelle afin de mieux comprendre ce qui est nécessaire pour augmenter la probabilité que l’innovation de service basé sur un DSPI se produise au sein des coopératives de santé. Cette étude se termine par l’amorce d’un développement théorique où nous bâtissons sur nos résultats et sur la littérature pour proposer un modèle conceptuel de l’innovation de service basé sur les TI dans les organisations de soins de santé.

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“…The Medical Library Association/National Library of Medicine Joint Electronic PHR Task Force defined a PHR as "a private, secure application through which an individual may access, manage, and share his or her health information… [It] is not synonymous with the EHR "(pg 244) [22] . PHRs allow for ongoing communication between patient and primary care…”

Section: Introductionmentioning

confidence: 99%

“…PHRs make up-to-date, personal health information accessible to patients. This portable accessibility is especially important for patients with complex chronic disease, who are often seen by different care providers [22] . Nationally, it is estimated that…”

Section: Introductionmentioning

confidence: 99%

Using tethered-personal health records for pre-liminary end-of-life discussions with medical providers: Preferences of African American vs. Caucasian primary care patients

Bose‐Brill

Kretovics²,

Ballenger³

et al. 2014

Clinical Nursing Studies

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Background: End-of-life discussions rarely begin early in a patient's disease course due to the time intensive nature of these conversations. Neglect of such conversations often results in poor understanding about a patient's care preferences. Electronic health record (EHR)-tethered Personal Health Records (PHRs) are being used more widely in chronic disease management and may provide a time efficient vehicle to embark on early end-of-life conversations, also known as Advance Care Planning (ACP).

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Characteristics of personal health records: findings of the Medical Library Association/National Library of Medicine Joint Electronic Personal Health Record Task Force

Cited by 88 publications

References 6 publications

Standards and Guidelines for Personal Health Records in the United States: Finding Consensus in a Rapidly Evolving and Divided Environment

Standards and Guidelines for Personal Health Records in the United States: Finding Consensus in a Rapidly Evolving and Divided Environment

Healthcare service innovation based on information technology : The role of social values alignment

Using tethered-personal health records for pre-liminary end-of-life discussions with medical providers: Preferences of African American vs. Caucasian primary care patients

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