Characterizing online crowdfunding campaigns for patients with kidney cancer

Thomas, Hannah S; Lee, Austin W; Nabavizadeh, Behnam; Namiri, Nikan K.; Hakam, Nizar; Martin-Tuite, Patrick; Ríos, Natalie; Enriquez, Anthony; Mmonu, Nnenaya A.; Cohen, Andrew J.; Breyer, Benjamin N.

doi:10.1002/cam4.3974

Cited by 16 publications

(25 citation statements)

References 29 publications

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“…Another change pertinent to our review is the advent of new technologies or policies to potentially alleviate FT, for example, Medicaid expansion through the Affordable Care Act or online crowdfunding platforms such as GoFundMe [ 66 – 68 ]. Regardless of these steps, however, our review demonstrates the durability of FT as a patient-facing barrier in need of better recognition and management.…”

Section: Discussionmentioning

confidence: 99%

Financial toxicity in hematological malignancies: a systematic review

et al. 2022

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Hematologic malignancy outcomes have remarkably improved in the past decade with further advancement expected in future years. However, the detrimental effects of financial toxicity (FT) on patients with hematologic malignancies, because of both diagnoses and subsequent treatments, have not been studied comprehensively. We performed a systematic review of all studies reporting FT as a primary or secondary outcome among adult or pediatric patients with hematological malignancies. A total of 55 studies met the inclusion criteria for analysis. Across studies, 20–50% of patients reported some form of FT, including loss of work productivity, food and transportation costs, and depletion of savings. Younger age, lower-income level, unemployment, and rural residence were the most commonly identified risk factors for FT. Two studies looked at survival outcomes, with one reporting improvement in survival with a decrease in financial toxicity. However, significant heterogeneity in FT definitions was found between countries and payor systems. Only half of the studies (51%, n = 28) used validated survey instruments such as the COST assessment. The present systematic review identified that FT is common in patients with hematological malignancies and may be associated with poorer outcomes. However, studies of FT generally use non-standardized methods with cross-sectional analyses rather than longitudinal, prospective assessments. Further work is needed to standardize FT reporting and investigate measures to alleviate FT among patients with hematologic malignancies.

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Section: Discussionmentioning

confidence: 99%

Financial toxicity in hematological malignancies: a systematic review

et al. 2022

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“…These findings built on the work of other publications that have examined crowdfunding in urology [ 12 , 16 , 17 ]. For example, Di Carlo et al analyzed 119 urology campaigns from Canada and found that urologic oncology campaigns fundraised more than campaigns raising for urologic benign conditions [ 12 ].…”

Section: Discussionmentioning

confidence: 59%

“…Moreover, in another study, campaigns for prostate cancer were shown to collect significantly less than those for breast cancer [ 16 ]. Thomas et al evaluated 486 GoFundMe ® kidney campaigns and found that among 486 kidney cancer campaigns, only 8% were successful; the median goal was $10,000, the median amount raised was $1450 and the median number of donors was 17 [ 17 ]. We identified considerable heterogeneity in the amount of funding requested and raised by cancer type.…”

Section: Discussionmentioning

confidence: 99%

Online Crowdfunding for Urologic Cancer Care

Rajwa

Hopen

Wojnarowicz

et al. 2022

Cancers

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Background: we aimed to characterize the financial needs expressed through online crowdfunding for urologic cancers. Methods: the data used in this study came from the online crowdfunding platform GoFundMe.com. Using an automated software method, we extracted data for campaigns related to urologic cancers. Subsequently, four independent investigators reviewed all extracted data on prostate, bladder, kidney and testicular cancer. We analyzed campaigns’ basic characteristics, goals, fundraising, type of treatment and factors associated with successful campaigns. Results: in total, we identified 2126 individual campaigns, which were related to direct treatment costs (34%), living expenses (17%) or both (48%). Median fundraising amounts were greatest for testicular cancer. Campaigns for both complementary and alternative medicine (CAM) (median $11,000) or CAM alone (median $8527) achieved higher fundraising totals compared with those for conventional treatments alone (median $5362) (p < 0.01). The number of social media shares was independently associated with campaign success and highest quartile of fundraising. Conclusions: using an automated web-based approach, we identified and characterized online crowdfunding for urologic cancer care. These findings indicated a diverse range of patient needs related to urologic care and factors related to campaigns’ success.

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“…Similar trends apply in the sphere of some rare diseases, where Vassell et al (2020) systematically studied medical crowdfunding campaigns in support of the diagnosis and treatment of Lyme disease, looking for common themes in these narratives. Research in the area of orthopaedics and oncology-kidney cancer in particular-produced similar results, confirming that the allocation of resources (donations) is disproportionally biased towards some diseases, locations and people who know how to master social media, leveraging on their networks to produce a compelling project narrative (Durand et al 2018a;Thomas et al 2021). Food relief campaigns in the United States connected to Covid-19 were also investigated, highlighting once again that a successful output is the result of an exquisite combination of wording, imagery and presence on social media (Zhao et al 2020b).…”

Section: Predictors Of Successful Funding Campaignsmentioning

confidence: 78%

An overview of Fintech applications to solve the puzzle of health care funding: state-of-the-art in medical crowdfunding

Grassi

Fantaccini

2022

Financ Innov

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Crowdfunding is emerging as an alternative form of funding for medical purposes, with capital being raised directly from a broader and more diverse audience of investors. In this paper, we have systematically researched and reviewed the literature on medical crowdfunding to determine how crowdfunding connects with the health care industry. The health care industry has been struggling to develop sustainable research and business models for economic systems and investors alike, especially in pharmaceuticals. The research results have revealed a wealth of evidence concerning the way crowdfunding is applied in real life. Patients and caregivers utilize web platform–based campaigns all over the world to fund their medical expenses, generally on a spot basis, using donation-based or even reward-based schemes, regardless of the health care system archetype (public, private insurance-based or hybrid). Academics have also focused on funding campaigns and the predictors of success (which range from social behaviour and environment to the basic demographics of the campaigners and their diseases) and on social and regulatory concerns, including heightened social inequality and stigma. While equity crowdfunding is disrupting the way many ventures/businesses seek capital in the market, our research indicates that there are no relevant or consistent data on the practice of medical equity crowdfunding in health care, apart from a few anecdotal cases.

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Characterizing online crowdfunding campaigns for patients with kidney cancer

Cited by 16 publications

References 29 publications

Financial toxicity in hematological malignancies: a systematic review

Financial toxicity in hematological malignancies: a systematic review

Online Crowdfunding for Urologic Cancer Care

An overview of Fintech applications to solve the puzzle of health care funding: state-of-the-art in medical crowdfunding

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