Characterizing the systems of support for families of children with disabilities: A review of the literature

The views and experiences of families and direct care support workers regarding the expression of sexuality by adults with intellectual disabilities: A narrative review of the international research evidence

“…These, factors, along with changes in social policy, such as deinstitutionalization strategies, has presented opportunities to address issues such as the expression of sexuality. Increasingly, with the locus of care being situated in the community, families and carers play a central role in proving the on-going care and supports to people with ID (Vanegas & Abdelrahim, 2016).…”

Apoios e relações entre mães e avós de crianças com deficiência: falando sobre solidariedade intergeracional familiar

“…In this sense, and considering that grandparents are participants in the process that involves their grandchild's disability, support programs or interventions can include grandparents and help them define their role, also providing communication and interaction skills with their disabled grandson. This is because families often lack the knowledge, resources, and skills that could help them overcome challenges while raising a child with a disability (Woodbridge et al, 2011;Vanegas & Abdelrahim, 2016).…”

Research Foundations for Evidence-Informed Early Childhood Intervention Performance Checklists

“…The evidence for both the informed decision making and family engagement practices include findings from research syntheses of the relationships between different kinds of informal and formal social support practices and child, parent, and family outcomes [187,195,[278][279][280][281][282][283]. The social support practices constituting the focus of investigation include key characteristics of family systems [273] and family-centered intervention practices [280,284] and their relationships with parent and family functioning [195,264,281,283,285,286].…”

“…The social support practices constituting the focus of investigation include key characteristics of family systems [273] and family-centered intervention practices [280,284] and their relationships with parent and family functioning [195,264,281,283,285,286]. These include a focus of interventions on family identified sources and supports [279,287,288] and active family involvement in providing those sources of support and resources [57,187,278].…”