Child Abuse in Children and Youth with Special Health Care Needs

Brodie, Nicola; McColgan, Maria D.; Spector, Nancy D.; Turchi, Renee M.

doi:10.1542/pir.2016-0098

Cited by 13 publications

(9 citation statements)

References 25 publications

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“…These factors can contribute to poor care or even abuse or neglect for patients and their siblings (Murphy, 2011). Assessing for family needs and resilience factors is important in providing comprehensive care for these children (Brodie, McColgan, Spector, & Turchi, 2017). Medical social work should be involved in the first interview and longitudinal assessment of these families.…”

Section: Child Advocacymentioning

confidence: 99%

Interdisciplinary care of children with trisomy 13 and 18

Weaver

Anderson

Beck

et al. 2020

American J of Med Genetics Pt A

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Children with trisomy 13 and 18 (previously deemed “incompatible with life”) are living longer, warranting a comprehensive overview of their unique comorbidities and complex care needs. This Review Article provides a summation of the recent literature, informed by the study team's Interdisciplinary Trisomy Translational Program consisting of representatives from: cardiology, cardiothoracic surgery, neonatology, otolaryngology, intensive care, neurology, social work, chaplaincy, nursing, and palliative care. Medical interventions are discussed in the context of decisional‐paradigms and whole‐family considerations. The communication format, educational endeavors, and lessons learned from the study team's interdisciplinary care processes are shared with recognition of the potential for replication and implementation in other care settings.

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Section: Child Advocacymentioning

confidence: 99%

Interdisciplinary care of children with trisomy 13 and 18

Weaver

Anderson

Beck

et al. 2020

American J of Med Genetics Pt A

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“…The purpose of the study was to determine the prevalence of perceived CAN and accordingly school-age and adolescent-age groups were selected to easily understand and answer the questions. The inclusion criteria included the conscious and mentally healthy children without behavioral disorders,[ 7 ] according to a child's medical record and being hospitalized in the internal wards of the selected hospital affiliated to the Isfahan University of Medical Sciences (IUMS) during the study period. In addition, the criterion to diagnose the chronic condition was passing 3 months since the diagnosis.…”

Section: Methodsmentioning

confidence: 99%

“…They also need higher levels of healthcare services than normal children, mandating more. [ 7 8 ] It has been documented that these children have challenging family environments and impose heavy burdens on parents because of chronic health conditions. [ 6 9 ] Children with chronic problems usually feel different from their peers and become sensitive to the behaviors of those around them.…”

Section: Introductionmentioning

confidence: 99%

Perceived Child Abuse and Neglect in Hospitalized Children with Special Health Care Needs in Iran

Bahrami¹,

Tork-Torabi²,

Sotoudeh³

et al. 2021

Iranian Journal of Nursing and Midwifery Research

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Background: Child Abuse and Neglect (CAN) is an important public health concern. Nurses play a key role in caring for the children and keeping them safe from abuse and neglect. The aim of this study was to determine the rate of perceived CAN in Hospitalized Children with Special Health Care Needs (CSHCN) as well as the relationship between the rate and some effective factors. Materials and Methods: This is a descriptive cross-sectional study on 199 CSHCN aged 6–18 years old, admitted to the pediatric wards in an educational hospital, in Isfahan, Iran, in 2018. Children were selected through convenience sampling method and assessed for CAN through a child abuse questionnaire. The Pearson correlation coefficient and Kruskal–Wallis and Mann–Whitney U tests were used to analyze the data. The p values smaller than 0.05 were regarded as significant. Results: According to the findings, 173 children (86.93%) had perceived CAN, the average total score of which was 9.36 contributing commonly to malnutrition 3.01 (2.36) followed by psycho-emotional abuse 2.71 (1.76), neglect 1.62 (1.23), and physical 1.52 (1.08) and sexual 0.54 (0.31) abuse based on mean (SD). Statistical analysis indicated a significant effect of child's age, economic situation of the family, mother's education and occupation, and parents' illness on the total score of perceived CAN (p < 0.05). Conclusions: Malnutrition was found to be the most common type of perceived CAN. Therefore, parents and the health system are advised to prioritize nutritional needs when planning their nutrition.

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“…A child with an FASD is a child with special health care needs, and children with special health care needs are 4 times more likely to be victims of abuse than their typically developing peers. 50,51 To productively parent a child with an FASD, caregivers may benefit from special training and education about the child's condition and parenting strategies and approaches that are more likely to be successful. Often, trying different approaches to parenting that exemplify understanding of the child's unique strengths and weaknesses can make a tremendous improvement in the child and his or her family's functioning.…”

Section: Supporting Families After the Diagnosis Is Made And Providinmentioning

confidence: 99%

The Role of Integrated Care in a Medical Home for Patients With a Fetal Alcohol Spectrum Disorder

Turchi

Smith

2018

Pediatrics

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Fetal alcohol spectrum disorder (FASD) is an umbrella term used to describe preventable birth defects and intellectual and/or developmental disabilities resulting from prenatal alcohol exposure. The American Academy of Pediatrics has a previous clinical report in which diagnostic criteria for a child with an FASD are discussed and tools to assist pediatricians with its management can be found. This clinical report is intended to foster pediatrician awareness of approaches for screening for prenatal alcohol exposure in clinical practice, to guide management of a child with an FASD after the diagnosis is made, and to summarize available resources for FASD management.

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Child Abuse in Children and Youth with Special Health Care Needs

Cited by 13 publications

References 25 publications

Interdisciplinary care of children with trisomy 13 and 18

Interdisciplinary care of children with trisomy 13 and 18

Perceived Child Abuse and Neglect in Hospitalized Children with Special Health Care Needs in Iran

The Role of Integrated Care in a Medical Home for Patients With a Fetal Alcohol Spectrum Disorder

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