Childhood amblyopia treatment: psychosocial implications for patients and primary carers

Choong, Yee Fong; Lukman, H; Martin, Suzanne E.; Laws, David

doi:10.1038/sj.eye.6700647

Cited by 55 publications

(35 citation statements)

References 18 publications

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“…Seven instruments were intended as measures of QoL (The Impact of Vision Impairment on Children (IVI_C),44 45 Children's Visual Function Questionnaire (CVFQ),46 47 Vision-related Quality of Life of Children and Young People (VQoL_CYP),35 Intermittent Exotropia Questionnaire (IXTQ),48–50 Quality of Life in Children with Vernal Keratoconjunctivitis (QUICK),43 Pediatric Refractive Error Profile (PREP)51–54 and Children's Amblyopia Treatment Quality of Life Questionnaire (CAT-QoL)38); three of functional vision or visual ability (Cardiff Visual Ability Questionnaire for Children (CVAQC),55 LV Prasad–Functional Vision Questionnaire (LVP-FVQ)40 and LV Prasad–Functional Vision Questionnaire Second Version (LVP-FVQ II)39); two of the impact of treatment for the condition (Amblyopia Treatment Index (ATI)56–64 and Emotional Impact of Amblyopia Questionnaire (EIAQ)65); one of symptoms (Convergence Insufficiency Symptom Survey (CISS-V15)66–75); one of both symptoms and QoL (Nasolacrimal Duct Obstruction (NLDO76–79) Questionnaire); one of psychosocial impact of the condition (Psychological Impact Questionnaire (PIQ)80); and one of well-being (Perceived Psychosocial Questionnaire (PPQ)81 82). The Effects of Youngsters’ Eyesight on Quality of Life (EYE-Q)83 84 is interchangeably referred to as a measure of visual function and QoL.…”

Section: Resultsmentioning

confidence: 99%

Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review

et al. 2013

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198/200; Main text 4099/4000. Refs 85; Tables 1; Figures 1; Appendices 7. 2 CHESS PROMs review Cephalgia FTC:110117 Re-submit 240517 Tables edited 270717 Structured Abstract: (198/200) Aims To critically appraise, compare and synthesise the quality and acceptability of multi-item PROMs for adults with chronic or episodic headache. Methods Systematic literature searches of major databases (1980-2016) to identify published evidence of PROM measurement and practical properties. Data on study quality (COSMIN), measurement and practical properties per measure was extracted and assessed against accepted standards to inform an evidence synthesis. Results From 10,903 reviewed abstracts, 103 articles were assessed in full; 46 provided evidence for 23 PROMs: eleven specific to the health-related impact of migraine (n=5) or headache (n=6); six assessed migraine-specific treatment response/satisfaction; six were generic measures. Evidence for measurement validity and score interpretation was strongest for two measures of impact-Migraine-Specific Quality of Life Questionnaire (MSQ v2.1) and Headache Impact Test 6-item (HIT-6), and one of treatment response-the Patient Perception of Migraine Questionnaire (PPMQ-R). Evidence of reliability was limited, but acceptable for the HIT-6. Responsiveness was rarely evaluated. Evidence for the remaining measures was limited. Patient involvement was limited and poorly reported. Conclusion Whilst evidence is limited, three measures have acceptable evidence of reliability and validity-HIT-6, MSQ v2.1 and PPMQ-R. Only the HIT-6 has acceptable evidence supporting its completion by all 'headache' populations.

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Section: Resultsmentioning

confidence: 99%

Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review

et al. 2013

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“…Choong and colleagues 147 used the Perceived Stress Index (PSI) and the Perceived Psychosocial Questionnaire (PPQ) to measure a carer's perception of stress and psychosocial well-being of the child prior to and following commencement of treatment for amblyopia. This prospective study included carers of two groups: occluded (n = 31) and non-occluded (n = 28).…”

Section: Effect Of Treatment Of Amblyopia On Qolmentioning

confidence: 99%

“…Choong et al 147 2004 UK Study to assess carers' perception of stress and well-being of child before and during amblyopia treatment All primary carers with children who were diagnosed with probable amblyopia or reduced vision and about to undergo treatment for the first time were invited to participate. Ongoing study with 93 participants so far, but 65 completed in study and discussed in paper Demographics of carers Majority of carers (n = 52) were mothers; 96.9% of the sample were Caucasian; mean age of carers was 32.4 years (SD = 6.3) 15.9% of the sample had tertiary education of higher, 38.1 college, 42.9 secondary, 3.1% primary level 80% of the sample had more than one child other than the one who was seen at the clinic.…”

Section: Timementioning

confidence: 99%

The clinical effectiveness and cost-effectiveness of screening programmes for amblyopia and strabismus in children up to the age of 4-5 years: a systematic review and economic evaluation

Carlton¹,

Karnon²,

Czoski-Murray³

et al. 2008

Health Technol Assess

149

162

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“…Indeed in a study by Choong et al 53 , the authors found no significant changes in parental (carer's) stress or the child's psychosocial well-being between an occluded and non-occluded group. One factor which did result in changes in parental attitude towards the child was the issuing of glasses.…”

Section: Emotional Well-being and Amblyopiamentioning

confidence: 95%

The Value of Screening for Amblyopia Revisited

Carlton

Czoski-Murray

2010

Essentials in Ophthalmology

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Childhood amblyopia treatment: psychosocial implications for patients and primary carers

Abstract: Purpose To investigate the psychosocial impact of amblyopia therapy on children and their carers. Method The study was prospective and incorporated a repeated-measures design.

Cited by 55 publications

References 18 publications

Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review

Patient-reported outcome measures (PROMs) in paediatric ophthalmology: a systematic review

The clinical effectiveness and cost-effectiveness of screening programmes for amblyopia and strabismus in children up to the age of 4-5 years: a systematic review and economic evaluation

The Value of Screening for Amblyopia Revisited

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