Childhood Cancer Survivors' Knowledge About Their Past Diagnosis and Treatment

Kadan‐Lottick, Nina S.; Robison, Leslie L.; Gurney, James G.; Neglia, Joseph P.; Yasui, Yutaka; Hayashi, Robert J.; Hudson, Melissa M.; Greenberg, Mark; Mertens, Ann C.

doi:10.1001/jama.287.14.1832

Cited by 337 publications

(262 citation statements)

References 16 publications

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“…However, a recent study suggested that only 72% of survivors could accurately report their diagnosis with precision, and even fewer could accurately report on their cancer-associated therapies. 44 Survivors need the means to provide clinicians with accurate information concerning their cancer diagnosis and treatment. It is incumbent on the physicians providing care for pediatric cancer patients to provide them with an accurate summary of their treatment history, and information concerning the potential late effects of those therapies.…”

Section: Discussionmentioning

confidence: 99%

The cancer screening practices of adult survivors of childhood cancer

Yeazel

Oeffinger

Gurney

et al. 2004

Cancer

Self Cite

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BACKGROUNDThe current study characterized the self‐reported cancer screening practices of adult survivors of childhood cancer.METHODSA cohort of 9434 long‐term survivors of childhood cancer and a comparison group of 2667 siblings completed a 289‐item survey that included items regarding cancer‐screening practices.RESULTSOverall, 27.3% of female respondents reported performing breast self‐examination (BSE) regularly, 78.2% reported undergoing a Papanicolaou smear within the previous 3 years, 62.4% underwent a clinical breast examination (CBE) within the last year, and 20.9% had gotten a mammogram at least once in their lifetime. Approximately 17.4% of male respondents reported performing regular testicular self‐examination (TSE). Women age ≥ 30 years who had been exposed to chest or mantle radiation therapy were more likely to report undergoing CBE (odds ratio [OR], 1.59; 95% confidence interval [95% CI], 1.32–1.92) and mammography (OR, 1.92; 95% CI, 1.47–2.56). Compared with the sibling comparison group, survivors demonstrated an increased likelihood of performing TSE (OR, 1.52; 95% CI, 1.22–1.85) or BSE (OR, 1.30; 95% CI, 1.10–1.52), of having undergone a CBE within the last year (OR, 1.18; 95% CI, 1.02–1.35), and of ever having undergone a mammogram (OR, 1.82; 95% CI, 1.52–2.17).CONCLUSIONSThe results of the current study demonstrate that the cancer screening practices among survivors of childhood cancer are below optimal levels. Primary care physicians who include childhood cancer survivors among their patients could benefit these individuals by informing them about future cancer risks and recommending appropriate evidence‐based screening. Cancer 2004. © 2003 American Cancer Society.

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Section: Discussionmentioning

confidence: 99%

The cancer screening practices of adult survivors of childhood cancer

Yeazel

Oeffinger

Gurney

et al. 2004

Cancer

Self Cite

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“…The risk for obesity was greatest among females diagnosed before 4 years of age and treated with radiation doses Ն 20 Gy (RR ϭ 3.81; 95% CI, 2.34 -5.99; P Յ 0.001). Obesity was not associated with treatment consisting of chemotherapy only or with cranial radiation doses of [10][11][12][13][14][15][16][17][18][19] Gy.…”

Section: Obesity In Survivors Of Childhood Acute Lymphoblastic Leukemiamentioning

confidence: 92%

“…To evaluate the level of knowledge of past diagnosis and treatment, a 5% sample (n ϭ 635) of CCSS participants was selected and interviewed. 12 The information obtained from survivors was compared with the information abstracted from their medical records. Overall, 72% named their diagnosis with precision, and 19% were accurate but not precise.…”

Section: Knowledge Of Cancer Diagnosis and Treatmentmentioning

confidence: 99%

Long-term outcomes of adult survivors of childhood cancer

Robison

Green

Hudson

et al. 2005

Cancer

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191

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“…11,12 Because many cancer treatmentrelated sequelae may not become clinically apparent until the survivor attains maturity or with the aging process, education of survivors and the health care providers supervising their care represents an important component of the transition process. Educational efforts should begin early in the continuum of cancer care and respond to the information needs of children and adolescents/young adults across the cancer survivorship spectrum from diagnosis to long-term follow-up.…”

Section: Health Educationmentioning

confidence: 99%

Critical issues in transition and survivorship for adolescents and young adults with cancers

Nathan

Hayes‐Lattin

Sisler

et al. 2011

Cancer

153

136

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The majority of children, adolescents, and young adults diagnosed with cancer will become long-term survivors with many potential years of life ahead of them. Their journey from health through diagnosis and treatment to survivorship involves multiple transitions. Transitional services that should be available throughout this journey include healthrelated education, health surveillance and screening, management of cancer-related complications, and psychosocial support relevant to their developmental needs. Survivors require lifelong care that focuses not only on the medical risks arising from their cancer therapy, but also the psychosocial, educational, and vocational implications of surviving cancer. Because many community health care providers lack familiarity with the health risks associated with childhood or adolescent/young adult cancer, survivors must have sufficient health knowledge to advocate for risk-based cancerrelated follow-up; the provision of a treatment summary and care plan at the conclusion of their cancer therapy is an important tool for facilitating this process. The availability of resources for survivors varies by geography, health care system, and survivor characteristics. Adolescents and young adults who receive their care outside of a pediatric cancer center have particularly limited access. The limitations in cancer center resources (along with survivor preference) strongly suggest that the long-term care of survivors will need to be shared between the cancer centers and primary care providers in survivors' communities. Cancer 2011;117(10 suppl):2335-

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Childhood Cancer Survivors' Knowledge About Their Past Diagnosis and Treatment

Abstract: Important knowledge deficits exist among adult survivors of childhood cancer regarding basic aspects of their diagnosis and treatment. Such deficits could impair survivors' ability to seek and receive appropriate long-term follow-up care.

Cited by 337 publications

References 16 publications

The cancer screening practices of adult survivors of childhood cancer

The cancer screening practices of adult survivors of childhood cancer

Long-term outcomes of adult survivors of childhood cancer

Critical issues in transition and survivorship for adolescents and young adults with cancers

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