Children in Research: Fathers in Cancer Research—Meanings and Reasons for Participation

Liaschenko, Joan; Underwood, Sandra Millon

doi:10.1177/107484070100700105

Cited by 32 publications

(35 citation statements)

References 40 publications

(26 reference statements)

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“…The final sample consisted of 16 studies (21)(22)(23)(24)(25)(26)(27)(28)(29)(30)(31)(32)(33)(34)(35)(36) . As shown in Chart 1, the articles were published between 2001 and 2013 in six different countries: Australia (N=4), the United States (N=4), Canada (N=4), Brazil (N=2), China (N=1) and Ireland (N=1).…”

Section: Resultsmentioning

confidence: 99%

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Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis

et al. 2018

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Approval: 03-18-2017 ABSTRACT Objective: To synthesize and interpret fi ndings and conclusions of qualitative research addressing the experience of the father in the care of the child with cancer. Method: Meta-synthesis of 16 qualitative studies from six databases, analyzed through taxonomic analysis. Results: Child and adolescent cancer have several repercussions on the daily life of the father, especially related to the stigma around the disease, the fear of the unknown and the social and family role. Faced with the illness and the need to care for the child, the father seeks to recover normality in the family and transitions between hegemonic masculine behaviors and practices culturally recognized as female. Final Considerations: The complex experience of the father, infl uenced by masculinities, was evidenced. The limitations regard the restricted understanding of the contextual specifi cities of the experiences, due to the limited characteristics of the parents and children described in the studies. The knowledge produced is useful to promote involvement of fathers in the care of the child, as well as to strengthen and assist him in this task. Descriptors: Fathers; Pediatric Nursing; Qualitative Research; Cancer; Family Nursing. RESUMO Objetivo: Sintetizar e interpretar resultados e conclusões de pesquisas qualitativas sobre a experiência do pai no cuidado do fi lho com câncer. Método: Metassíntese de 16 estudos qualitativos capturados em seis bases de dados e analisados por meio da análise taxonômica. Resultados: O câncer infantojuvenil impõe inúmeras repercussões ao cotidiano do pai, sobretudo relacionadas ao estigma da doença, ao medo do desconhecido e ao papel social e familiar. Diante da doença e da necessidade de cuidado do fi lho, o pai busca resgatar a normalidade na família e transita entre comportamentos hegemonicamente masculinizantes e práticas reconhecidas culturalmente como femininas. Considerações fi nais: Evidenciou-se a complexa experiência paterna infl uenciada pelas masculinidades. As limitações referem-se à restrita compreensão das especifi cidades contextuais das experiências, pelas escassas características dos pais e fi lhos descritas nos estudos. O conhecimento produzido revela-se útil para promover o engajamento paterno no cuidado do fi lho, bem como fortalecê-lo e auxiliá-lo nesta tarefa. Descritores: Pai; Enfermagem Pediátrica; Pesquisa Qualitativa; Neoplasia; Enfermagem Familiar. RESUMENObjetivo: Sintetizar e interpretar resultados y conclusiones de investigaciones cualitativas sobre la experiencia del padre en el cuidado del hijo con cáncer. Método: Metasíntesis de 16 estudios cualitativos recogidos en seis bases de datos y examinados mediante análisis taxonómica. Resultados: El cáncer infantojuvenil repercute considerablemente en la vida cotidiana del padre, sobre todo con relación al estigma de la enfermedad, al miedo a lo desconocido y al papel social y familiar. Ante la enfermedad y la necesidad de Care provided by the father to the child with cancer under the infl uence of m...

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Section: Resultsmentioning

confidence: 99%

“…United States (22) Descriptive/ Generic qualitative Semi-structured interviews N=12; age=36-59; biological fathers. Fathers of children from 8 to 20 years old, on therapeutic and non-therapeutic cancer treatments.…”

Section: Liaschenko 2001mentioning

confidence: 99%

Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis

et al. 2018

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“…[42][43][44] Consent can often be sought soon after diagnosis, at birth or when the child is very ill and the parents are distressed and vulnerable. 30,45,46 Despite such challenges, parents have reported that they, rather than doctors or nurses, should be the ones who make the decision about whether a child should enter a trial, 15,32,43,47,48 although parents value doctors' advice. 49 Making a decision for one's child is further complicated by the need to make the 'right decision' and the anticipation that one might later regret a decision.…”

Section: The Context and Experience Of Trial Recruitmentmentioning

confidence: 99%

“…43 Altruism, although frequently cited by parents as a motivation for participation in trials, 49,62,63 may be a secondary consideration in their decision. 26,45,64 The seriousness of the child's condition and the urgency surrounding trial entry and parents' resulting sense of vulnerability have also been found to be important influences on how parents experience recruitment to trials. 31,32,55,65 However, the relationship between anxiety, vulnerability and trial decisions may be mediated or moderated by factors such as trust in medical research 66 and the parent-practitioner relationship.…”

Section: Influences On Parents' Decision To Enter Their Child Into a mentioning

confidence: 99%

Processes in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative study

Shilling

Williamson²,

Hickey³

et al. 2011

Health Technol Assess

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How to obtain copies of this and other HTA programme reports An electronic version of this title, in Adobe Acrobat format, is available for downloading free of charge for personal use from the HTA website (www.hta.ac.uk). A fully searchable DVD is also available (see below).Printed copies of HTA journal series issues cost £20 each (post and packing free in the UK) to both public and private sector purchasers from our despatch agents.Non-UK purchasers will have to pay a small fee for post and packing. For European countries the cost is £2 per issue and for the rest of the world £3 per issue. How to order:-fax (with credit card details) -post (with credit card details or cheque) -phone during office hours (credit card only).Additionally the HTA website allows you to either print out your order or download a blank order form. Contact details are as follows:Synergie UK (HTA Department) Digital House, The Loddon Centre Wade Road Basingstoke Hants RG24 8QW Email: orders@hta.ac.uk Tel: 0845 812 4000 -ask for 'HTA Payment Services' (out-of-hours answer-phone service) Fax: 0845 812 4001 -put 'HTA Order' on the fax header Payment methods Paying by chequeIf you pay by cheque, the cheque must be in pounds sterling, made payable to University of Southampton and drawn on a bank with a UK address.Paying by credit card You can order using your credit card by phone, fax or post. SubscriptionsNHS libraries can subscribe free of charge. Public libraries can subscribe at a reduced cost of £100 for each volume (normally comprising 40-50 titles). The commercial subscription rate is £400 per volume (addresses within the UK) and £600 per volume (addresses outside the UK). Please see our website for details. Subscriptions can be purchased only for the current or forthcoming volume.How do I get a copy of HTA on DVD?Please use the form on the HTA website (www.hta.ac.uk/htacd/index.shtml). HTA on DVD is currently free of charge worldwide.The website also provides information about the HTA programme and lists the membership of the various committees. HTAProcesses in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative study NIHR Health Technology Assessment programmeThe Health Technology Assessment (HTA) programme, part of the National Institute for Health Research (NIHR), was set up in 1993. It produces high-quality research information on the effectiveness, costs and broader impact of health technologies for those who use, manage and provide care in the NHS. 'Health technologies' are broadly defined as all interventions used to promote health, prevent and treat disease, and improve rehabilitation and long-term care. The research findings from the HTA programme directly influence decision-making bodies such as the National Institute for Health and Clinical Excellence (NICE) and the National Screening Committee (NSC). HTA findings also help to improve the quality of clinical practice in the NHS indirectly in that they form a key component of the 'National Knowledge Service' . The HTA programme is n...

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“…Several studies have shed light on the parental decision-making process, finding that numerous factors, including the possibility of therapeutic benefit, 1,2 altruism, [3][4][5][6] the desire to contribute to medical science, 3,6 the ratio of risks to benefits, 7 and the perception of no other alternative 2,5 weigh heavily in parental decisions to grant or to refuse consent. In a previous study, we found that parents generally have positive views of research involving newborns, with fewer than 10% of participants agreeing that undertaking research with babies was intrinsically wrong.…”

Section: Introductionmentioning

confidence: 99%

Attitudes of Health-Care Providers towards Research with Newborn Babies

et al. 2004

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CONTEXT:By providing information and possibly shaping parents' preferences, health-care providers are thought to play a critical role in parental decisions to enroll their infants in research. Yet, little is known about health-care providers' beliefs about research with newborns. Previous studies suggest that parents and health-care providers are often at odds regarding attitudes towards research. OBJECTIVE:To examine the attitudes of health-care providers concerning the acceptability of research with newborn babies and the degree of researchrelated risk to which they would be willing to expose their own infant. These findings were compared with a previous study of parental attitudes. DESIGN, SETTING AND PARTICIPANTS:A survey (pretested questionnaire with 20 scaled items and five case scenarios) of 50 doctors and 64 nurses conducted in a large tertiary care center in western Canada. RESULTS:Study limitations were a response rate of 64.5% among nurses but only 22% among physicians. Both doctors and nurses were strongly supportive of research with newborns, but nurses were more averse to exposing infants to risk. Only 76.0% of nurses, compared to 92.2% of physicians, agreed that informed consent should be sought for all forms of research. When results were compared with parental perceptions, health-care providers were more likely to believe that research should be conducted for the good of all babies. Parents were generally less aware of the existence of an approval process for research in general. In responding to hypothetical scenarios with risk and direct benefit, parents were less willing to enroll their infants than were health-care providers. Approximately 30% of both groups would be willing to enroll their infants in a study involving moderate risk and no direct benefit. CONCLUSIONS:Views of nurses, physicians, and parents regarding research with newborns are different. Overall, there is support for research; however, nurses are more likely to never enroll their own baby and enroll babies into minor studies without consent.

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Children in Research: Fathers in Cancer Research—Meanings and Reasons for Participation

Cited by 32 publications

References 40 publications

Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis

Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis

Processes in recruitment to randomised controlled trials of medicines for children (RECRUIT): a qualitative study

Attitudes of Health-Care Providers towards Research with Newborn Babies

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