Children's Behavior and Maternal Parenting Stress in Young Children With Sex Chromosome Trisomies

Lorini, Alessandra; Zampini, Laura; Silibello, Gaia; Dall’Ara, Francesca; Rigamonti, Claudia; Ajmone, Paola Francesca; Monti, Federico; Lalatta, Faustina; Costantino, Maria Antonella; Vizziello, Paola

doi:10.1097/dbp.0000000000001015

J Dev Behav Pediatr

2021

DOI: 10.1097/dbp.0000000000001015

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Children's Behavior and Maternal Parenting Stress in Young Children With Sex Chromosome Trisomies

Alessandra Lorini

Laura Zampini

Gaia Silibello

et al.

Abstract: Participants included in this study were 87 children ranging in age from 18 to 26 months (M 5 23.59; SD 5 e198 Children's Behavior in Sex Chromosome Trisomies

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2024

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Reaction to Diagnosis and Parental Concerns in Parents of Children and Young Adults With XYY Syndrome

Zampini,

Zanchi,

Silibello

et al. 2024

Child

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BackgroundThere is a growing interest in exploring parents' views on the benefits of early diagnosis and awareness of sex chromosome trisomies. However, only a few studies focus specifically on the experience of parents of children with XYY syndrome. The present study aimed to assess, in parents of individuals with XYY, the perceived severity of their children's condition, their level of satisfaction with the disclosure process and their concerns about their children's present and future condition.MethodsA national online sample of 56 Italian parents of children and young adults diagnosed with XYY syndrome participated in the study. They filled out a specifically developed online survey that assessed their children's areas of concern, their experience with the disclosure process and their worries about their children's condition.ResultsSeventy per cent of the parents received a prenatal diagnosis, whereas 30% received a postnatal diagnosis. High individual variability was found in the parent report of their child's condition. The most frequent areas of concern were attention regulation, emotion control and behaviour control. Individuals with a postnatal diagnosis showed more severe profiles. Parents were generally dissatisfied with the disclosure process, with no differences between prenatal and postnatal disclosure. However, more than 50% of the parents who received a prenatal disclosure reported that their child's condition was less severe than they had expected. In contrast, only 11% of the parents with postnatal disclosure reported this situation. Parents' concerns were negatively related to global satisfaction with the disclosure process and the correspondence between current and expected conditions but positively associated with the child's severity level.ConclusionsThe results suggest that clear and realistic information during the disclosure process to parents is needed in both prenatal and postnatal communication and may alleviate parents' concerns.

show abstract

Reaction to Diagnosis and Parental Concerns in Parents of Children and Young Adults With XYY Syndrome

Zampini,

Zanchi,

Silibello

et al. 2024

Child

View full text Add to dashboard Cite

show abstract

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Children's Behavior and Maternal Parenting Stress in Young Children With Sex Chromosome Trisomies

Abstract: Participants included in this study were 87 children ranging in age from 18 to 26 months (M 5 23.59; SD 5 e198 Children's Behavior in Sex Chromosome Trisomies

Cited by 1 publication

References 29 publications

Reaction to Diagnosis and Parental Concerns in Parents of Children and Young Adults With XYY Syndrome

Reaction to Diagnosis and Parental Concerns in Parents of Children and Young Adults With XYY Syndrome

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