Children’s experiences of the family talk intervention when a parent is cared for in palliative home care—A feasibility study

Eklund, Rakel; Jalmsell, Li; Kreicbergs, Ulrika; Alvariza, Anette; Lövgren, Malin

doi:10.1080/07481187.2020.1829747

Cited by 10 publications

(16 citation statements)

References 42 publications

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“…positively by both parents and children in adult care (palliative care and cancer care) regarding both structure and content. 20,22,29 Alvariza, Jalmsell 20 found that parents reported that FTI was well-structured and flexible regarding their family's needs, which is in line with this study. Moreover, almost all parents and children recommended FTI to other families, 20,29 which was also found in this study.…”

Section: Discussionsupporting

confidence: 86%

“…The lack of support might also have influenced the very positive experiences of FTI and the suggestion that this should be a standard of care. FTI has been experienced positively by both parents and children in adult care (palliative care and cancer care) regarding both structure and content 20,22,29 . Alvariza, Jalmsell 20 found that parents reported that FTI was well‐structured and flexible regarding their family's needs, which is in line with this study.…”

Section: Discussionsupporting

confidence: 84%

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Is the family talk intervention feasible in paediatric oncology? An evaluation of a family‐based psychosocial intervention

2021

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Aim To examine the feasibility of a family‐based psychosocial intervention, Family Talk Intervention (FTI), in paediatric oncology in terms of recruitment, retention, delivery, response rate and acceptability from the parents' perspective. Methods This study involved 26 families affected by childhood cancer. FTI encompasses six family meetings, with the main goal being to facilitate family communication about illness‐related subjects. Meeting 5 is preferably moderated by the parents. Extra meetings (7–11) can be held if needed. This paper includes observational data and surveys, and interviews with parents. Results All families who started FTI underwent the full intervention and the survey response rate varied between 100% and 71% over time. Extra meetings were held with most families. The parents stated that FTI filled a gap of support to the family as a unit and described FTI as a map they could follow. Since FTI was conducted at home, this created a safe environment, which contributed to their participation. The parents valued the children's perspectives being considered, but some felt uncomfortable moderating ‘the family talk’ (meeting 5). Conclusion Family talk intervention was valued by parents, but it would benefit from being slightly modified before a large trial can be developed.

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Section: Discussionsupporting

confidence: 86%

Section: Discussionsupporting

confidence: 84%

Is the family talk intervention feasible in paediatric oncology? An evaluation of a family‐based psychosocial intervention

2021

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“…A few siblings reported problems related to the order of the FTI meetings, which in their opinion led to the interventionists making assumptions about them that they were not comfortable with. This has been highlighted in earlier evaluations of FTI in other contexts 28 . Siblings generally felt they had “a say” in how long their meetings with the interventionist should be, the location, and if a parent should be included.…”

Section: Discussionmentioning

confidence: 91%

Family bonding as a result of the family talk intervention in pediatric oncology: Siblings’ experiences

Ivéus¹,

Eklund

Kreicbergs

et al. 2021

Pediatric Blood & Cancer

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Background Childhood cancer affects the whole family. Illness‐related stressors increase the risk for poor family communication, affecting the family's well‐being. Siblings describe worry and poor illness‐related information. As there are few evaluated family interventions in pediatric oncology, this study aimed to pilot‐test a family‐centered intervention, the family talk intervention (FTI), in pediatric oncology. This paper examined the feasibility in terms of acceptability from the siblings’ perspectives. Methods This study derives from a pilot study of 26 families including 37 siblings recruited from one pediatric oncology center. Standard FTI comprises six meetings with the family, led by two interventionists, with the main goal to facilitate family communication on illness‐related topics (e.g., prognosis, the invisibility of healthy siblings). This paper focuses on interview and survey data from siblings after participation in FTI. The study is registered at ClinicalTrials.gov (Identifier NCT03650530). Results The siblings, aged 6 to 24 years, stated that the interventionists made the meetings feel like a safe environment and that it was a relief for the siblings to talk. They reported that FTI helped the family talk openly about illness‐related topics, which they felt led to increased family understanding and improved relationships. The siblings described that FTI also helped them with their school situation. The majority of the siblings reported that FTI came at the right time and involved an appropriate number of meetings. Conclusion According to the siblings, the timing, content, and structure of FTI were appropriate. FTI showed benefits for both the siblings and each family as a whole.

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“…The information must also be age‐appropriate (Semmens & Peric, 1995) and be given on the children and adolescents’ own terms (Dehlin & Reg, 2009). Although the need for information is generally great among children and adolescents, some prefer not to know everything while some said that they had received information they did not want to know (Dehlin & Reg, 2009; Eklund, Jalmsell, et al., 2020).…”

Section: Resultsmentioning

confidence: 99%

“…Several studies emphasized that information should be provided by HCPs (Alvariza et al., 2017; Berman et al., 1988; Bylund‐Grenklo et al., 2015; Christ et al., 1994; Karlsson et al., 2013; Tillquist et al., 2016). However, children and adolescents stressed that they preferred talking to experienced HCP well‐trained in communication (Eklund, Jalmsell, et al., 2020).…”

Section: Resultsmentioning

confidence: 99%

Children and adolescents’ preferences for support when living with a dying parent – An integrative review

2022

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Living with a dying parent when one is at a young age is considered among the most traumatic experiences a person can have (Phillips, 2014). The loss can result in physical, cognitive, emotional and behavioural problems, and many children and adolescents, in this study defined as 2-18 years of age (Office of the High Commissioner for Human Rights, 1989; World Health Organization, 2001), struggle for years after the parent's death (Phillips, 2014;Torbic, 2011). This study was conducted from the children and adolescents' perspective and focuses on their preferences for support during the period before and immediately after the parent's death. In this context, preferences are linked to children and adolescents' first choice in how they want to be supported. This includes both support from professionals and other social networks. Such knowledge is needed when designing interventions to prevent ill health among bereaved children and adolescents and to improve the quality of palliative care. The consequences of not exploring different preferences may be that supportive interventions do not work as they should, and thus unsatisfactory help is generated for this vulnerable group. | BACKG ROU N DChildren and adolescents living with a parent who has a lifethreatening illness are at risk of developing long-lasting symptoms and ill health. To eliminate outcomes such as low self-esteem, behavioural difficulties (e.g., anger and aggression), long-term illness

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Children’s experiences of the family talk intervention when a parent is cared for in palliative home care—A feasibility study

Cited by 10 publications

References 42 publications

Is the family talk intervention feasible in paediatric oncology? An evaluation of a family‐based psychosocial intervention

Is the family talk intervention feasible in paediatric oncology? An evaluation of a family‐based psychosocial intervention

Family bonding as a result of the family talk intervention in pediatric oncology: Siblings’ experiences

Children and adolescents’ preferences for support when living with a dying parent – An integrative review

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