Children's Perceptions of Healthcare Survey

Lindeke, Linda L.; Fulkerson, Jayne A.; Chesney, Mary L.; Johnson, Lauren G.; Savik, Kay

doi:10.1097/01.naq.0000343345.70666.6d

Cited by 16 publications

(28 citation statements)

References 6 publications

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“…Previous research has shown the importance of asking young people themselves, as their perceptions differ from those of their parents,25 particularly in perceived involvement in care, communication and confidentiality 26. Young people's satisfaction is largely based on provider behaviour and predicts young people's intention to return for follow-up appointments 27…”

Section: Discussionmentioning

confidence: 99%

Children's and young people's experience of the National Health Service in England: a review of national surveys 2001–2011

Hargreaves

Viner

2011

Arch Dis Child

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Objectives To investigate what data are available on the National Health Service (NHS) experience of children and young people (0-24 years), and how their experience compares with that of older patients. .52, 95% CI 0.51 to 0.53, p<0.001). Young people also reported a poorer experience than older adults for their perceived involvement in care, having confi dence and trust in their doctor and being treated with respect and dignity. Conclusions Despite the current focus on services for young people and the importance of patients' views in improving services, the voice of under 16s is not included in most national surveys. Despite high levels of overall satisfaction, young adults report a poorer experience of care than older adults. Design and data selection BACKGROUNDThe Kennedy Report 2010 1 called for a more effective approach to improving health services for children and young people, based on the satisfaction of patients, carers and staff. The principle of listening to and engaging young people is supported by current proposed government reforms to the National Health Service (NHS), 2 3 professional guidance, 4 5 well-established legal obligations, 6 and not least, by children and young people themselves. 7 Yet we know little of their experiences of healthcare, either in the UK or internationally, despite the fact that children and youth under 24 years of age use 36.8% of emergency department attendances, 19.3% of inpatient care, 17.8% of outpatient appointments and up to 40% of primary care consultations in England. 8 9 Services for children and young people are also key to improving the future health of the whole population, as the attitudes and behaviours people develop while young infl uence their interaction with health services and their decisions about health behaviour throughout their lives. 10 -12 To address this subject, we investigated the extent to which children and young people (aged 0-24 years) have been represented in national NHS surveys between 2001 and 2011, and how their experience of care compares with that of older patients (25+). METHODSWe undertook a review of national surveys, comparing the experience of children and young people (<24) with those of older adults (25+) over the past 10 years. Survey selectionNHS surveys were identifi ed through ' Liberating the NHS. Transparency in outcomes -a framework for the NHS', 13 which reported 38 national surveys that were completed or underway in the period What is already known on this topicThis is the fi rst study which systematically ▶ reviews the inclusion and experience of children and young people in national NHS surveys. Children and young people under 16 are given ▶ little weight in national surveys, comprising <0.6% of respondents over the past 10 years. Young people 16-24 consistently report poorer ▶ experience of care than older adults.

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Section: Discussionmentioning

confidence: 99%

Children's and young people's experience of the National Health Service in England: a review of national surveys 2001–2011

Hargreaves

Viner

2011

Arch Dis Child

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“…; Lindeke et al . ). Children themselves, however, have their own healthcare preferences and experiences.…”

Section: Introductionmentioning

confidence: 97%

“…; Lindeke et al . ). Before this age, however, the cognitive skills necessary for self‐reflection and the ‘question answering process’ are usually not yet developed (Piaget & Inhelder ; Borgers et al .…”

Section: Introductionmentioning

confidence: 97%

“…Children, for instance, are often not included in patient surveys. Even though many studies claim to focus on the experiences of children in health care, often, information reported by parents, as proxies for their children, is used (House et al 2009;Lindeke et al 2009). Children themselves, however, have their own healthcare preferences and experiences.…”

Section: Introductionmentioning

confidence: 99%

“…Fortunately, the importance of involving children in quality of care research is more and more recognized (Lightfoot et al 1999;Siebes et al 2007;Watson et al 2007;Lindeke et al 2009;Pelander et al 2009). Children and adolescents are perfectly able to give their own opinions about their health care, if they are given the right opportunity to do so.…”

Section: Introductionmentioning

confidence: 99%

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Exploring young patients' perspectives on rehabilitation care: methods and challenges of organizing focus groups for children and adolescents

Krol

Sixma

Meerdink³

et al. 2013

Child

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Possibilities for enhancing the recruitment rate should be considered, as the low participation rates limited generalizability of focus group results. The tailored design proved useful for obtaining relevant input from (pre)adolescents through meetings, but, especially for children, repeated meetings or other locations (e.g. at home) could be considered. This may make participants more at ease. For both age groups, the online focus groups proved far less useful, in terms of participation.

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Promoting Resilience in Paediatric Health Care: The Role of the Child Life Specialist

Humphreys¹,

LeBlanc

2016

Child and Adolescent Resilience Within Medical Contexts

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Children's Perceptions of Healthcare Survey

Cited by 16 publications

References 6 publications

Children's and young people's experience of the National Health Service in England: a review of national surveys 2001–2011

Children's and young people's experience of the National Health Service in England: a review of national surveys 2001–2011

Exploring young patients' perspectives on rehabilitation care: methods and challenges of organizing focus groups for children and adolescents

Promoting Resilience in Paediatric Health Care: The Role of the Child Life Specialist

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