Childrenʼs perceptions of their siblingʼs death at home or hospital

Lauer, Mary E.; Mulhern, Raymond K.; Bohne, Jelena Bjelic; Camitta, Bruce M.

doi:10.1097/00002820-198502000-00002

Cited by 52 publications

(26 citation statements)

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“…Lauer et al (1985) interviewed 36 children between 5 and 26 years of age who had a sibling who died at home (n = 19) or in the hospital (n = 17) 1 year previously. Those children whose sibling died in the home were more aware of the child's impending death, felt more support from parents, and gained more comfort from attending the funeral than did children whose siblings died in the hospital.…”

Section: Children and Griefmentioning

confidence: 99%

Sibling Involvement at the End of Life

Giovanola

2005

J Pediatr Oncol Nurs

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When a child is diagnosed with a life-threatening illness, such as cancer, there is much disruption to the family. It is a struggle for parents to divide their time between the hospital, home, and other healthy siblings. Nurses strive to provide family-centered care, which involves siblings in many stages of the treatment process. However, during the terminal phase of a child's disease, the dying child and the parents are often the sole focus of the health care team. Siblings are often left to stay with extended family members or friends so that they are protected from the reality of death. However, previous research has shown that even young children understand death, and some of the protective measures parents take actually hamper the siblings'bereavement process. Nurses are in a position to guide families through the emotional time of a child's death while advocating for sibling involvement at a level appropriate for their developmental stage.

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Section: Children and Griefmentioning

confidence: 99%

Sibling Involvement at the End of Life

Giovanola

2005

J Pediatr Oncol Nurs

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“…The majority of the research that has explored parental adaptation has been described in the North American literature (Lauer, et al, 1985(Lauer, et al, , 1989 …”

Section: Parents As Caregiversmentioning

confidence: 99%

Choices and Control: Parental Experiences in Pediatric Terminal Home Care

Vickers

Carlisle

2000

J Pediatr Oncol Nurs

123

114

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During the past decade, palliative care at home has become an alternative option to hospital care for terminally ill children. This study describes the experience of caring for a dying child at home from a parent's perspective. A qualitative research design was used to conduct and analyze data. Nonstandardized, focused interviews were conducted with 10 families. Thematic content analysis assisted in deriving themes from the transcripts of the interviews. "Choice and control" was the major theme that linked all the other concepts, and it appeared to be fundamental to parental coping strategies. Most parents were willing to take responsibility for the nursing care of their child, including administration of intravenous medication. The patient's home was the overwhelming choice of parents for delivery of terminal care, with most parents perceiving it as their child's choice also.

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“…Several studies show that children are at high risk for subsequent school problems, problems with parent-child relationships, and other psychological and social problems following their siblings' deaths. Lauer and associates (17) found that siblings of children who died at home coped much better with the loss than did children whose siblings died in the hospital. They were more likely to know what was going on, to participate in care, and to be in attendance at the time of their siblings' death.…”

Section: Siblingsmentioning

confidence: 99%

Pediatric Palliative Care

Korones¹

2007

Pediatrics in Review

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Childrenʼs perceptions of their siblingʼs death at home or hospital

Cited by 52 publications

References 0 publications

Sibling Involvement at the End of Life

Sibling Involvement at the End of Life

Choices and Control: Parental Experiences in Pediatric Terminal Home Care

Pediatric Palliative Care

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