Children’s Perspectives on Living With a Sibling With a Chronic Illness

Deavin, Antoinette; Greasley, Peter J.; Dixon, Clare

doi:10.1542/peds.2017-4151

Cited by 69 publications

(97 citation statements)

References 46 publications

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“…Time spent on worrying over their sibling is perceived as a burden in their life, thus underlining the disruptions in their daily lives. This finding supports the few other studies with direct reports on the siblings of chronically ill children and adolescents, which have also found that the siblings were worried and concerned about the well-being of their sibling (Deavin et al, 2018;Wennick & Huus, 2012). However, the present study elaborates on the knowledge of worries in families with type 1 diabetes, as we find that worries are omnipresent and heavy, but also normal for the family members of adolescents with diabetes.…”

Section: Discussionsupporting

confidence: 92%

“…The perspective of siblings of children or youth with type 1 diabetes has, however, not been addressed in many studies (Dougherty, 2015; Loos & Kelly, 2006; de Wit et al., 2020). The few studies focusing on the experience of being a sibling of a child with type 1 diabetes have found that siblings are frequently worried about their ill sibling and experience a need to be watchful and vigilant over their sibling, leading to stress in daily life (Deavin et al., 2018; Herrman, 2010; Wennick & Huus, 2012).…”

Section: Introductionmentioning

confidence: 99%

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Disruption, worries and autonomy in the everyday lives of adolescents with type 1 diabetes and their family members: A qualitative study of intrafamilial challenges

Overgaard

Lundby‐Christensen

Grabowski

2020

Journal of Clinical Nursing

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Aim: To explore daily life with type 1 diabetes in families with an adolescent with type 1 diabetes. Background: Management of adolescent type 1 diabetes is carried out in the context of everyday life, thus involving and affecting the entire family. Type 1 diabetes causes disruption of family life, but the specific experiences and challenges of adolescents with type 1 diabetes, siblings and parents are not well-explored. Specifically, research is lacking on the siblings' experience of adolescents with type 1 diabetes. Design: A qualitative design using participatory workshops. Methods: A sample of 21 families comprising adolescents with type 1 diabetes (aged 8-18) (N = 20), their parents (N = 29) and siblings (N = 10) participated in four workshops exploring everyday life in families with adolescent diabetes from the perspective of all family members. Data were analysed using systematic text condensation. The COREQ checklist was used preparing the manuscript. Results: Family life with type 1 diabetes was characterised by three overarching themes: (a) the perpetual challenges and disruptive nature of life with diabetes, (b) different ways of worrying about diabetes and (c) diabetes autonomy and emancipation from parents. All family members' lives were marked by these aspects, however in different ways and to varying degrees. Conclusions: Our findings emphasise that type 1 diabetes is indeed a family illness affecting all family members. The study provides insight into the unique experiences of adolescents with diabetes, their parents and siblings, all of whom encounter diabetesrelated challenges in their daily lives. Relevance to clinical practice: The findings call for the inclusion of all family members of adolescents with type 1 diabetes in both research and healthcare practice. Familyoriented approaches targeting adolescents with diabetes as well as their parents and siblings will enable provision of nursing care that can meet the needs of the entire family.

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Section: Discussionsupporting

confidence: 92%

Section: Introductionmentioning

confidence: 99%

Disruption, worries and autonomy in the everyday lives of adolescents with type 1 diabetes and their family members: A qualitative study of intrafamilial challenges

Overgaard

Lundby‐Christensen

Grabowski

2020

Journal of Clinical Nursing

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“…Alderfer and colleagues (2010) addressed siblings’ psychosocial adjustment to cancer in a systematic review of literature relating to psychological adjustment, family functioning, social/school functioning, somatic issues, and resilience/growth. Since then, most current reviews focus on experiences/perspectives (Deavin et al, 2018; Dougherty, 2015; Gan et al, 2017; Knecht et al, 2015), followed by psychological adjustment (Incledon et al, 2015; Vermaes et al, 2012) and health-related quality of life (Limbers & Skipper, 2014) of impacted siblings. Family communication among children with epilepsy was recently reviewed as well (O’Toole et al, 2015).…”

Section: Previous Reviews Related To Sibling Adjustment To Childhood mentioning

confidence: 99%

Sibling Adjustment to Childhood Chronic Illness: An Integrative Review

Lummer-Aikey

Goldstein

2020

J Fam Nurs

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Siblings of children with a chronic illness are among the close family members impacted by childhood chronic illness. Family roles, routines, and functioning are adjusted to fit the needs of the child and family throughout the course of the illness. Empirical articles regarding adjustment of healthy siblings of children with chronic illnesses ages 0 to 17 years, published in 2000 to 2019 were searched on PsycInfo, PubMed, and Medline using the keywords “sibling adjustment,” “sibling chronic,” and “sibling illness.” Through thematic synthesis, four broad topics emerged concerning sibling adjustment to chronic illness: (a) experiences, (b) psychosocial adjustment, (c) coping, and (d) communication. Implications for family nursing and family health practitioners and future research directions are presented.

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“…The observation that a KKC intervention reduced pain and distress in siblings of children with chronic disease is compelling. Research by Deavin et al 55 has demonstrated that siblings of children with chronic disease may have a suppression of their needs and reduced communication, which highlights the need for approaches to deal with such changes in family dynamics. To this end, KKC's beneficial effect many have important application to the wellbeing of the entire family unit.…”

Section: Study Limitationsmentioning

confidence: 99%