Children's voices on their participation and best interests during a hospital stay in Australia

Foster, Mandie; Quaye, Angela Afua; Whitehead, Lisa; Hallström, Inger

doi:10.1016/j.pedn.2022.01.003

Cited by 22 publications

(5 citation statements)

References 38 publications

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“…The physical spaces in which they were cared for were commonly places where they felt safe and were provided with distractions like TV and games that helped to take their minds off their illness and treatment, and expressed how these safe physical environments assisted them in being able to express their views. This supports the findings of other studies that describe the importance of comfortable and secure environments in facilitating their participation in their health care (Foster et al, 2022;Gilljam et al, 2016).…”

Section: Discussionsupporting

confidence: 91%

“…Being taken seriously is an essential element of due weight as it implies that your views are given audience and have influence. Some children in this study described not being taken seriously and resulted in them feeling disrespected, a major barrier to building good relationships with health professionals (Foster et al., 2022). This study highlighted that without those close relationships with health professionals, children are more likely to feel like a ‘ patient rather than a person ’, a major inhibitor to child‐centredness and being afforded audience.…”

Section: Discussionmentioning

confidence: 99%

“…The desire to protect children, particularly those who are vulnerable, is strong but can result in boundaries around children that silence them (James et al., 2007). Despite the reported benefits of being included in healthcare decision‐making (Bjønness et al., 2020; David et al., 2018; Miller & Jawad, 2019) and children's capacity and desire to have a voice in their care (Coyne & Gallagher, 2011; Foster et al., 2022; Kilkelly & Donnelly, 2006; Viksveen et al., 2022), children are still routinely excluded (Coyne et al., 2014; Kilkelly & Donnelly, 2011; Lundberg et al., 2021; O'Connor et al., 2021). Additionally, children's views are often excluded from service evaluations, even when the views of their parents are taken into consideration (Nordlind et al., 2022; Schalkers et al., 2016; Starlight Children's Foundation, 2021).…”

Section: Introductionmentioning

confidence: 99%

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Children's and young people's experiences of expressing their views and having them heard in health care: A deductive qualitative content analysis

Davies,

Waters,

Fraser

2023

Journal of Clinical Nursing

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AimTo gain an understanding of children's experiences of expressing their views and having them heard in Australian healthcare settings.DesignChild‐centred qualitative research. A deductive qualitative content analysis was undertaken.MethodsData were collected from 20 Australian children and young people between the ages of 7 and 18 years old using the ‘draw, write and tell’ method.ResultsChildren's experiences of ‘space’ and ‘voice’, and therefore the opportunity to express their views in health care were, in the main, positive. At the same time, their experiences of ‘audience’ and ‘influence’, the situations in which those views are given due weight, were overwhelmingly described as negative.ConclusionAustralian paediatric health services appear to have responded to calls to provide children with the opportunity to express their views and thus are delivering on the elements of ‘space’ and ‘voice’, whereas the realisation of ‘audience’ and ‘influence’ has some way to go. Due weight is not always given to children's views.Implications for the Profession and/or Patient CareThe Lundy model can be used to facilitate a better understanding of the concept of voice, and the responsibility of health organisations in implementing the rights of children and young people, as articulated in Article 12.Impact Children and young people have a right to express their views and have them heard in health care, but their experiences in Australian health care are unknown. While children's experiences of expressing their views in health care were mostly positive, their views are not always taken seriously or given due weight. This research impacts child health professionals in Australia and internationally. Reporting MethodThe study is reported using the Standards for Reporting Qualitative Research (SRQR).Patient or Public ContributionMembers of the Youth Advisory Council of two tertiary children's hospitals were consulted and invited to become members of the research team.

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Section: Discussionsupporting

confidence: 91%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Children's and young people's experiences of expressing their views and having them heard in health care: A deductive qualitative content analysis

Davies,

Waters,

Fraser

2023

Journal of Clinical Nursing

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“…Zum Thema Partizipation zeigen verschiedene Studien, dass es für Kinder und Jugendliche (bzw. deren Eltern) wichtig ist, in Entscheidungen bezüglich der Behandlung eingebunden zu werden und beispielsweise bei der Therapieplanung und bezüglich ihrer Präferenzen in Bezug auf Medikamenteneinnahme oder Blutabnahme mitsprechen zu können [ 3 – 6 , 9 ]. Partizipation hat verschiedene positive Auswirkungen: Sie trägt zur Steigerung des Selbstbewusstseins, der Selbstwirksamkeit und sozialer Kompetenzen bei, zudem können Zufriedenheit und Adhärenz erhöht und bessere Behandlungserfolge erzielt werden [ 6 , 24 , 26 ].…”

Section: Introductionunclassified

“…Partizipation hat verschiedene positive Auswirkungen: Sie trägt zur Steigerung des Selbstbewusstseins, der Selbstwirksamkeit und sozialer Kompetenzen bei, zudem können Zufriedenheit und Adhärenz erhöht und bessere Behandlungserfolge erzielt werden [ 6 , 24 , 26 ]. Besonders bei jüngeren Kindern ist es notwendig, auch Eltern miteinzubinden, um im Sinne des „shared decision-making“ unterstützen zu können [ 9 ] – es konnte gezeigt werden, dass gezielte Einbindung von Eltern Erfolge für die Behandlung der Kinder bringt [ 12 ].…”

Section: Introductionunclassified

Kinderrechte in österreichischen Krankenhäusern: Umsetzungsfaktoren für die Beteiligung von Kindern

Gugglberger

Flaschberger

Degelsegger-Márquez

2022

Monatsschr Kinderheilkd

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Hintergrund Für Kinder und Jugendliche (sowie deren Eltern) ist es wichtig, in Entscheidungen bezüglich ihrer Behandlung eingebunden zu werden und mitzusprechen. Dennoch sind Partizipationsprozesse nicht überall in die Behandlungsabläufe in Krankenhäusern eingebaut. Über die Umsetzung von Kinderrechten bzw. Partizipation in österreichischen Krankenhäusern gab es bisher keine Daten. Fragestellung Die Studie untersucht, inwiefern Kinderrechte (insbesondere das Recht auf Partizipation) und die EACH-Charta in österreichischen Krankenhäusern bekannt sind, wie sie umgesetzt werden und was förderliche und hinderliche Faktoren dabei sind. Methoden Es wurden eine Fragebogenerhebung unter ärztlichen und pflegerischen Leitungspersonen auf Kinder- und Jugendstationen ( n = 133) sowie qualitative Interviews mit Fachexpert:innen, medizinischem Fachpersonal sowie betroffenen Eltern und einer Jugendlichen ( n = 15) durchgeführt. Ergebnisse In Krankenhäusern wird bereits Einiges getan, um die Rechte von Kindern zu wahren. Es herrscht vielerorts Bewusstsein für eine kindzentrierte Behandlung und für die Notwendigkeit, Kinder und Jugendliche während ihres Krankenhausaufenthalts partizipieren zu lassen. Dennoch zeigen die Interviews mit Eltern, dass es große Unterschiede zwischen Krankenhäusern gibt. Diskussion Es wurden 3 Bereiche für Handlungsempfehlungen identifiziert: 1. Verankerung der Kinderrechte – gesetzlich und in der Ausbildung des medizinischen Fachpersonals, 2. Stärkung der Team- und Feedbackkultur, z. B. durch mehr Personalressourcen für Teamarbeit, und 3. gute Gesundheitsinformation und gute Gesprächsqualität durch qualitätsgesicherte, verständliche, evidenzbasierte Informationen für Kinder und Jugendliche sowie durch patientenzentrierte Gesprächsführung der medizinischen Fachkräfte.

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A child-centred research checklist to improve the design and reporting of paediatric research studies: A descriptive mixed methods study

Foster,

Lisa Whitehead,

O'Sullivan

et al. 2025

International Journal of Nursing Studies

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Children's voices on their participation and best interests during a hospital stay in Australia

Cited by 22 publications

References 38 publications

Children's and young people's experiences of expressing their views and having them heard in health care: A deductive qualitative content analysis

Children's and young people's experiences of expressing their views and having them heard in health care: A deductive qualitative content analysis

Kinderrechte in österreichischen Krankenhäusern: Umsetzungsfaktoren für die Beteiligung von Kindern

A child-centred research checklist to improve the design and reporting of paediatric research studies: A descriptive mixed methods study

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