Children with Cerebral Palsy and their Quality Of Life in Nepal

Abstract

Introduction: Cerebral Palsy (CP) may affect individual's everyday life and it may have significant impact on quality of life (QOL). The objective of this study was to assess the quality of life of children with Cerebral Palsy in Nepal. Material and Methods: This is a descriptive cross sectional study that involved 42 children between 4 and 12 years of age. The Socio-demographic variables were obtained from interviews and CP related factors were obtained from medical reports. Validated CP-QOL child self-report and parent proxy version of questionnaire was used for data collection. Severity was assessed using Gross Motor Function Classification System (GMFCS), Manual Ability Classification System (MACS), Communication function Classification System (CFCS) and ICD-10 Classification System. Data were summarized using descriptive statistics. Kruskal Wallis and Man Whitney was used to find out association between Cerebral Palsy related factors and Quality of Life. Results: 57.1% (n=24)were between 8 and12 years of age and 42.9% (n=18) were between 4 and 8 years of age. Overall QOL was reported to be fairly good. Both the child and Caregiver gave highest score on "Social wellbeing and acceptance" and "Emotional wellbeing and self-esteem domain" and Lowest Point in "Pain and Impact of disability". This implies that Psychosocial Quality of Life is good in children with CP. Quality of Life as reported by child was better than Quality of Life reported by Caregiver. Conclusion:Overall QOL is fairly good in children with CP.However, Pain and impact of disability impairs QOL.

Assessment Quality of Life in Children with Cerebral Palsy, Ages 2–18 Years

“…Physical independence, mobility, and social integration dimensions were more severely affected by the clinical burden, economic burden, and educational factors (Dobhal, Juneja, Jain, Sairam, & Thiagarajan, 2014). In contrast, a study conducted by Shrestha, Paudel, & Thapa (2017) in Nepal suggested that QOL is quite good in children with CP, in terms of children's psychosocial conditions; however, the physical attributes were still poor or low in QOL. The QOL of children with CP in Indonesia varies.…”

Hubungan antara Spastisitas Pergelangan Kaki dengan Kualitas Hidup pada Anak dengan Cerebral Palsy Tipe Spastik Quadriplegia

“…Informasi ini penting dalam pengambilan keputusan klinis. 8 Tujuan dari penelitian ini adalah untuk mengetahui apakah ada hubungan (korelasi) antara tingkat spastisitas pergelangan kaki terhadap kualitas hidup anak dengan CP tipe spastik quadriplegia.…”

“…Skor terendah ada pada domain rasa sakit dan dampak dari kecacatan. 8 Terdapat korelasi (negatif) signifikan yang sangat kuat antara tingkat spastisitas pergelangan kaki terhadap kualitas hidup anak dengan CP tipe spastik quadriplegia pada domain penerimaan dan kesejahteraan sosial (p: 0.000; CC: 0.87); perasaan mengenai fungsi (p: 0.000; CC: 0.86); partisipasi dan kesehatan fisik (p: 0.000; CC: 0.85); kesejahteraan emosional dan kepercayaan diri (p: 0.000; CC: 0.86). Terdapat korelasi (negatif) signifikan yang kuat pada domain rasa sakit dan dampak dari disabilitas (p: 0.002; CC: 0.65).…”