Children With Developmental Disabilities in India

Jain, Rahul; Juneja, Monica; Sairam, Smitha

doi:10.1177/0883073812447685

Cited by 19 publications

(4 citation statements)

References 17 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…ASD is estimated to affect more than 2 million children in India [16]. In India, the prevalence of autism in children under the age of 10 was found to be 15 instances per 1000, with the majority of these cases coming from villages [17]. This complex illness afflicting babies probably goes underdiagnosed in India and continues to remain undocumented.…”

Section: Journal Of Neuroscience and Neurological Surgerymentioning

confidence: 99%

The Prevention of the Birth of an Autistic Child is Simpler than its Cure

Parle

2023

JNNS

View full text Add to dashboard Cite

Impressive intellect and extrovert nature exhibited by the child spring from both, the supremacy of protective factors during nine months of the gestation period and the favorable genes of the parents. There is no approved allopathic, homeopathic, or ayurvedic medicine for the treatment of autism spectrum disorder or any neurodevelopmental childhood disease for that matter. The challenges faced by the lady during pregnancy and the delivery of the child, therefore need to be delicately addressed so that the birth of an abnormal child does not occur in the first place. The intellectual and physical personality of the unborn child is dependent on the sound health of the pregnant lady during gestation, proper nutrition, and a loving home environment. Thus, the prevention of the birth of an autistic child is the only reasonable option available at present and appears to be simpler than its cure. We believe that the society at large in India and around the world would greatly benefit from this review article.

show abstract

Section: Journal Of Neuroscience and Neurological Surgerymentioning

confidence: 99%

The Prevention of the Birth of an Autistic Child is Simpler than its Cure

Parle

2023

JNNS

View full text Add to dashboard Cite

show abstract

“…2 The implications of this knowledge gap in early identification and subsequent management in low-and middle-income countries (LMICs) are stark when we consider that most children with ASD reside in this region. 3 A lack of access and training in screening and diagnostic tools, 4 overlap with other causes of developmental delays, 5 heterogeneous clinical presentations, 6 and absence of in-tervention resources contribute to pediatricians' reluctance to diagnose. 4 Children with ASD require ongoing care to address the complex, evolving developmental and behavioral challenges and medical and psychiatric comorbidities such as feeding and sleep issues, seizures, gastrointestinal conditions, attention-deficit/hyperactivity disorder, and anxiety disorder.…”

Section: Physician Voices On Echo Autism India-evaluation Of a Teleme...mentioning

confidence: 99%

Physician Voices on ECHO Autism India—Evaluation of a Telementoring Model for Autism in a Low-Middle Income Country

Sengupta

Lobo

Krishnamurthy

2022

J Dev Behav Pediatr

View full text Add to dashboard Cite

:Objectives:Training pediatricians in low- and middle-income countries (LMICs) in early diagnosis and comprehensive management of autism spectrum disorder (ASD) is crucial to ensure optimal developmental outcomes for a substantial number of children with ASD in this region. This study evaluates the relevance and effectiveness of an evidence-based telementoring model Extension for Community Healthcare Outcomes (ECHO) Autism in increasing pediatricians' access to best-practice care for children with ASD in LMIC contexts.Methods:ECHO Autism was launched by a ‟hub” team of multidisciplinary ASD experts at a child development center in Mumbai, India. The culturally modified model included 13 biweekly sessions conducted annually using video-conferencing technology. Sessions combined expert-delivered didactics and facilitated case-based discussions on best-practice methods in screening, diagnosing, and managing autism and its comorbidities. Sixty-two physicians, including 59 pediatricians across 2 cohorts (2019–2020), participated in the mixed-methods study to evaluate participants' reactions, knowledge, behaviors, and impact on children and families.Results:Participants represented a broad geographic reach across India (n = 47) and other LMICs (n = 15). Both quantitative and qualitative data revealed high levels of participant satisfaction and improved knowledge and self-efficacy in ASD diagnosis and management. Qualitative themes highlighted the adult-learning processes of ECHO Autism that participants considered novel and beneficial, such as reflective discussions, respectful mentoring, having a parent as ‟expert,” and cultural relevance, alongside changes in practice behaviors.Conclusion:ECHO Autism clinics facilitated by local experts in LMICs can improve access to early diagnosis and evidence-based, comprehensive management for children with ASD and their families by positively influencing pediatricians' knowledge, attitudes, and practice behaviors.

show abstract

“…7 However, in low and middle-income countries (LMIC) like India, integration has been slow and difficult due to a shortage of healthcare professionals involved in intervention for developmental delays (e.g., developmental paediatricians, speech language therapists, occupational therapists, etc. ), non-referral or delayed referral or false reassurance to families by physicians, 8 and a lack of context- and culture-specific tools to evaluate developmental domains that can be used by specialists and non-specialists. 9 Another significant challenge in countries such as India is the practical consideration of covering a large number of children, the majority of whom live in rural areas.…”

Section: Introductionmentioning

confidence: 99%