Children with myelomeningocele and independence in the toilet activity: A pilot study

Donlau, Marie; Mattsson, Sven; Glad-Mattsson, Gunilla

doi:10.3109/11038128.2012.700729

Cited by 11 publications

(15 citation statements)

References 20 publications

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“…Independence on the toilet affects quality of life, supporting efforts to enhance independence. Active goal‐oriented efforts from all care providers are probably required, already from infancy .…”

Section: Discussionmentioning

confidence: 99%

Independence does not come with the method – treatment of neurogenic bowel dysfunction in children with myelomeningocele

et al. 2014

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Section: Discussionmentioning

confidence: 99%

Independence does not come with the method – treatment of neurogenic bowel dysfunction in children with myelomeningocele

et al. 2014

Self Cite

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“…For the SB group, a few studies have been published about different intervention methods aiming to enhance performance in everyday activities. One study [21] showed promising results in adults for goal management training, i.e., learning in a group setting how to use a strategy and another by Donlau et al [22] showed that a goal-focused approach helps children with SB to accomplish specific goals in self-care.…”

Section: Introductionmentioning

confidence: 99%

Potential benefits of the cognitive orientation to daily occupational performance approach in young adults with spina bifida or cerebral palsy: a feasibility study

Peny‐Dahlstrand

Bergqvist

Hofgren

et al. 2018

Disability and Rehabilitation

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Purpose: People with cerebral palsy (CP) or spina bifida (SB) often struggle to perform everyday-life activities. Both groups frequently also have difficulties in creating and using strategies effectively when performing tasks. The cognitive orientation to daily occupational performance (CO-OP) Approach combines the learning of cognitive strategies with task-specific approaches through a client-centred procedure. The aim of this study was to investigate whether the COOP Approach is feasible for and potentially beneficial to adolescents and young adults with CP or SB in Sweden by analysing four areas of feasibility (acceptability, efficacy, adaptation, and expansion). Methods: Exploratory multiple-case study using mixed methods. Ten persons aged 16-28, five with each condition, participated in an intervention period. Assessments were performed on three occasions: baseline, post-intervention, and six-month follow-up. Results: The result demonstrates that the COOP Approach has the potential to enable adolescents and young adults with either condition to achieve personal goals and to enhance their planning skills and their ability to use strategies when performing activities. This approach is also compatible with the core values of habilitation in Sweden and was found by the participants to be highly meaningful and useful. Conclusions: The COOP Approach is feasible for adolescents and young adults with SB or CP in Sweden. ä IMPLICATIONS FOR REHABILITATION The Cognitive Orientation to daily Occupational Performance is a feasible approach for adolescents and young adults with spina bifida and with cerebral palsy. is a promising approach when it comes to enabling the achievement of personal goals. might have potential to enhance executive functioning through strategy use. is in line with the fundamental core values of disability rights of inclusion, empowerment, and participation.

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“…No interventions with conclusive evidence of effectiveness for improving self-care were identified. Constraint-induced movement therapy (Sakzewski et al 2014), goal-setting (Löwing et al 2009;Sorsdahl et al 2010;Donlau et al 2013;Hwang et al 2013), and powered mobility (Livingstone & Field 2014) were consistently promising interventions. Few papers explicitly stated proposed change mechanisms, but hypothesized mechanisms (described as 'barriers' and 'facilitators') emerged over the discussions with the young people and the adults (Table 1).…”

Section: Resultsmentioning

confidence: 99%

“…; Donlau et al . ; Hwang et al . ), and powered mobility (Livingstone & Field ) were consistently promising interventions.…”

Section: Resultsmentioning

confidence: 99%

Improving participation outcomes and interventions in neurodisability: co‐designing future research

McAnuff

Brooks

Duff

et al. 2016

Child

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There is an urgent, agreed need to improve participation outcomes and interventions for children and young people with neurodisability. We worked together with service users and providers to design research into participation outcomes and interventions in neurodisability. We built on existing evidence about participation outcomes and interventions and the WHO International Classification of Functioning, Disability and Health. We: (1) specified seven participation outcome categories for measurement; (2) prioritized these for improvement: self-care, friends and social, and physical activity ranked the highest; (3) identified 11 potential intervention categories for targeting the top priority, self-care, through eight hypothesized change mechanisms and agreed for the interventions to be delivered as a 'Menu of Interventions' for personalized self-care support; and (4) designed a before-and-after mixed methods feasibility study to evaluate the Menu with children and young people (0-12 years) and their parents and therapists.

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Children with myelomeningocele and independence in the toilet activity: A pilot study

Abstract: In this pilot study mutual goal setting in a step-by-step training programme based on professional observation of the toilet activity at home showed a better outcome than traditionally performed training in a hospital setting or with traditional habilitation support.

Cited by 11 publications

References 20 publications

Independence does not come with the method – treatment of neurogenic bowel dysfunction in children with myelomeningocele

Independence does not come with the method – treatment of neurogenic bowel dysfunction in children with myelomeningocele

Potential benefits of the cognitive orientation to daily occupational performance approach in young adults with spina bifida or cerebral palsy: a feasibility study

Improving participation outcomes and interventions in neurodisability: co‐designing future research

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