Chinese version of the Parent-Proxy Health-Related Quality of Life Measure for Children with Epilepsy: Translation, cross-cultural adaptation, and reliability studies

Yam, Winnie K.L.; Chow, Susan Ka Yee; Ronen, Gabriel M.

doi:10.1016/j.yebeh.2005.05.006

Cited by 25 publications

(17 citation statements)

References 20 publications

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“…Knowing the validity and reliability of these two forms can help health care professionals choose the appropriate form to measure children's QoL. There are few published articles focused on pediatric QoL instruments for Chinese populations [1,[12][13][14][15][16][17][18][19]. Only four [1,13,18,19] discuss the validity of Chinese versions in Taiwan, and the psychometric properties of the QoL scale have not been established for Taiwanese children between 5 and 12 years old.…”

Section: Introductionmentioning

confidence: 99%

Psychometric properties and gender invariance of the Chinese version of the self-report pediatric quality of life inventory version 4.0: short form is acceptable

Lin

Luh

Yang³

et al. 2011

Qual Life Res

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Section: Introductionmentioning

confidence: 99%

Psychometric properties and gender invariance of the Chinese version of the self-report pediatric quality of life inventory version 4.0: short form is acceptable

Lin

Luh

Yang³

et al. 2011

Qual Life Res

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“…What this means is that when children and parents are invited to reflect on the quality of their life with epilepsy, these are the concepts that they draw on in order to generate a representation of that life experience. This measure has undergone content validity and reliability testing in a Chinese population, providing preliminary evidence of cross-cultural relevance [14].…”

Section: Introductionmentioning

confidence: 99%

Health-related quality of life in youth with epilepsy: Theoretical model for clinicians and researchers. Part I: The role of epilepsy and co-morbidity

et al. 2006

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Children and adolescents with epilepsy are at increased risk for poor health-related quality of life (HRQL) even in the absence of active seizures. Clinicians who aim to achieve optimal seizure control also need to focus on improving HRQL. This can only be accomplished by recognizing how different features of the epilepsy itself, co-morbid conditions, as well as psychosocial factors can all make a difference to HRQL. These psychosocial factors include child, family and community/society variables that play a role in the well-being of these children. Conceptual models are relevant insofar as they provide us with a basis for hypothesizing the causal processes that lead to improved HRQL. They delineate what is meant by HRQL and highlight factors relevant to this important outcome. Researchers can use such models to test statistically and clinically relevant relationships. Clinicians can use this knowledge to direct the planning and implementation of services that are informed by these relationships, critically evaluate and then choose HRQL measures for use in clinical practice that most closely approximate what they understand HRQL is. The purpose of this review is to identify what is meant by HRQL as well as outline the theoretical and empirical basis for what it is about epilepsy, co-morbidity, and its treatment that we believe make a difference to HRQL.

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“…20 The main outcome was QOL, measured using the Child Epilepsy QOL Questionnaire, 21 developed for children with epilepsy and subsequently validated in multiple studies and languages. [21][22][23][24][25] The questionnaire has 25 items and includes the epilepsy-specific QOL domains of Intrapersonal, Secrecy, Interpersonal, Present Worries, and Normality. 21 To measure child mental health, we used standardized scales that assessed both externalizing problems (attention problems, oppositional behavior, and conduct problems) and internalizing problems (mood and anxiety).…”

mentioning

confidence: 99%

Children's perspective of quality of life in epilepsy

Fayed¹,

Davis²,

Streiner³

et al. 2015

Neurology

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Objective: To study child mental health, parental support, and social support of children with epilepsy as these relate to quality of life (QOL) using child self-report, seizure-related variables, and estimated verbal intelligence based on receptive vocabulary. Methods:A cross-sectional structural equation model of baseline data from the QUALITÉ cohort study, which includes 6 Canadian child epilepsy ambulatory programs. A sample of 3,481 children were screened for the following eligibility: 8 to 14 years of age, with active or medicationmanaged epilepsy. Of 894 eligible children, 506 agreed to participate, of whom 26 were then excluded because of an inability to self-report based on a standard cutoff score of receptive vocabulary lower than 70. The primary outcome of child-reported QOL was measured using the Child Epilepsy QOL Questionnaire.

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Chinese version of the Parent-Proxy Health-Related Quality of Life Measure for Children with Epilepsy: Translation, cross-cultural adaptation, and reliability studies

Cited by 25 publications

References 20 publications

Psychometric properties and gender invariance of the Chinese version of the self-report pediatric quality of life inventory version 4.0: short form is acceptable

Psychometric properties and gender invariance of the Chinese version of the self-report pediatric quality of life inventory version 4.0: short form is acceptable

Health-related quality of life in youth with epilepsy: Theoretical model for clinicians and researchers. Part I: The role of epilepsy and co-morbidity

Children's perspective of quality of life in epilepsy

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