Choice of living arrangements

Stancliffe, Roger J.; Lakin, K. Charlie; Larson, Sheryl A.; Engler, Joshua; Taub, Sarah F.; Fortune, Jon

doi:10.1111/j.1365-2788.2010.01336.x

Cited by 71 publications

(56 citation statements)

References 18 publications

(48 reference statements)

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“…For example, increasing severity of IDD has been shown to be associated with lower levels of self-determination in choosing living arrangements, including where and with whom to live (26). Those with profound IDD are much more likely to live in a long-term care facility than those with mild IDD, and are less often able to determine their living arrangement.…”

Section: Subcategoriesmentioning

confidence: 99%

Intellectual developmental disorders: towards a new name, definition and framework for “mental retardation/intellectual disability” in ICD‐11

et al. 2011

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Although "intellectual disability" has widely replaced the term "mental retardation", the debate as to whether this entity should be conceptualized as a health condition or as a disability has intensified as the revision of the World Health Organization (WHO)'s International Classification of Diseases (ICD) advances. Defining intellectual disability as a health condition is central to retaining it in ICD, with significant implications for health policy and access to health services. This paper presents the consensus reached to date by the WHO ICD Working Group on the Classification of Intellectual Disabilities. Literature reviews were conducted and a mixed qualitative approach was followed in a series of meetings to produce consensus-based recommendations combining prior expert knowledge and available evidence. The Working Group proposes replacing mental retardation with intellectual developmental disorders, defined as "a group of developmental conditions characterized by significant impairment of cognitive functions, which are associated with limitations of learning, adaptive behaviour and skills". The Working Group further advises that intellectual developmental disorders be incorporated in the larger grouping (parent category) of neurodevelopmental disorders, that current subcategories based on clinical severity (i.e., mild, moderate, severe, profound) be continued, and that problem behaviours be removed from the core classification structure of intellectual developmental disorders and instead described as associated features.

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Section: Subcategoriesmentioning

confidence: 99%

Intellectual developmental disorders: towards a new name, definition and framework for “mental retardation/intellectual disability” in ICD‐11

et al. 2011

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“…Metzler, 1995). The level of IDD and/or adaptive behavior is strongly related to choice availability, with those with milder disability enjoying more choice (Heller et al, 1999;Lakin et al, 2008;Stancliffe, 1997;Stancliffe, Abery, & Smith, 2000;Stancliffe et al, 2011). The relation between choice making and other personal characteristics seems less consistent.…”

mentioning

confidence: 93%

Correlates of Everyday Choice and Support-Related Choice for 8,892 Randomly Sampled Adults with Intellectual and Developmental Disabilities in 19 States

Tichá¹,

Lakin²,

Larson³

et al. 2012

Intellectual and Developmental Disabilities

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This article examines everyday choices made by 8,892 adults with intellectual and developmental disabilities (IDD) and support-related choices made by 6,179 adults with IDD receiving services from 19 state developmental disabilities program agencies that participated in the 2008-2009 National Core Indicators Project. Controlling for physical and sensory impairment, age, behavioral support, communication, and state, people in residential settings with 16 or more people had less everyday choice than those in other living arrangements. People with mild and moderate IDD had more control over everyday choices when living in their own homes, whereas people with severe and profound IDD had more control when living in agency homes of 3 or fewer residents. For people of all levels of IDD, institutional settings of 16 or more residents offered the lowest levels of everyday choice. Controlling for the same covariates, individuals with all levels of IDD living in their own homes had significantly more support-related choices than those in any other residential arrangement. Controlling for individual and residential setting characteristics, the state in which sample members lived was notably predictive of support-related choice. Overall, the tested variables accounted for 44% of the variability in everyday choice and 31% in support-related choice.

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“…Accomplishing these may also improve the quality of life for individuals with disabilities and senior citizens by increasing independence and autonomy in targeted areas that they value. Previous research indicates that independent and semiindependent settings are associated with better outcomes, lower costs, and greater choice (Burchard et al 1991;Stancliffe et al 2011;Stancliffe and Keane 2000) suggesting that there are benefits to addressing potential barriers. Many of the above-mentioned outcomes are speculative; thus, additional research is needed to document conclusively that these outcomes are obtained.…”

Section: Discussionmentioning

confidence: 99%

“…106-402) and other important advances of the independent living movement-which emphasize empowerment of consumers in their own life decisions (Frieden 1980)-individuals with disabilities and seniors often lack the freedom to choose with whom they live and where they reside (Stancliffe et al 2011). Service options may include moving consumers against their desire to large nursing facilities or other less-preferred settings rather than optimizing environmental supports in their own home or in less restrictive settings.…”

mentioning

confidence: 99%

“…Service options may include moving consumers against their desire to large nursing facilities or other less-preferred settings rather than optimizing environmental supports in their own home or in less restrictive settings. Not only do adults enjoy greater choice when they live in their own homes relative to individuals living in congregate care or group home settings (Stancliffe et al 2011) but independent and semi-independent settings are also associated with better outcomes and lower costs (Burchard et al 1991;Stancliffe et al 2011;Stancliffe and Keane 2000). To address the growing demand for quality services provided in a manner desired by consumers, national leaders and public policy advocates are searching for ways to provide affordable services (Bowes and McColgan 2006;Woolham 2005).…”

mentioning

confidence: 99%

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Barriers to Independent Living for Individuals with Disabilities and Seniors

Reed

Strouse

Jenkins

et al. 2014

Behav Analysis Practice

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Individuals with disabilities and seniors often lack the freedom to choose with whom they live and where they reside. Service options may involve moving consumers to large nursing facilities or other less-preferred settings rather than optimizing environmental supports in their own home or in less restrictive settings. Not only do adults usually enjoy greater choice when they live in their own homes relative to individuals living in congregate care or group home settings but independent and semi-independent settings are also associated with better outcomes and lower costs. Identifying variables that serve as barriers to independent living is especially important given estimates predicting that the numbers of seniors and individuals with disabilities will double in the next 20 years. This doubling will tax an already burdened and costly system of care. The present study queried consumers and other key stakeholders about potential barriers to independent living and their importance. Findings not only revealed a high degree of overlap between identified barriers and their importance ratings within groups but also showed clear differences in potential barriers across the groups assessed (individuals with disabilities and senior citizens).

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Choice of living arrangements

Cited by 71 publications

References 18 publications

Intellectual developmental disorders: towards a new name, definition and framework for “mental retardation/intellectual disability” in ICD‐11

Intellectual developmental disorders: towards a new name, definition and framework for “mental retardation/intellectual disability” in ICD‐11

Correlates of Everyday Choice and Support-Related Choice for 8,892 Randomly Sampled Adults with Intellectual and Developmental Disabilities in 19 States

Barriers to Independent Living for Individuals with Disabilities and Seniors

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