Choice, Rights, and Virtue: Prenatal Testing and Styles of Moral Reasoning in Aotearoa/New Zealand

Fitzgerald, Ruth; Legge, Michael; Park, Julie

doi:10.1111/maq.12217

Cited by 52 publications

(7 citation statements)

References 20 publications

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“…It may, in fact, be that women "are exposed to frameworks of choice rather than being explicitly able to formulate their own choices". [ [73] p414] If this is the case, then researchers need to interrogate the possibilities for making informed choices in such a framework.…”

Section: Discussionmentioning

confidence: 99%

Women’s experiences of decision-making and informed choice about pregnancy and birth care: a systematic review and meta-synthesis of qualitative research

Yuill

McCourt

Cheyne

et al. 2020

BMC Pregnancy Childbirth

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Background: The purpose of this systematic review (PROSPERO Ref: CRD42017053264) was to describe and interpret the qualitative research on parent's decision-making and informed choice about their pregnancy and birth care. Given the growing evidence on the benefits of different models of maternity care and the prominence of informed choice in health policy, the review aimed to shed light on the research to date and what the findings indicate. Methods: a systematic search and screening of qualitative research concerning parents' decision-making and informed choice experiences about pregnancy and birth care was conducted using PRISMA guidelines. A metasynthesis approach was taken for the extraction and analysis of data and generation of the findings. Studies from 1990s onwards were included to reflect an era of policies promoting choice in maternity care in high-income countries. Results: Thirty-seven original studies were included in the review. A multi-dimensional conceptual framework was developed, consisting of three analytical themes ('Uncertainty', 'Bodily autonomy and integrity' and 'Performing good motherhood') and three inter-linking actions ('Information gathering,' 'Aligning with a birth philosophy,' and 'Balancing aspects of a choice'). Conclusions: Despite the increasing research on decision-making, informed choice is not often a primary research aim, and its development in literature published since the 1990s was difficult to ascertain. The meta-synthesis suggests that decision-making is a dynamic and temporal process, in that it is made within a defined period and invokes both the past, whether this is personal, familial, social or historical, and the future. Our findings also highlighted the importance of embodiment in maternal health experiences, particularly when it comes to decisionmaking about care. Policymakers and practitioners alike should examine critically current choice frameworks to ascertain whether they truly allow for flexibility in decision-making. Health systems should embrace more fluid, personalised models of care to augment service users' decision-making agency.

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Section: Discussionmentioning

confidence: 99%

Women’s experiences of decision-making and informed choice about pregnancy and birth care: a systematic review and meta-synthesis of qualitative research

Yuill

McCourt

Cheyne

et al. 2020

BMC Pregnancy Childbirth

View full text Add to dashboard Cite

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“…Even as respondents drew on diverse practices and traditions of ethical reasoning to grapple with this challenge (cf. Fitzgerald et al 2015), certain key concerns and issues recurred in their answers, several of which we examine below. We then turn to the way our analysis revealed patterns in respondents' moral experiences of lockdown.…”

Section: Methodsmentioning

confidence: 99%

“…There is a well-established social science literature on how individuals who live in risk societies -including Aotearoa -assess and attempt to mitigate risks to themselves and family members (e.g. Robertson 1999;Park 2000;Rose 2007;Dupuis and Thorns 2008;Adams et al 2009;Trundle 2011;Fitzgerald et al 2015).…”

Section: Personal Responsibility / Collective Riskmentioning

confidence: 99%

Negotiating risks and responsibilities during lockdown: ethical reasoning and affective experience in Aotearoa New Zealand

Trnka

Long

Aikman

et al. 2021

Journal of the Royal Society of New Zealand

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Over forty-nine days of Level 4 and Level 3 lockdown, residents of Aotearoa New Zealand were subject to 'stay home' regulations that restricted physical contact to members of the same social 'bubble'. This article examines their moral decision-making and affective experiences of lockdown, especially when faced with competing responsibilities to adhere to public health regulations, but also to care for themselves or provide support to people outside their bubbles. Our respondents engaged in independent risk assessment, weighing up how best to uphold the 'spirit' of the lockdown even when contravening lockdown regulations; their decisions could, however, lead to acute social rifts. Some respondentssuch as those in flatshares and shared childcare arrangementsrecounted feeling disempowered from participating in the collective management of risk and responsibility within their bubbles, while essential workers found that anxieties about their workplace exposure to the coronavirus could prevent them from expanding their bubbles in ways they might have liked. The inability to adequately care for oneself or for others thus emerges as a crucial axis of disadvantage, specific to times of lockdown. Policy recommendations regarding lockdown regulations are provided.

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“…Sociologist Rhonda Shaw conducted qualitative research on surrogacy and ARTs, including a project with four surrogates alongside egg donors (2008b) (described in chapter three), and, more recently, a pertinent article (2020) outlining the dangers of enforcing surrogacy arrangements 22 . This body of work has been useful in shaping some of my own questions about surrogacy, as has the work undertaken by anthropologist Ruth Fitzgerald and colleagues (Legg, Fitzgerald, and Frank 2007;Fitzgerald, Legge and Frank 2013;Fitzgerald, Legge and Park 2015), particularly on fertility clinics and the ethics of embryology (discussed in chapter five). Rather than focus on only one aspect of surrogacy, I contribute an ethnographic depiction of the experiences and narratives of intended parents and surrogates as they inhabit and move through the various shadows that are the myriad surrogacy processes.…”

Section: Academic Engagement With Surrogacy In Aotearoa New Zealandmentioning

confidence: 99%

Kin-making in the Reproductive Penumbram: Surrogacy in Aotearoa New Zealand

Gibson¹

2021

Preprint

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<p>As many as one in four New Zealanders experience infertility. Some choose to pursue surrogacy as an option to make a family because traditional surrogacy and gestational surrogacy are legal in Aotearoa New Zealand on an altruistic basis. Straddling the two reproductive worlds – ‘traditional’ and ‘technological’ – surrogacy in Aotearoa New Zealand offers us a ripe site for analysis and rethinking how kinship is made and unmade within what I refer to as the reproductive penumbra. Surrogacy as a reproductive practice exists outside of, or in the shadows of, heteronormative reproduction and mainstream Euro-American kinship. Surrogacy also asks people to enter an unknown reproductive space and navigate myriad processes, institutions, and legislations to realise their plans to make kin non-normatively. Drawing on three years of multi-sited ethnographic fieldwork, in this thesis I unpack what kin-practices, narratives, rituals, rules, and relationships are mobilised within and between the various landscapes involved in surrogacy in Aotearoa New Zealand. I outline how people make kin in the multiple shadows they inhabit and move through during their surrogacy journeys. These range from the intimate and inter-personal relationships in the surrogacy community, the fertility clinic, and inside the embryology laboratory, to the institutional and regulatory processes and the state. Through their negotiation of these spaces that are situated in the shadows of the colonial state, everyday legality, and motherhood ideologies, intended parents and surrogates disrupt, to varying degrees, pervasive ideas about kinship with different interpretations and enactments of reproductive participation. Through detailed narratives of people wanting to and helping make kin in the shadows, this research on surrogacy complicates societal understandings of the co-constructed nature of kinship, motherhood, and reproductive medicine. Rather than positioning kin-making in shadows as inherently negative, this thesis celebrates the potentiality and plurality of reproduction that underpins and emerges from surrogacy.</p>

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Choice, Rights, and Virtue: Prenatal Testing and Styles of Moral Reasoning in Aotearoa/New Zealand

Cited by 52 publications

References 20 publications

Women’s experiences of decision-making and informed choice about pregnancy and birth care: a systematic review and meta-synthesis of qualitative research

Women’s experiences of decision-making and informed choice about pregnancy and birth care: a systematic review and meta-synthesis of qualitative research

Negotiating risks and responsibilities during lockdown: ethical reasoning and affective experience in Aotearoa New Zealand

Kin-making in the Reproductive Penumbram: Surrogacy in Aotearoa New Zealand

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