Choosing the harder road: Naming the challenges for families in person-centred planning

Ellem, Kathy; Chenoweth, Lesley Irene; Edwards, Ruth

doi:10.1177/1744629518784154

Cited by 4 publications

(2 citation statements)

References 24 publications

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“…Family related allies were mentioned 13 times as in parents [147,[186][187][188][189], family [145,146,[190][191][192], friends [146,193], parent to parent networks [194], and siblings [195].…”

Section: Years Number Of Abstractsmentioning

confidence: 99%

Coverage of Allies, Allyship and Disabled People: A Scoping Review

Wolbring,

Lillywhite

2023

Societies

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Disabled people face many problems in their lived reality, as evidenced by the content of the UN Convention on the Rights of Persons with Disabilities. Disabled people are constantly engaged in activism to decrease their problems. However, disabled people cannot do all the work by themselves and need allies (who can be so-called non-disabled people or disabled people of a different background to other disabled people) given the many barriers disabled people face in being activists, given the precarious lived reality of many, and given the many problems in need of solving. At the same time, the expectations linked to being an authentic ally of disabled people pose many challenges and stressors and a danger of burnout for the ally. Therefore, the aim of this study was to better understand the academic coverage of allyship and allies in relation to disabled people in general, and specifically the coverage of challenges, stressors, and danger of burnout for allies of disabled people. To fulfill this aim, we performed a scoping review of academic abstracts and full texts employing SCOPUS, the seventy databases of the EBSCO-HOST and the Web of Science. Of the 577 abstracts, covering allies and allyship in relation to disabled people that were downloaded, 306 were false positives. Of the 271 relevant ones, the content of six abstracts suggested a deeper coverage of allyship/allies in the full texts. Within the full texts, two mentioned ally burnout and four mentioned challenges faced by allies. Among the 271 abstracts, 86 abstracts mentioned allies without indicating who the allies were, 111 abstracts mentioned specific allies with technology as an ally being mentioned second highest. Sixty-three abstracts covered specific topics of activism for allies. Furthermore, although searching abstracts for equity, diversity, and inclusion (EDI) related phrases, terms, and policy frameworks generated sixty-three abstracts, only three abstracts mentioned disabled people. Abstracts containing science and technology governance or technology focused ethics fields terms did not generate any hits with the terms ally or allies or allyship. Searching abstracts and full texts, phrases containing ally or allies or allyship and burnout had 0 hits, ally terms with stress* generated four hits and phrases containing anti-ableism, or anti disablism, anti-disableist, anti-disablist, anti-ablist, or anti-ableist with ally terms had 0 hits. Our findings show many gaps in the coverage of allies and allyship in relation to disabled people especially around the barriers, stressors, and burnout that authentic allies of disabled people can face. These gaps should be filled given that disabled people need allies and that there are many challenges for being an authentic disabled or non-disabled ally of disabled people.

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Section: Years Number Of Abstractsmentioning

confidence: 99%

Coverage of Allies, Allyship and Disabled People: A Scoping Review

Wolbring,

Lillywhite

2023

Societies

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“…Choy‐Brown et al (2020) examined the extent of person‐centred care within eight US community mental health clinics, finding varied practices of PCP among mental health professionals. Ellem et al (2019) evaluated a family resourcing and capacity building project in Australia, considering the extent to which it provided knowledge, skills and confidence to families of people with a disability to create a better life. In the United Kingdom, Hughes et al (2019) and Morgan (2016) examined the role of using PATH in promoting organisational change, with school staff, and with a children's services department, respectively.…”

Section: Introductionmentioning

confidence: 99%

Young people's views and experiences of person‐centred planning: A systematic literature review

Gregory,

Atkinson

2023

Research in Spec Educ Needs

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Person‐centred planning (PCP) is both a philosophy and method of service delivery across varied contexts. It is used in pathway planning for young people with special educational needs and disabilities (SEND) to promote positive transition outcomes. Due to idiosyncratic use, it is unclear how PCP meetings are organised and structured and to what extent this reflects fidelity to PCP as a philosophy. It is also unclear how young people experience PCP meetings and how this impacts transition. To explore this further, a systematic literature review was undertaken from which six studies were included and their data reported using PRISMA guidelines. Drawing upon Gestalt theory as an interpretive lens, findings from these studies suggest that PCP meetings comprise intersecting ‘foreground’ and ‘background’ elements, making PCP meetings a complex space requiring skilled facilitation. Limitations and recommendations for further research and practice are included.

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Beneficios y limitaciones de la planificación centrada en la persona en el campo de la discapacidad intelectual y del desarrollo: una revisión sistemática según las directrices de PRISMA

Salas Ruiz,

Domene Martos

2023

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La metodología de Planificación Centrada en la Persona (PCP) cada vez tiene mayor impacto en España. Comenzando desde las distintas legislaciones que regulan la atención a este colectivo en las diferentes autonomías y terminando en los centros que proveen este servicio. No obstante, existe escasa literatura internacional de estudios empíricos a grandes escalas que sitúen este enfoque metodológico en una posición relevante que garantice la eficacia de la PCP. El objetivo principal de este estudio es conocer el estado del uso de la metodología de PCP a través de estudios avalados empíricamente que sostengan tanto beneficios como limitaciones durante los últimos 10 años (2012-2022). Para ello, se ha realizado una revisión sistemática desde las directrices de PRISMA (2020), que incluye un total de 31 artículos. Como conclusión, se han descubierto más beneficios que limitaciones entre las que destacan las ventajas en su uso para las personas con discapacidad intelectual y del desarrollo y las mejoras de aspectos relacionados con la autodeterminación. No obstante, las limitaciones prevalecen por la falta de apoyos y recursos adecuados de las organizaciones para responder a una planificación centrada en la persona y la necesidad de formación de las personas implicadas en la elaboración de la PCP, lo que genera la incógnita de si se están realizando buenas prácticas en el uso de dicha metodología.

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Choosing the harder road: Naming the challenges for families in person-centred planning

Cited by 4 publications

References 24 publications

Coverage of Allies, Allyship and Disabled People: A Scoping Review

Coverage of Allies, Allyship and Disabled People: A Scoping Review

Young people's views and experiences of person‐centred planning: A systematic literature review

Beneficios y limitaciones de la planificación centrada en la persona en el campo de la discapacidad intelectual y del desarrollo: una revisión sistemática según las directrices de PRISMA

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