Chronic Fatigue Syndrome – an occupational therapy programme

Cox, D. L.

doi:10.1002/oti.88

Cited by 15 publications

(17 citation statements)

References 44 publications

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“…This is a reflection of the focus on activity performance without connectivity to its temporal dimensions (Pemberton & Cox, 2011). Therefore, while research has promoted the role of rehabilitation programmes for CFS/ME (Cox, 1999(Cox, , 2002Pemberton, Hatcher, Stanley, & House, 1994; Taylor, 2004), understanding the importance of temporal elements of occupation within the condition and recovery process could inform the way in which occupations are paced, balanced, modified and graded as an intervention. The current study sought to explore the personal experience of time, tempo and temporality within CFS/ME and its relationship to perceived patterns of activity both before and through experiencing the condition.…”

Section: Susan Pemberton and Diane Coxmentioning

confidence: 98%

Perspectives of Time and Occupation: Experiences of People with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

Pemberton

Cox

2013

Journal of Occupational Science

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Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is a disabling condition that disrupts the normal rhythms and activity patterns of daily life. Although temporal dimensions such as time use, tempo and temporality have an important relationship to occupation there has been limited study of these factors within CFS/ME. This qualitative study explored how people with CFS/ ME perceived the relationship between time and occupation through the experience of their illness. A social constructivist approach to grounded theory involving in-depth interviews with 14 participants, recruited through a specialist service in the UK, revealed emerging concepts of accelerating time before illness, with a focus on imminent tasks. During illness actions slowed, but contrasted with the experience for some participants of time disappearing. As participants adjusted to the condition there was a greater focus on being present and consciously slow, as a sense of control within time emerged. These findings suggest that further consideration is given to the broader aspects of time and rhythm within occupational science, evolving from the current clock time perspective to incorporate event time and resynchronisation of occupational balance.

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Section: Susan Pemberton and Diane Coxmentioning

confidence: 98%

Perspectives of Time and Occupation: Experiences of People with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

Pemberton

Cox

2013

Journal of Occupational Science

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“…Mild dysfunction is the level where patients are still mobile for short distances, are able to carry out some outdoor activities and continue to work part time. Very severe dysfunction is when the patient is totally dependent on the support of others and is predominantly in bed (Cox and Findley 1998, Cox 2000, CFS/ME Working Group 2002.…”

Section: Chronic Fatigue Syndrome: An Evaluation Of An Occupational Tmentioning

confidence: 99%

Chronic Fatigue Syndrome: An Evaluation of an Occupational Therapy Inpatient Intervention

Cox¹

2002

British Journal of Occupational Therapy

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It has been stated that, although most chronic fatigue syndrome (CFS) patients can be treated in primary care and that cognitive behaviour therapy and prescribed, graded aerobic exercise appear to be promising in outpatient management, a minority of patients will require inpatient care (Royal Colleges of Physicians, General Practitioners and Psychiatrists 1996). To date, little has been written on the need for and impact of an inpatient approach for patients with CFS. This study builds on previous work to show how patients with complex CFS responded to a specifically designed occupational therapy inpatient programme, using the principles of cognitive behaviour therapy and graded activity. A quasi-experimental study was carried out using current inpatients with those on the waiting list as a comparison. At 6 months following discharge, a significant difference between the groups in terms of symptoms and level of ability was not demonstrated. However, a significant effect was shown in patients' perceived health, length of time tired and management of the illness. Thirty-one (72%) of the inpatient group, compared with 10 (53%) of the comparison group, stated that they felt better than the previous year. Thirty-one (72%) of the inpatient group, compared with 7 (37%) of the comparison group, indicated better management of their illness. These findings give some evidence of the need for an inpatient CFS management programme for specific patients with complex CFS.

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“…It may be that a longer period than 8 weeks is required to enable substantial changes in subjective fatigue in people with ABI. In an occupational therapy programme for the treatment of fatigue in chronic fatigue syndrome, Cox (1999) concluded that it required frequent modifications and suggested that ongoing support from months to years may be required. Therefore, follow-up would be highly beneficial in subsequent research to establish whether gains from education sessions are maintained in the long term.…”

Section: Discussionmentioning

confidence: 99%

An Evaluation of a Fatigue Management Intervention for People with Acquired Brain Injury: An Exploratory Study

Cooper

Reynolds

Bateman

2009

British Journal of Occupational Therapy

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Acquired brain injury (ABI) can result in devastating and long-lasting disabilities in the physical, cognitive, psychological and social domains of life. The Department of Health (2005) estimates that, in the United Kingdom, there are 420,000 people aged between 16 and 65 years living with a traumatic brain injury (TBI) and that many more people are affected by non-traumatic types of brain injury. Fatigue is one of the most frequently reported symptoms, even among those with mild to moderate injuries (Lezak et al 2004). Significant numbers of people are affected by fatigue for many years following a TBI and it is a substantial but understudied issue for people with other types of ABI, such as stroke (Choi-Kwon et al 2005). Van der Naalt et al (1999) found fatigue to be prevalent in 57% at 1 month, 61% at 3 months, 45% at 6 months and 45% at 12 months post mild-moderate TBI. Olver et al (1996) reported a rate of 73% of participants experiencing fatigue at 5 years following TBI. The underlying physiological mechanisms that cause excessive fatigue following ABI are currently poorly understood. Multiple factors are implicated, including mood disturbance, endocrine factors, sleep disturbance, nutrition, medication side effects, decreased physical fitness and cognitive dysfunction, such as slowed speed of processing and

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Chronic Fatigue Syndrome – an occupational therapy programme

Cited by 15 publications

References 44 publications

Perspectives of Time and Occupation: Experiences of People with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

Perspectives of Time and Occupation: Experiences of People with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis

Chronic Fatigue Syndrome: An Evaluation of an Occupational Therapy Inpatient Intervention

An Evaluation of a Fatigue Management Intervention for People with Acquired Brain Injury: An Exploratory Study

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