Chronic physical illness and mental health in children. Results from a large‐scale population study

Hysing, Mari; Elgen, Irene Bircow; Gillberg, Christopher; Lie, Stein Atle; Lundervold, Astri J.

doi:10.1111/j.1469-7610.2007.01755.x

Cited by 217 publications

(165 citation statements)

References 27 publications

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“…where available. It has been highlighted that there is a significant lack of case controlled design and absence of observational data in looking at psychosocial outcomes following childhood stroke [14]. There is also a need for a qualitative approach to understand the perspectives of children and parents following childhood stroke [3,55] Several studies reported multiple papers from the same sample of children with stroke [17, Several of the larger outcome studies had a strong neurological focus [16,2] In studies that adopt a purely medical approach to outcome, children with mild residual physical disabilities are generally grouped in the 'good' outcome category.…”

Section: Predictors Of Hrqolmentioning

confidence: 99%

“…Evidence from the wider paediatric literature suggests that children and young people living with disabilities, neurological or chronic health conditions may be at a significantly greater risk for behavioural and emotional adjustment problems and lower quality of life compared to those without disabilities [14,15]. There has been some emerging evidence into the broader impact of experiencing a stroke on a child's well-being, cognition, communication, behaviour and emotions, indicating that the long-term difficulties are far more wide-ranging than physical and neurological alone [12,13,16,3,17].…”

Section: Introductionmentioning

confidence: 99%

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Psychosocial outcome and quality of life following childhood stroke – A systematic review

O’Keeffe

Stark

Murphy

et al. 2017

Developmental Neurorehabilitation

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Objectives. The aim of this paper was to critically review the recent literature on psychosocial and behavioural outcome following childhood stroke, to assess whether quality of life is affected and to investigate the factors related to psychosocial outcome.Methods. Literature searches were conducted and identified 36 relevant papers from the period 1908-2016.Results. The systematic review found that many children experience difficulties in a wide range of psychosocial domains. Quality of life can also be significantly reduced. Inconsistent findings regarding the correlates of outcome are likely due to methodological limitations. These issues include small and heterogeneous samples, lack of control groups and measurement difficulties.Conclusions. This systematic review strongly indicates that childhood stroke can affect a myriad of psychosocial domains and a child's quality of life.Methodological issues, particularly around heterogeneous samples and measures, limit the conclusions that can be drawn regarding the predictors of outcome.

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Section: Predictors Of Hrqolmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Psychosocial outcome and quality of life following childhood stroke – A systematic review

O’Keeffe

Stark

Murphy

et al. 2017

Developmental Neurorehabilitation

View full text Add to dashboard Cite

show abstract

“…We are increasingly aware that emotional and behavioural problems occur in children with chronic illness and up to 20 % of children attending a variety of paediatric outpatient clinics had a probable psychiatric disorder [21,22]. Thirty per cent of 44 patients aged 9-18 years with CKD met the criteria for depression, which was more frequent in those with longstanding disease [23].…”

Section: Introductionmentioning

confidence: 99%

Psychosocial support for children and families requiring renal replacement therapy

Watson

2013

Pediatr Nephrol

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Chronic kidney disease (CKD) and the need for renal replacement therapy (RRT) can place a great strain on the child and family. As well as the medical and nutritional prescription, each child and family requires an individual psychosocial prescription that requires input from multiprofessional team members. The information needs of each child and family need to be constantly evaluated as well as the choice of therapy in relation to social, psychological and economic factors. Many tertiary units lack adequate "time" to deliver such assessments and coordinate the support and respite care for those on long-term dialysis, especially when significant numbers of children are now accepted onto RRT programmes with co-morbidities. National and international standards are needed for the staffing of comprehensive tertiary paediatric renal units as well as studies evaluating supportive care to families.

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“…The participants reported helplessness, weakness and over sensitivity as their characteristics, which is consistent with the results of previous studies. Research show that chronically ill children often experience themselves as sensitive and dependent and that they have a perception of a lack of control [29][30][31]. Such experience of oneself is realistic in certain circumstances.…”

Section: Discussionmentioning

confidence: 99%

Quality of Life and Psychosocial Needs of Children Suffering from Chronic Skin Diseases

Roje¹,

Rezo²,

Flander³

2016

Alcoholism Psychiatry Res

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-Studies show that children suffering from chronic skin diseases have more negative mental health indicators and lower quality of life than general population and than children suffering from other chronic diseases. The aim of this study was to gain a detailed insight into how the children suffering from chronic skin diseases experience the quality of various aspects of their life -their self-image, experience of disease, social relationships and actual needs, with the purpose of improving the quality of their life. In-depth interviews were conducted with eleven children (6 m, 5 f), treated at the Skin Disease Clinic Srebrnjak, aged 10 to 15 and suffering from visible skin symptoms for longer than two years. The analysis of answers indicates that children report a disturbed self-image, lower self-satisfaction and higher physical self-perception. They attribute negative characteristics to themselves, have unpleasant emotions and expect negative outcomes in the future. Some children have experienced serious peer-bullying, some have pleasant social experiences, but all of them reported feelings of shame and fear from the environment reactions to their skin. Needs they express are related to acceptance, education of the environment, instrumental and emotional support. The findings of this study clearly indicate that mental health professionals should be included in the care of children with chronic skin diseases.

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Chronic physical illness and mental health in children. Results from a large‐scale population study

Cited by 217 publications

References 27 publications

Psychosocial outcome and quality of life following childhood stroke – A systematic review

Psychosocial outcome and quality of life following childhood stroke – A systematic review

Psychosocial support for children and families requiring renal replacement therapy

Quality of Life and Psychosocial Needs of Children Suffering from Chronic Skin Diseases

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