Citizens’ juries in planning research priorities: process, engagement and outcome

Abstract

Background Involving members of the public in setting priorities for health research in becoming increasingly common practice. One method used in public involvement exercises is the citizens' jury.

Consumer participation and organizational development in health care: a systematic review

“…Six hundred and twenty studies were excluded from further analysis, because they reported OD projects with consumer participation in other areas than Health Care. Th e remaining 25 studies consisted of 20 studies on OD projects with consumer participation in various areas of Health Care [15,[18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33][34][35][36] and fi ve systematic reviews of 135 [16], 131 [17], 38 [37], 5 [38], and 143 [39] studies, re- spectively. Table 1 describes the study characteristics such as number of participants/projects, type of consumer participation, study design, use of a control group, and area of Health Care of these 25 studies.…”

Why we should conduct research in collaboration with people who use alcohol and other drugs

“…Common strategies are asking people who use substances to identify topics requiring further study, join a project advisory group, help design a study intervention, comment on the feasibility of using particular research methods, suggest appropriate outcome measures, co-write participant information sheets, prepare lay summaries, advise on interview topic guides, recruit study participants, assist with data collection and analyses and contribute to dissemination activities [3,[6][7][8][9][10][11]. Piloting is not generally viewed as involvement, but can be if feedback is collated and used to inform the study going forward.…”

Defining Evidence: Involvement and Participatory Approaches in Applied Health Research

“…It then becomes the responsibility of the research community to ensure that this happens. These arguments accord with ideas around citizen empowerment, which have been played out more widely through activities using methods of deliberative democracy to involve the public in assisting with policy decisions or priorities (Davies et al 2006;Gooberman-Hill et al 2008). The drive to ensure that user involvement takes place and has effect also contains moral overtones.…”