Cleft lip and palate: the psychological burden of affected parents during the first three years of their children’s lives

Lentge, K.; Lentge, F.; Zeller, Alexander‐Nicolai; Gellrich, N.‐C.; Tavassol, Frank; Korn, Philippe; Spalthoff, Simon

doi:10.1016/j.ijom.2022.04.003

Cited by 7 publications

(4 citation statements)

References 38 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This psychological stress might be reduced if addressed by specialist clinical psychologists in cleft-treating centers. 34 These factors were also supported by the speech task force.…”

Section: Discussionmentioning

confidence: 79%

Speech Task Force and Quality of Life after Surgery in Children with Cleft Lip and Palate: Limitation of Professionals

Prathanee,

Thanawirattananit,

Surit

et al. 2024

Arch Plast Surg

View full text Add to dashboard Cite

Background Shortage of speech and language therapists results in lack of speech services. The aims of this study were to find the effectiveness of a combination speech therapy model at Level IV: General speech and language pathologist (GSLP) and Level V: Specific speech and language pathologist (SSLP) in reduction of the number of articulation errors and promotion the quality of life (QoL) for children with cleft palate with or without cleft lip (CP ± L). Methods Fifteen children with CP ± L, aged 4 years 1 month to 10 years 9 months (median = 76 months; minimum:maximum = 49:129 months) were enrolled in this study. Pre- and post-assessment included oral peripheral examination; articulation tests via Articulation Screening Test, Thai Universal Parameters of Speech Outcomes for People with Cleft Palate, Hearing Evaluation, The World Health Organization Quality of Life Brief_Thai (WHOQOL-BRIEF-THAI) version questionnaire for QoL were performed. Speech therapy included a 3-day intensive speech camp by SSLP, five 30-minute speech therapy sessions by a GSLP, and five 1-day follow-up speech camps by SSLP that provided four 45-minute speech therapy sessions for each child. Results Post-articulation revealed statistically significant reduction of the numbers of articulation errors at word, sentence, and screening levels (median difference [MD] = 3, 95% confidence interval [CI] = 2–5; MD = 6, 95% CI = 4.5–8; MD = 2.25, 95% CI = 1.5–3, respectively) and improvement of QoL. Conclusion A speech task force consisting of a combination of Level IV: GSLP and Level V: SSLP could significantly reduce the number of articulation errors and promote QoL.

show abstract

“…This psychological stress might be reduced if addressed by specialist clinical psychologists in cleft-treating centers. 34 These factors were also supported by the speech task force.…”

Section: Discussionmentioning

confidence: 79%

Speech Task Force and Quality of Life after Surgery in Children with Cleft Lip and Palate: Limitation of Professionals

Prathanee,

Thanawirattananit,

Surit

et al. 2024

Arch Plast Surg

View full text Add to dashboard Cite

show abstract

“…However, ndings on the subject are diverse. There are publications in which parents of healthy children's scored more than NSCL/P caregivers [12,33,34], as well, contrary results [10,13,16,35]. However, most of studies, symptoms levels were measured used different instruments.…”

Section: Discussionmentioning

confidence: 99%

“…In the literature, there are few quantitative results that evaluated anxiety, depression and/or stress symptoms in NSCL/P children parents. Therefore, there are publications [10][11][12][13][14][15][16][17] with divergent results which may be caused by DASS-21 [29] was used to measure and classify anxiety, depression and stress symptoms. Composition of the instrument is 21 questions.…”

Section: Introductionmentioning

confidence: 99%

Anxiety, depression, stress and fear of COVID-19 in non-syndromic oral cleft children' parents and caregivers

Trezena

Oliveira

Marques

et al. 2023

Preprint

View full text Add to dashboard Cite

Objectives to assess the levels of anxiety, depression, stress and fear of COVID-19 in non-syndromic cleft lip and/or palate (NSCL/P) children parents and caregivers. Materials and Methods Cross-sectional case-control study conducted at a Craniofacial Anomalies Rehabilitation Center, Brazil. Non-probabilistic convenience sampling was used and data were collected between October 2021 and November 2022. Variables were assessed by Depression, Anxiety and Stress Scale (DASS-21) and Fear of COVID-19 Scale (FC-19S). Pearson's chi-square test and multivariate binary logistic regression model have been performed. Results Data were obtained of 80 NSCL/P parents group and 130 by control group. Severe symptoms were higher in NSCL/P parents indicated by rates (8.8% vs 69% to anxiety; 12.5% vs 8.5% to depression and 17.5% vs 10.0% to stress). As for the predilection in case group there was an association (p < 0.05) for manifestation of mild stress (OR: 4.09; 95%CI 1.28–13.06). Control group caregivers were more fear of COVID-19 (43.8% vs 28.7% p < 0.05). Conclusion There were no significant differences in anxiety, depression, and stress levels between groups. NSCL/P children parents and caregivers were less fear of COVID-19. There is a predilection for severe symptoms in the case group. Clinical Relevance: This is the first cross-sectional study analyzing fear of COVID-19 in NSCL/P children parents and caregivers. These people should receive greater attention by multiprofessional team due to the predisposition of illness in mental health.

show abstract

“… 2 Furthermore, parents of children with CL+/−P may experience higher levels of psychological stress compared to parents of non−CL+/−P children. 3 Such added difficulties can lead to impaired interaction between parents and their children. Impaired interaction and developmental difficulties have been shown to be worse in patients following delayed initial cleft lip surgery.…”

Section: Introductionmentioning

confidence: 99%

The Use of Eye-tracking Technology in Cleft Lip: A Literature Review

Plonkowski

Breakey

Read

et al. 2023

Plastic and Reconstructive Surgery - Global Open

View full text Add to dashboard Cite

Background: Eye-tracking has become an increasingly popular research tool within the field of cleft lip and/or palate (CL+/−P). Despite this, there are no standardized protocols for conducting research. Our objective was to conduct a literature review of the methodology and outcomes of previous publications using eye-tracking in CL+/−P. Methods: The PubMed, Google Scholar, and Cochrane databases were searched to identify all articles published up to August 2022. All articles were screened by two independent reviewers. Inclusion criteria included using eye-tracking, image stimuli of CL+/−P, and outcome reporting using areas of interest (AOIs). Exclusion criteria included non-English studies, conference articles, and image stimuli of conditions other than CL+/−P. Results: Forty articles were identified, and 16 met the inclusion/exclusion criteria. Thirteen studies only displayed images of individuals following cleft lip surgery with three only displaying unrepaired cleft lips. Significant variation was found in study design, particularly in the AOIs used to report gaze outcomes. Ten studies asked participants to provide an outcome score alongside eye-tracking; however, only four compared outcome data to eye-tracking data. This review is primarily limited by the minimal number of publications in this area. Conclusions: Eye-tracking can be a powerful tool in evaluating appearance outcomes following CL+/−P surgery. It is currently limited by the lack of standardized research methodology and varied study design. Before future work, a replicable protocol should be developed to maximize the potential of this technology.

show abstract

Cleft lip and palate: the psychological burden of affected parents during the first three years of their children’s lives

Cited by 7 publications

References 38 publications

Speech Task Force and Quality of Life after Surgery in Children with Cleft Lip and Palate: Limitation of Professionals

Speech Task Force and Quality of Life after Surgery in Children with Cleft Lip and Palate: Limitation of Professionals

Anxiety, depression, stress and fear of COVID-19 in non-syndromic oral cleft children' parents and caregivers

The Use of Eye-tracking Technology in Cleft Lip: A Literature Review

Contact Info

Product

Resources

About