Clients or colleagues? Reflections on the process of participatory action research with young injecting drug users

The GRIPP checklist: Strengthening the quality of patient and public involvement reporting in research

“…Interest and activity have grown, with projects in the European Union, Australia, Canada, and other countries focusing on different aspects of PPI (1;3;6;11;14;18;20;21;24). There is a general agreement on the need for more patient-focused HTA methods…”

“…also to contribute to the broader democratization of research, through participatory forms of involvement that encourage partnership in research (4,6). Within the United Kingdom, considerable effort has been focused on developing an infrastructure to operationalize the policy commitment to PPI, through the work of organizations such as INVOLVE (12) and the Research Design Services (19), which enable researchers to embed patient and public involvement into their work.…”

Peer helpers’ struggles to care for “others” who inject drugs

“…While considerable evaluation research has demonstrated the efficacy of such peer-based initiatives in promoting effective health-practices among those who inject drugs, more grounded inductive approaches are beginning to shed light on the precarious and sometimes personally threatening nature of the work carried out by such helpers (Coupland & Maher, 2005;Fraser, 2004, p. 216;Small, 2012;Snead et al, 2003). This article illustrates the multiple and pervasive difficulties that can arise for peer/natural helpers when broader forms of health-services are restricted by what has been described above as a discourse of bio-citizenship.…”

The Indigenous Resiliency Project: a worked example of community-based participatory research

“…9 CBPR has often been utilised in research with vulnerable or marginalised populations and is increasingly employed in research with Indigenous communities. 1,[9][10][11][12][13][14][15][16][17] The principles and characteristics of CBPR are considered to have the potential to address the failings, and 'colonisingeffects', of previous research on Indigenous peoples. 8 Further, by involving affected communities in the analysis and interpretation of data, CBPR has the potential to avoid the misrepresentation of 'Indigenous societies, culture and persons by non-Indigenous academics and professionals'.…”