Abstract:The results provide in-depth qualitative understanding of how clients' perceived their experience within a residential rehabilitation unit for ABI. Implications of the results are discussed, including the identification of potential beneficial talking therapies for clients within this setting.
“…All of the interviews in this study reinforced the importance of engaging family member/carers more effectively in rehabilitation (Fleming, Sampson, Cornwell, Turner, & Griffin, 2012;Gill, Wall, & Simpson, 2012). One participant with an ABI observed that including her daughters in the rehabilitation process had benefits for them as well as herself; " .…”
BACKGROUND: Family member engagement is increasingly recognised as an influential factor in the rehabilitation continuum following Acquired Brain Injury, including the inpatient setting and longer-term community integration phases. OBJECTIVE: To explore the experiences of patients and family members about their involvement in brain injury rehabilitation. METHODS: This study comprised individual and group interviews with 14 ex-patients and family members. Interviews explored effects of inpatient rehabilitation on family relationships. Interview audio recordings were analysed using an interpretive approach by two independent researchers. RESULTS: Findings clearly confirmed the significance of engaging family members in inpatient rehabilitation, and specifically reinforced the importance of informational, emotional, practical and peer support. However, the key finding of the study was the importance of hope, and the need for rehabilitation professionals to foster hope. Despite not having included any questions on this topic, all interviewees noted the importance of hope, some saw it as fundamental to positive outcomes, and many were unconvinced of rehabilitation professionals' concern to avoid false hope. Various dimensions of hope are explored. CONCLUSIONS: The study notes that hope has been identified as highly important in many areas beyond brain injury rehabilitation. Based on this small preliminary study, the issue of hope is seen as a key focus for future research.
“…All of the interviews in this study reinforced the importance of engaging family member/carers more effectively in rehabilitation (Fleming, Sampson, Cornwell, Turner, & Griffin, 2012;Gill, Wall, & Simpson, 2012). One participant with an ABI observed that including her daughters in the rehabilitation process had benefits for them as well as herself; " .…”
BACKGROUND: Family member engagement is increasingly recognised as an influential factor in the rehabilitation continuum following Acquired Brain Injury, including the inpatient setting and longer-term community integration phases. OBJECTIVE: To explore the experiences of patients and family members about their involvement in brain injury rehabilitation. METHODS: This study comprised individual and group interviews with 14 ex-patients and family members. Interviews explored effects of inpatient rehabilitation on family relationships. Interview audio recordings were analysed using an interpretive approach by two independent researchers. RESULTS: Findings clearly confirmed the significance of engaging family members in inpatient rehabilitation, and specifically reinforced the importance of informational, emotional, practical and peer support. However, the key finding of the study was the importance of hope, and the need for rehabilitation professionals to foster hope. Despite not having included any questions on this topic, all interviewees noted the importance of hope, some saw it as fundamental to positive outcomes, and many were unconvinced of rehabilitation professionals' concern to avoid false hope. Various dimensions of hope are explored. CONCLUSIONS: The study notes that hope has been identified as highly important in many areas beyond brain injury rehabilitation. Based on this small preliminary study, the issue of hope is seen as a key focus for future research.
“…Gesler, Bell, Curtis, Hubbard, and Francis () report on the role of democratization, permissiveness, reality confrontation, communalism, interpersonal relationships, personal growth, and program structure in the rehabilitation process. Gill, Wall, and Simpson () argue that the clients' relationship with broader environments assists the rebuilding of self‐belief, personal identity, acceptance, and accommodation needs. In the areas of rehabilitation and design, a variety of methods and research tools are used to gain knowledge about ABI, rehabilitation, and the physical environment. Beliefs about ontology (what can we know?)…”
People live their lives in an ongoing relationship with the physical environment. In the following review, a range of factors which may influence the design and construction as well as the occupation of an environmental setting for people with acquired brain injury (ABI), are described. During a person's rehabilitation, the environment may support his or her protection, while simultaneously promoting independence and learning. In a discussion regarding the design of built environments for people with ABI, medical, or allied health perspectives usually dominate. To design settings that support these objectives, the designer perspectives, be they interior, architectural, or landscape, must be identified. Typically, designers and architects do not adopt a linear approach to creating environments, but rather they integrate what Nigel Cross calls a designerly way of knowing. A designer-stance may broaden possibilities while supporting the appropriate models of care or philosophy of rehabilitation. The aim of this review is to map and summarize the breadth of current literature that involves or could inform the design of facilities for people with ABI. Such a review is necessary to consolidate what is known, in order to build upon it. The overall aim is to inform design professionals of the breadth of considerations when designing for people with ABI. In addition, it will inform managers, carers and allied health professionals of current understandings. Conceptualizations from different disciplinary perspectives of designing for rehabilitation of people with ABI are discussed.
“…Residents also linked this flexibility to building awareness of their own abilities across their stay in the TLS programmes. Two studies also made reference to the importance of the need for a non-hierarchical relationship between residents and staff in a TLS setting, as perceived by the residents and staff (Chapparo & Shepherd, 2010;Gill et al, 2012).…”
Section: Subjective Experiences Of Tls Residents and Staffmentioning
confidence: 99%
“…Brain injury education, family education, counselling. Gill et al (2012) x Hopman (2006) x x x x x x x Family education and support, peer support. Hopman et al (2012) X x x McColl et al (1999) x x x x x x Exploration of social supports.…”
Transitional living service (TLS) programmes for adults with an acquired brain injury are considered an important part of rehabilitation. However, considerable variability exists in the design and structure of these services, with limited research to guide the development of a programme based on best evidence. A scoping literature review was completed to answer the question ‘What is known about TLS programmes for adults with an acquired brain injury?’ Four electronic databases were systematically searched, followed by a grey literature search (from 1996 to 2015). 3183 articles were screened and 13 articles were included in the final review. Themes that emerged from the literature include the types of residents using TLS programmes, the subjective experience of residents and staff, intervention approaches, programme staffing, and programme outcomes. The research reviewed supports the use of TLS programmes to maximise functional independence and community integration of individuals with an acquired brain injury. Clinical practise recommendations were developed to help support implementation of TLS programmes based on best evidence, these included: to use multiple outcome measures, implement collaborative goal setting, support generalisation of skills learnt in the TLS to the home environment and for eligibility criteria for these programmes to include individuals across all phases of recovery.
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