Clinical and linguistic validation of the Polish version of VascuQoL, a disease-specific quality of life questionnaire assessing patients with chronic limb ischemia

Belowski, Andrzej; Partyka, Łukasz; Krzanowski, Marek; Polczyk, Romuald; Maga, Paweł; Maga, Mikołaj; Acquadro, C.; Lambe, J.; Morgan, M.; Niżankowski, Rafał

doi:10.20452/pamw.4455

Cited by 5 publications

(10 citation statements)

References 13 publications

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“…There were 97 studies25–29,32,33,35–40,42–44,46–52,54–62,64–70,72–79,81,82,84–93,97–102,104–108,110–118,120–128,130–132,134–138,157 reporting QOL outcomes in CLTI patients (Table, Supplemental Digital Content 3, Supplemental Table 4, http://links.lww.com/SLA/D912). VascuQoL-25 was the most common disease-specific instrument used (n=17).…”

Section: Resultsmentioning

confidence: 99%

“…An additional 16 studies139–154 were included from the secondary database search and 16 studies155–170 from the reference list search. In total, 146 studies25–170 were included for review (Fig. 1).…”

Section: Resultsmentioning

confidence: 99%

“…Four disease-specific QOL instruments are currently available for use in CLTI patients (Table, Supplemental Digital Content 2, Supplemental Table 3, http://links.lww.com/ SLA/D911); VascuQoL-25, 31,41,45,53,94,151 VascuQoL-6, 80,83,95,96 PADQOL, 129 and PAQ. 109,119 However, these were developed for LEAD (intermittent claudication or CLTI).…”

Section: Quality Of Life Instruments For Patients and Informal Carersmentioning

confidence: 99%

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Measuring Quality of Life in Chronic Limb-threatening Ischemia Patients and Informal Carers: A Scoping Review

et al. 2022

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Objective: To review quality of life (QOL) instruments for chronic limb-threatening ischemia (CLTI) patients and informal carers, and their use in QOL and cost-utility analysis (CUA) studies. Background: CLTI is a global health problem with significant morbidity affecting patients and informal carers. QOL is increasingly measured for holistic outcomes assessment and CUA. However, measurement instruments in CLTI are poorly understood. Methods: MEDLINE, EMBASE, PsycINFO, CINAHL, COSMIN, PROQOLID, CEA registry, and NHS EED databases were searched for all English language studies up to May 2021. Features of instruments, evidence of measurement property appraisal, and trends in use were assessed. Prospective protocol registration (Open Science Framework: https://doi.org/10.17605/OSF.IO/KNG9U). Results: A total of 146 studies on QOL instruments (n=43), QOL outcomes (n=97), and CUA (n=9) were included. Four disease-specific QOL instruments are available for lower extremity arterial disease (intermittent claudication or CLTI). VascuQoL-25 and VascuQoL-6 have been used in CLTI. There is no CLTI-specific instrument. Of 14 generic instruments, SF-36, EQ-5D-3L, NHP, and WHOQOL-BREF were most common. Studies reporting partial measurement property appraisal favored VascuQoL-25, VascuQoL-6, and SF-36. Feasibility considerations include mode of administration and responder burden. None of 4 available carer-specific instruments have been used in CLTI. Since 1992, the number of QOL studies has increased considerably, but CUA studies are scarce. Informal carers have not been assessed. Conclusions: This review provides a comprehensive reference for QOL measurement in CLTI that helps end-users with instrument selection, use, and interpretation. However, a CLTI-specific instrument is needed. There is an opportunity to benefit society through future CUA studies and evaluation of QOL in informal carers.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Quality Of Life Instruments For Patients and Informal Carersmentioning

confidence: 99%

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Measuring Quality of Life in Chronic Limb-threatening Ischemia Patients and Informal Carers: A Scoping Review

et al. 2022

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“…The EQ-5D-5L vs. the EQ-5D-3L possesses some psychometric advantages, including a lower ceiling effect and higher sensitivity. A Polish validation of the EQ-5D-5L has recently been published [ 29 , 30 , 31 ]. The use of the EQ-5D in Poland is supported by the availability of many country-specific tools [ 32 ].…”

Section: Introductionmentioning

confidence: 99%

Health-Related Quality of Life in Migraine: EQ-5D-5L-Based Study in Routine Clinical Practice

Domitrz

Golicki

2022

JCM

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Background: Migraine leads to moderate to severe disabilities and disrupts family life, interpersonal relationships, and professional life, and is the second leading cause of disability worldwide. Many people with migraine suffer prolonged headaches and frequent migraine attacks, transition to having chronic migraine, and have the highest number of disability-adjusted life-years. The aim of this study is to measure the quality of life in migraineurs based on the EQ-5D-5L questionnaire. Methods: We assessed 100 consecutive patients diagnosed with migraine: 70 with episodic migraine and 30 with chronic migraine. Migraineurs were asked to complete the EQ-5D-5L. The control group (n = 100), matched for sex and age group, was created based on the results of the population norms study for the EQ-5D-5L in the general population of Poland. Results: Patients with migraine had worse HRQoL than the matched general population control group for all three primary endpoints of the EQ-5D-5L questionnaire: dimensions, EQ-5D-5L Index and EQ VAS. Conclusions: Migraine is a disease that disrupts daily function, and as a lifelong disease, plays a role in every aspect of it. Proving a negative impact on many aspects helps to make decisions about treatment, especially in the context of the design and reimbursement of drugs.

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“…The EQ-5D is, apart from the Short Form-36 (SF-36), one of the most popular generic instruments for the measurement of health-related quality of life (HRQoL) [1][2][3]. The questionnaire is available in two versions: original, three-level (EQ-5D-3L) and the more recent five-level form (EQ-5D-5L).…”

Section: Introductionmentioning

confidence: 99%

General population reference values for the EQ-5D-5L index in Poland: estimations using a Polish directly measured value set

Golicki¹

2021

Polish Archives of Internal Medicine

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This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License (CC BY-NC-SA 4.0), allowing third parties to copy and redistribute the material in any medium or format and to remix, transform, and build upon the material, provided the original work is properly cited, distributed under the same license, and used for noncommercial purposes only.

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Clinical and linguistic validation of the Polish version of VascuQoL, a disease-specific quality of life questionnaire assessing patients with chronic limb ischemia

Cited by 5 publications

References 13 publications

Measuring Quality of Life in Chronic Limb-threatening Ischemia Patients and Informal Carers: A Scoping Review

Measuring Quality of Life in Chronic Limb-threatening Ischemia Patients and Informal Carers: A Scoping Review

Health-Related Quality of Life in Migraine: EQ-5D-5L-Based Study in Routine Clinical Practice

General population reference values for the EQ-5D-5L index in Poland: estimations using a Polish directly measured value set

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