Clinical outcomes of adults and children with cystic fibrosis during the COVID-19 pandemic

Doumit, Michael; Chuang, Sandra; Middleton, Peter G.; Selvadurai, Hiran; Sivam, Sheila; Ruseckaite, Rasa; Ahern, Susannah; Mallitt, Kylie‐Ann; Pacey, Verity; Gray, Kelly; Jaffé, Adam

doi:10.1016/j.jcf.2022.09.006

Cited by 11 publications

(6 citation statements)

References 29 publications

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“…Finally, an Australian longitudinal cohort study [5] compared trends in outcomes before and after the onset of the pandemic, using national registry data from 3662 pwCF (children and adults). ppFEV 1 changed from a mean annual decline of -0.13% to a mean improvement of 1.76%.…”

Section: Covid-19mentioning

confidence: 99%

A year in review (2022): Modulators and COVID19, the story goes on…

Dillenhöfer¹,

Grogono²,

Tirado³

2023

Journal of Cystic Fibrosis

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Section: Covid-19mentioning

confidence: 99%

A year in review (2022): Modulators and COVID19, the story goes on…

Dillenhöfer¹,

Grogono²,

Tirado³

2023

Journal of Cystic Fibrosis

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“…Registries must evolve with the needs of their populations, and CF registries are an exemplar in this regard 7 . During the COVID‐19 pandemic, amid concerns regarding the sudden shift to telehealth, early outcomes published using ACFDR data reported that despite this, overall patient outcomes improved 8 . International CF registries collaborated early in the pandemic to publish outcomes of people with CF and COVID infection and found they were comparable to the general population, reassuring clinicians and communities 9 .…”

Section: Challenges Benefitsmentioning

confidence: 99%

“…7 During the COVID-19 pandemic, amid concerns regarding the sudden shift to telehealth, early outcomes published using ACFDR data reported that despite this, overall patient outcomes improved. 8 International CF registries collaborated early in the pandemic to publish outcomes of people with CF and COVID infection and found they were comparable to the general population, reassuring clinicians and communities. 9 In Australia, approximately two-thirds of people with CF currently utilize a hybrid form of clinical care (mix of in-clinic and telehealth).…”

mentioning

confidence: 99%

Clinical registries: Not yet perfect, but essential for a high‐functioning health system

Ahern

2023

Respirology

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“… 12 Australia wide, the percentage of clinical reviews conducted for people with CF via telehealth increased from 8% in the 12 months prior to pandemic onset to 47% in the 12 months following the pandemic onset, with an associated decrease in in-person attendance. 13 This change in model of care which resulted in less frequent attendance to the CFSC may have impacted the frequency of investigations taking place.…”

Section: Introductionmentioning

confidence: 99%

Screening for Cystic Fibrosis Related Complications in the Context of a Pandemic and Altered Models of Care

Doumit,

Strachan,

Lazarus

et al. 2023

Health�Serv�Insights

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Background: Standard of care recommend that patients with cystic fibrosis (CF) require screening investigations to assess for complications. Changing models of care due to the COVID19 pandemic may have impacted completion of recommended screening. Objective: To compare the frequency of screening investigations completed in people with CF before and after the onset of the COVID19 pandemic. Methods: Medical records were reviewed at 4 CF-specialist centers to identify screening investigations completed in the 12-months before and after pandemic onset. Results: Records of 625 patients were reviewed. Prior to pandemic onset, there was between center variability in completion of screening investigations. There was greatest baseline variation between centers in performing oral glucose tolerance test (OGTT); range 38%-69%, exercise tests; 3%-51% and sputum screening for non-tuberculous mycobacteria; 53%-81%. Following pandemic onset, blood tests, and sputum cultures were maintained at the highest rates. Exercise testing, CXR and OGTT exhibited the greatest declines, with reductions at individual centers ranging between 10%-24%, 22%-43%, and 20%-26%, respectively. Return to in-person visits following pandemic onset was variable, ranging from 16% to 74% between centers. Conclusion: Completion of screening investigations varies between CF centers and changes in models of care, such as increased virtual care in response to COVID19 pandemic was associated with reduction in completion of investigations. Centers would benefit from auditing their adherence to standards of care, particularly considering recent changes in care delivery.

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Clinical outcomes of adults and children with cystic fibrosis during the COVID-19 pandemic

Cited by 11 publications

References 29 publications

A year in review (2022): Modulators and COVID19, the story goes on…

A year in review (2022): Modulators and COVID19, the story goes on…

Clinical registries: Not yet perfect, but essential for a high‐functioning health system

Screening for Cystic Fibrosis Related Complications in the Context of a Pandemic and Altered Models of Care

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