Clinical Practice Guidelines: Incorporating Input From a Patient Panel

Goodman, Susan M.; Miller, Amy S.; Turgunbaev, Marat; Guyatt, Gordon; Yates, Adolph J.; Springer, Bryan D.; Singh, Jasvinder A.

doi:10.1002/acr.23275

Cited by 30 publications

(29 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…The recommendations weighed the risk of infection versus the risk of disease flare when medications were withheld, and were informed by the input of a patient panel that placed far greater importance on the risk of infection, concurring with the panel of experts [42]. The collaborators recommend continuing DMARDs, withholding biologics, based on the dose interval, and withholding tofacitinib for 7 days prior to surgery.…”

Section: Infectionmentioning

confidence: 99%

Perioperative medical management for patients with RA, SPA, and SLE undergoing total hip and total knee replacement: a narrative review

Goodman

Bass

2018

BMC Rheumatol

Self Cite

View full text Add to dashboard Cite

Total hip (THA) and total knee arthroplasty (TKA) are widely used, successful procedures for symptomatic end stage arthritis of the hips or knees, but patients with rheumatoid arthritis (RA), systemic lupus erythematosus (SLE), and spondyloarthritis (SPA) including ankylosing spondylitis (AS) and psoriatic arthritis (PSA) are at higher risk for adverse events after surgery. Utilization rates of THA and TKA remain high for patients with RA, and rates of arthroplasty have increased for patients with SLE and SPA. However, complications such as infection are increased for patients with SLE, RA, and SPA, most of whom are receiving potent immunosuppressant medications and glucocorticoids at the time of surgery. Patients with SLE and AS are also at increased risk for perioperative cardiac and venous thromboembolism (VTE), while RA patients do not have an increase in perioperative cardiac or VTE risk, despite an overall increase in VTE and cardiac disease. This narrative review will discuss the areas of heightened risk for patients with RA, SLE, and SPA, and the perioperative management strategies currently used to minimize the risks.

show abstract

Section: Infectionmentioning

confidence: 99%

Perioperative medical management for patients with RA, SPA, and SLE undergoing total hip and total knee replacement: a narrative review

Goodman

Bass

2018

BMC Rheumatol

Self Cite

View full text Add to dashboard Cite

show abstract

“…This is a consensus technique that provides a structured format, ensures participation of all members and achieves ranked results, and has the additional advantage of providing both qualitative and quantitative data [9,10]. Patient research partners within the OMERACT SIG have contributed in the domain selection process, and larger groups of patients have endorsed the proposed TJR outcomes by survey [7,11]. Patient research partners comprise an important critical part of all OMERACT working groups.…”

Section: Introductionmentioning

confidence: 99%

Patients’ perspectives of outcomes after total knee and total hip arthroplasty: a nominal group study

et al. 2020

Self Cite

View full text Add to dashboard Cite

Background: While total joint replacements (TJR) are frequently performed, there is little qualitative research to define the outcomes most important to patients. Methods: Patients who had received total hip (THR) or total knee replacements (TKR) participated in 8 nominal groups to answer the question "What result/results matter the most to a patient undergoing/having a knee or hip replacement?" Total 270 votes were allocated. Results: Eight nominal groups were performed with 45 patients, 6 groups with mean age (71.1 ± 9.3), and 2 with 9 younger patients (mean age 36.8 ± 7.4). All had TJR between 2016 and 2018; overall, 40% were male, 15.6% were Black, and 75% were performed for osteoarthritis. While all groups ranked the same top 3 outcomes, responses varied with age: 1) relief of pain (46% vs. 35% in the young groups); 2) improved function including mobility (29% vs. 18% in the young groups); 3) restored quality of life (13% vs 33% of votes in the younger group). Conclusion: Relief of pain and restoration of function, and improved quality of life are the 3 outcomes ranked highest by patients, confirming their inclusion in TJR clinical trials.

show abstract

“…PD signal of the inferior limbs was absent in almost all cases, even in rarely explored areas, [19,34]. As patients refer to remission as a return to normal state, remission described by patients should involve no subclinical pathology.…”

Section: Discussionmentioning

confidence: 95%

“…However, there is no consensus on the cut-off -VAS<=1 might be too restrictive and there might be discordance between patient VAS and physician VAS. Also patients' age and concurrent diseases might alter patients' opinion regarding their pain [6,8,[17][18][19][20][21]25]. The novelty of our study is the change of the inclusion criterion in the study cohort to one not quantified by a number, but by a general characterization of "return to normal" state.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Does patients’ opinion of remission in rheumatoid arthritis overlap ultrasound “true” remission? – a pilot study

et al. 2018

View full text Add to dashboard Cite

Aim: Patients describe rheumatoid arthritis (RA) remission as the absence of any symptoms or return to normality. Residual ultrasound (US) synovitis was frequently described in remission cohorts in previous studies. US tenosynovitis evaluation and scoring seems to better follow clinical remission scores compared with synovitis in RA. Our objective was to verify the presence of US findings suggestive of persistent inflammation in a cohort of patients in remission according to their own opinion.Materials and methods: Forty-three RA patients were prospectively enrolled in this pilot study between 2015-2017 according to their positive answer to the question “Are you feeling free of symptoms, just like before your RA symptomsstarted?”. Clinical evaluation of tender and swollen joints was performed in the same day with US evaluation of 24 joints and 26 tendon sites and lab C-reactive protein (CRP) evaluation. DAS28-CRP and SDAI were calculated. Results: A total of 72.9% (35 of 43) of patients were in remission per DAS28 criteria. Except for CRP value, no other variables were significantly different in the 35 of 43. PD scoring in tenosynovitis of the ankle and feet was 100% overlapping remission felt by patients. PD tenosynovitis in both upper and lower limbs was found in less than 10% of patients, and only grade 1 (minimal).Conclusion: A combination of patients’ opinion and PDUS evaluation could be a starting point for RA treatment tapering.

show abstract

Clinical Practice Guidelines: Incorporating Input From a Patient Panel

Cited by 30 publications

References 21 publications

Perioperative medical management for patients with RA, SPA, and SLE undergoing total hip and total knee replacement: a narrative review

Perioperative medical management for patients with RA, SPA, and SLE undergoing total hip and total knee replacement: a narrative review

Patients’ perspectives of outcomes after total knee and total hip arthroplasty: a nominal group study

Does patients’ opinion of remission in rheumatoid arthritis overlap ultrasound “true” remission? – a pilot study

Contact Info

Product

Resources

About