Clinical psychologists' attitudes towards the biology and ‘new genetics’ of intellectual and developmental disabilities: a pilot study using Q‐methodology

Hare, Dougal Julian; Vahey, C.; Walker, Samantha; Wittkowski, Anja

doi:10.1111/jir.12261

Cited by 4 publications

(2 citation statements)

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“…The value of clinical genetic diagnostics is often – in our experience here in the Netherlands – an agenda item discussed during multidisciplinary (child and adolescent) psychiatry consultations (Hare et al , 2016) or during visits with the parents of a child (who may be adolescent or adult) with an ID (Makela et al , 2009). It may also come into question during sessions with married couples with IDs who want to have children and who have been invited to talk about the potential heritability of their own intellectual disabilities.…”

Section: Introductionmentioning

confidence: 99%

“…We could ask whether clinical genetic diagnostics adds any value to the patient’s treatment. Here, we attempt to answer this question by showing that clinical genetic diagnostics can be approached in a client-centred way in an attempt to convince psychologists (Hare et al , 2016), psychiatrists, neurologists, and others (Jaitovich Groisman et al , 2017), of the value of this approach.…”

Section: Introductionmentioning

confidence: 99%

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Client-centred clinical genetic diagnostics

Otter¹,

Stumpel

Amelsvoort

2018

AMHID

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Purpose The purpose of this paper is to establish the value of clinical genetic diagnostics in the lives of people with an intellectual disability (ID), their families, and their primary and professional caregivers. It has been shown that psychologists are more likely to make use of the opportunities offered by clinical genetic diagnostics if they have seen the psychological benefits in their own practice. Moreover, this paper aims to promote the practice of informing people with ID, their families, and other caregivers regarding the current technological advances in genetic diagnostics, thereby allowing these patients to decide for themselves whether to utilise these opportunities. Design/methodology/approach The authors report four case studies in which the psychosocial value to each patient is pivotal. Findings In these four cases, it is clear the medical model can augment the social model by providing an interpretation of its meaningfulness in the lives of the people concerned. Research limitations/implications Case studies alone can have limited scientific significance. This approach examining the significance of clinical genetic diagnosis should be studied further in larger groups. Practical implications It is hoped that psychologists and other professional caregivers will become enthused about the value of clinical genetic diagnostics and will choose to discuss the option of referral for clinical genetic diagnostics with their patients more often. Social implications People with an ID who are seeking mental health care, and their caregivers, should be given the opportunity to take part in the decision regarding whether to use clinical genetic diagnostics, which may even have a destigmatising effect. Originality/value Quality of life may improve for people with an ID seeking mental healthcare and for their caregivers as well by opening up discussion regarding the opportunities presented by clinical genetic diagnostics. The fact that people are able to make their own choices based on their own considerations can have a destigmatising effect.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%