Clinician perspectives on the need for training on caring for pregnant women with intellectual and developmental disabilities

Amir, Nili; Smith, Lauren; Valentine, Anne; Mitra, Monika; Parish, Susan L.; Simas, Tiffany A. Moore

doi:10.1016/j.dhjo.2021.101262

Cited by 11 publications

(2 citation statements)

References 38 publications

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“…For example, there is a feeling among WWD that providers are not receiving adequate training regarding the unique concerns of WWD, and this creates stigma regarding pregnancy among maternal providers [27,28]. Studies interviewing obstetric care providers have found evidence of this lack of training in a number of locations [28][29][30]. Many maternal providers in India are trained or employed directly by the government [31].…”

Section: Discussionmentioning

confidence: 99%

Maternal healthcare use by women with disabilities in Rajasthan, India: a secondary analysis of the Annual Health Survey

Casebolt,

Singh,

Speizer

et al. 2023

matern health, neonatol and perinatol

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Background Women with disabilities face a number of barriers when accessing reproductive health services, including maternal healthcare. These include physical inaccessibility, high costs, transportation that is not accessible, negative attitudes from family and healthcare providers, and a societal belief people with disabilities shouldn’t be parents. While qualitative studies have uncovered these barriers, there is limited quantitative research to determine their effect on use of maternal health services. This study aims to analyze associations between disability and maternal healthcare use among married women in Rajasthan. Methods This study is a secondary analysis of the Indian Annual Heath Survey first wave data from 2011. The sample includes 141,983 women aged 15–49 who had given birth between 2007 and 2009. Logistic regression was used to assess the association between disability and use of antenatal, delivery, and postnatal care. Stratified models were created to analyze difference based on birth order of the pregnancy and whether the woman’s place of residence is rural or urban. Results The prevalence of disability was 1.23%. Attending at least three antenatal care visits was reported by 50.66% of the sample, skilled delivery use by 83.81%, and receiving postnatal care within 48 h of birth by 76.02%. In the regression model, women with disabilities were less likely to report attending the minimum antenatal care visits (OR = 0.84; CI: 0.76, 0.92). No association was found between disability and skilled delivery or postnatal care. Once the sample was stratified by birth order, women with disabilities reporting their first birth were more likely to report receiving postnatal care than women without disabilities (OR = 1.47; CI: 1.13, 1.91). Conclusion Additional research is needed to determine use of maternal healthcare among women with disabilities in India. Maternal services need to be assessed to determine their accessibility, especially regarding recent laws requiring accessibility.

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Section: Discussionmentioning

confidence: 99%

Maternal healthcare use by women with disabilities in Rajasthan, India: a secondary analysis of the Annual Health Survey

Casebolt,

Singh,

Speizer

et al. 2023

matern health, neonatol and perinatol

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“…Prior experience treating patients with IDD can be a tremendous asset, as can non-clinical contact opportunities, holistic clinician education, and consultations among medical colleagues and health professionals [7,[11][12][13]]. Yet, problematic consequences are commonly observed when clinicians or other medical professionals are ill-equipped to manage behavioral challenges presented by some patients with IDD [14][15][16]. Clinicians unaware of behavioral dimensions of some IDD conditions may misinterpret unusual actions or habits as "patient noncompliance".…”

Section: Introductionmentioning

confidence: 99%

The Curriculum in IDD Healthcare (CIDDH) eLearn Course: Evidence of Continued Effectiveness Using the Streamlined Evaluation and Analysis Method (SEAM)

Bartkowski,

Xu,

Klee

2024

Knowledge

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Medical professionals are rarely trained to treat the unique healthcare needs and health disparities of people with intellectual and developmental disabilities (IDD). The Curriculum in IDD Healthcare (CIDDH) eLearn course aims to redress gaps in the delivery of medical care to people with IDD. An initial comprehensive evaluation of CIDDH in-person training content had previously underscored its knowledge and skill transfer efficacy for Mississippi healthcare providers. Training content has recently become available to medical professionals nationwide through an online self-paced modality to address physicians’ IDD education needs. This study introduces and applies a new evaluation framework called SEAM (Streamlined Evaluation and Analysis Method) that offers a promising avenue for rendering a follow-up appraisal after rigorous evidence of program effectiveness has been previously established. SEAM reduces the data-reporting burden on trainees and maximizes instructor–trainee contact time by relying on an abbreviated post-only questionnaire focused on subjective trainee appraisals. It further reduces methodological and analytical complexity to enhance programmatic self-assessment and facilitate sound data interpretation when an external evaluator is unavailable. Ratings from a small sample of early-cohort trainees provide an important test of effectiveness during CIDDH’s transition to online learning for clinicians nationwide. Using SEAM, CIDDH achieved high ratings from this initial wave of trainees across various evaluative domains. The study concludes by highlighting several promising implications for CIDDH and SEAM.

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Integrating Neurodiversity and Disability Rights into Primary Care Practices

Hotez,

Rava,

Williams

et al. 2024

Care of Adults With Chronic Childhood Conditions

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Clinician perspectives on the need for training on caring for pregnant women with intellectual and developmental disabilities

Cited by 11 publications

References 38 publications

Maternal healthcare use by women with disabilities in Rajasthan, India: a secondary analysis of the Annual Health Survey

Maternal healthcare use by women with disabilities in Rajasthan, India: a secondary analysis of the Annual Health Survey

The Curriculum in IDD Healthcare (CIDDH) eLearn Course: Evidence of Continued Effectiveness Using the Streamlined Evaluation and Analysis Method (SEAM)

Integrating Neurodiversity and Disability Rights into Primary Care Practices

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