Co-design of a TV-based home support for early stage of dementia

Cortellessa, Gabriella; Fracasso, Francesca; Umbrico, Alessandro; Cesta, Amedeo; Dionisio, Pietro; Ciucci, Lorenzo; Guardo, Fabrizio Di; Tamburini, Elena; Pérez, Miguel Á.; Herrero, Javier; Triantafyllidou, Valentina; Dewarrat, Rodolphe; Boghiu, Flavia; Barnestein-Fonseca, Pilar; Goodman‐Casanova, Jessica Marian; Mayoral, Fermín

doi:10.1007/s12652-020-01823-4

Cited by 6 publications

(4 citation statements)

References 35 publications

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“…Carer design ideas also advocated for the use of technology that was familiar to the PLWD, such as televisions as opposed to handheld touchscreen devices. The television represents a major source of entertainment and information for PLWD [ 39 ] and could be leveraged by future technology as the platform for remote social interactions. Carers also expressed a vision for the television (versus smaller handheld devices) to be used as a platform for social interactions.…”

Section: Discussionmentioning

confidence: 99%

Technology for dementia care: what would good technology look like and do, from carers’ perspectives?

Brookman,

Parker,

Hoon

et al. 2023

BMC Geriatr

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Background The development of technology in dementia care has largely been without consultation with carers, and has primarily focused on safety, monitoring devices, and supporting activities of daily living. Further, while involving end-users in the design of technology has been recommended, this is yet to become common practice. Method We conducted a mixed methods study with the aim of investigating carers’ values and priorities for technology development, including prior experiences, barriers to use, and what they would like technology to do. Importantly, we asked carers for their design ideas and bespoke technology solutions for future development. Results Carers of people living with dementia (N = 127), including both unpaid (n = 102) and paid carers (n = 25) residing in Australia, completed an online survey. In addition, a subsample of carers (n = 23) participated in semi-structured interviews. Findings demonstrate that carers want technology to be person-centred, customisable, and to increase opportunities for meaningful social connection. Findings also demonstrate the ability of carers to generate creative design solutions for dementia care. Conclusions These findings and implications will be discussed in relation to the importance of co-design with carers and engineers during the design phase of assistive technology. Also, the importance of technology to enhance, not replace, human-to-human social interactions is highlighted.

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Section: Discussionmentioning

confidence: 99%

Technology for dementia care: what would good technology look like and do, from carers’ perspectives?

Brookman,

Parker,

Hoon

et al. 2023

BMC Geriatr

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“…The ways in which such approaches are used varies considerably in terms of participants, process and depth of collaboration. Some studies use relatively complex, iterative processes of multiple workshops throughout the design phase (Botero and Hyysalo, 2013;Ventura and Talamo, 2016;Leslie et al, 2019), whilst others engage in narrower, more targeted discussions to develop specifications (Cortellessa et al, 2021;Ferguson et al, 2020) or examine specific items of existing technology (Castro et al, 2020). The workshops themselves use different techniques, ranging from relatively formal focus group discussions (Leslie et al, 2019) to more innovative engagement approaches, such as using storyboards to stimulate discussion (Wherton et al, 2015).…”

Section: Resultsmentioning

confidence: 99%

“…Techniques such as walking interviews can be valuable in exploring needs in real-world situations (Brookfield et al, 2020). Similarly, more conventional interviews are likely to be more effective in understanding needs, strengths and specific issues to do with the use of technology when they are located in older people's homes, or other relevant contexts (Greenhalgh et al, 2013(Greenhalgh et al, , 2015Mort et al, 2013), and the same is true for testing prototype devices (Cortellessa et al, 2021). Moreover, for older people to engage in co-production of specific technological solutions, it is useful to be able to try out the devices, rather than discussing them in the abstract (Wilson et al, 2012;Wherton et al, 2015;Astell et al, 2021).…”

Section: Structure and Methodsmentioning

confidence: 99%

What works in co-producing assistive technology solutions with older people: a scoping review of the evidence

et al. 2023

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Assistive technology for older people promises much, but the research evidence suggests that it delivers little. One hypothesis to explain the lack of positive impact is that assistive technology is often implemented with little involvement of older people or other stakeholders, such as family members or care staff. The suggestion is that co-production may ensure that assistive technology solutions are better tailored to people's needs, capacities and living situations. In this article, we review existing studies to examine what works in co-production in relation to processes of design and implementation of assistive technology for older people. Our results show a growing interest in co-production as an approach in this field, with a wide range of approaches being employed. We highlight a number of key lessons from the research, including key issues around who needs to be engaged in the co-production, as well as essential elements of the process itself. Our review suggests that there is considerable potential in using co-production to improve effectiveness of technological solutions to the challenges of age-related impairments. However, we also emphasise the need for more longitudinal research in this area, to examine whether such collaborative approaches can truly deliver the promise of assistive technology for older people.

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“…As interest in co-designing with people with dementia continues to grow, some guidelines have emerged when conducting co-design sessions ( 47 ). Nonetheless, very little research directly involves people with MCI or clinical/therapeutic practitioners ( 48 ), with very little research recruiting early-stage dementia patients ( 49 ). In addressing this research gap, this study aims to enable people with MCI to engage in co-design sessions to express their feelings and ideas, creating a collective, entertaining design context wherein they can apply their knowledge.…”

Section: Introductionmentioning

confidence: 99%

Digital storytelling intervention to enhance social connections and participation for people with mild cognitive impairment: a research protocol

Zhu,

Al Mahmud,

Liu

2023

Front. Psychiatry

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IntroductionInterventions utilizing the principles of digital storytelling can improve cognitive ability by cultivating positive emotions and framing a new way to enhance social participation among people with mild cognitive impairment. However, existing research has understudied group-based storytelling, focusing instead on building individual stories and connections with family and friends. In response to this research gap, this paper proposes co-designing a digital storytelling intervention for people with Mild Cognitive Impairment (MCI) to enhance their social participation and build meaningful connections.MethodsWe will conduct two co-design workshops with people with MCI (n = 12), their caregivers (n = 4–12), and therapists (n = 5) in Beijing, China, to facilitate the co-development of the digital storytelling application. During the first workshop, we will utilize card sorting and voting to define potential facilitators of social participation, identifying the abilities people with MCI want to improve through storytelling. During the second workshop, we will build on these findings to facilitate people with MCI and their caregivers to visualize the interfaces. After reflexive thematic analysis of the co-design workshops, we will develop a digital storytelling application and test its usability and efficacy among people with MCI and therapists, respectively. A single-blinded field test will be conducted with 20 community-dwelling adults with MCI (Age: 65+). The testing will consist of an intervention group of 10 participants who use the co-designed digital storytelling intervention and a control group of 10 participants who will not use the co-designed intervention on the waiting list. The intervention period will extend over 7 weeks, with individual intervention sessions lasting 30 min. We will evaluate its efficacy in terms of social participation, social connectedness, self-efficacy, subjective sense of happiness, and user experience of people with MCI.DiscussionThis study will examine an innovative digital storytelling intervention to enhance social participation among people with MCI. This study is expected to advance the concept of community-centric social groups in social health service contexts by integrating technological solutions with the self-identified needs and lived experiences of people with MCI, increasing the motivation of people with MCI to cultivate social participation.Ethics and disseminationSwinburne University of Technology’s Human Research Ethics Committee gave ethics approval for this research (Approval Number: 20226525-11105; Date: 26/09/2022). Our findings shall be reported in peer-reviewed journal articles and at relevant conferences.

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Co-design of a TV-based home support for early stage of dementia

Cited by 6 publications

References 35 publications

Technology for dementia care: what would good technology look like and do, from carers’ perspectives?

Technology for dementia care: what would good technology look like and do, from carers’ perspectives?

What works in co-producing assistive technology solutions with older people: a scoping review of the evidence

Digital storytelling intervention to enhance social connections and participation for people with mild cognitive impairment: a research protocol

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