Co-research with People with Mental Health Challenges

Spies, Rebecca; Ennals, Priscilla; Egan, Rebecca; Hemus, Philippa; Droppert, Kathryn; Tidhar, Michael; Simmons, Magenta; Bendall, Sarah; Wood, Tom; Lessing, Kate

doi:10.1007/978-3-030-48277-0_138-1

Cited by 1 publication

(5 citation statements)

References 33 publications

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“…Spies et al (2022aSpies et al ( , 2022bSpies et al ( , 2022c findings were reinforced by the outcomes of the current study, which found that young people valued the supportive role that the RFUP played in facilitating positive relationships with their workers. Furthermore, the findings of this study support outcomes described by the YYRs report that young people learn to become experts of themselves via valuing diverse knowledge (Spies et al, 2022a(Spies et al, , 2022b(Spies et al, , 2022c. The RFUP, by valuing the young persons' own expertise and knowledge, facilitates a process whereby young people gain a deeper understanding of themselves.…”

Section: " [P2]supporting

confidence: 67%

“…Capability of the other researchers in the team was also enhanced through increasing understanding of appropriate language, accessibility of languagefor example use of acronymsand challenging unconscious bias. "Co-research builds the capacity of researchers to listen, and to understand the personal and systemic barriers that prevent diverse voices from being heard" (Byrne and Wykes, 2020, as cited in Spies et al, 2022aSpies et al, , 2022bSpies et al, , 2022c. Co-research is a generative approach that values and builds the knowledge and expertise of consumers and researchers alike (Slay and Stephens, 2013;Roper et al, 2018; as cited in Spies et al, 2022aSpies et al, , 2022bSpies et al, , 2022c.…”

Section: Methodsmentioning

confidence: 99%

“…The service setting of the study reported that numerous young people have co-occurring mental health and AOD issues (Spies et al, 2022a(Spies et al, , 2022b(Spies et al, , 2022c. The service assists service users to explore their substance use from a position of positive regard (Spies et al, 2022a(Spies et al, , 2022b(Spies et al, , 2022c. This study aimed to use qualitative methods and co-design principles to gain an in-depth understanding of consumer experiences.…”

Section: Background Of the Reasons For Use Package Development And Tr...mentioning

confidence: 99%

“…A recent report describing the practice approach and outcomes for the MHCSS's YRR service (Spies et al, 2022a(Spies et al, , 2022b(Spies et al, , 2022c highlighted the importance of relational factors between young people and workers. Spies et al (2022aSpies et al ( , 2022bSpies et al ( , 2022c findings were reinforced by the outcomes of the current study, which found that young people valued the supportive role that the RFUP played in facilitating positive relationships with their workers. Furthermore, the findings of this study support outcomes described by the YYRs report that young people learn to become experts of themselves via valuing diverse knowledge (Spies et al, 2022a(Spies et al, , 2022b(Spies et al, , 2022c.…”

Section: " [P2]mentioning

confidence: 99%

“…A limitation of the co-design is thatdespite two peer researchers recruited to be involvedat most stages of the research process there was only one consumer LE voice actively involved. Involving multiple consumer perspectives would enhance future projects to ensure diverse representation (Spies et al, 2022a(Spies et al, , 2022b(Spies et al, , 2022c.…”

Section: Limitationsmentioning

confidence: 99%

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Coproduction in evaluating a dual diagnosis tool with youth in a residential mental health service

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Purpose The purpose of this study was to utilise a lived experience (LE) informed/co-designed approach to explore the service-user experience of using the reasons for use package (RFUP) within a youth residential rehabilitation mental health setting. Design/methodology/approach LE researchers (those who have lived through mental illness or distress), Master of social work students, a community of mental health service manager, community of mental health researchers, dual diagnosis service researchers and university-based researchers collaborated on the project. The study used an exploratory, qualitative approach of semi-structured interviews to invite young people's experiences of the resource. The research team conducted a collaborative thematic analysis drawing on the range of perspectives. Findings Through five interviews with young people, key themes identified included: client factors and extra-therapeutic events, relationship factors, technique/model factors/delivery and outcomes/things noticed. Practical implications The RFUP was a useful clinical tool with the young people in this pilot as it improved awareness of reasons for drug use and impact on mental health, service user to staff relationship, quality of the resource, mode of delivery and participant self-knowledge. Originality/value Young people valued the supportive role that the RFUP played in facilitating positive relationships with their workers.

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