Cocreating research priorities for anorexia nervosa: The Canadian Eating Disorder Priority Setting Partnership

Obeid, Nicole; McVey, Gail; Seale, Emily; Preskow, Wendy; Norris, Mark L.

doi:10.1002/eat.23234

Cited by 24 publications

(26 citation statements)

References 24 publications

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“…This study represents the first controlled evaluation of integrated psychotherapy for ED-PTSD, which has been identified as a research priority in EDs (Obeid, McVey, Seale, Preskow, & Norris, 2020;Rijkers et al, 2019;Van Furth, van der Meer, & Cowan, 2016). We found strong evidence for the efficacy of integrated CBT for ED-PTSD in improving PTSD, in that the treatment led to large magnitude improvements in PTSD, and a higher rate of PTSD remission, relative to standard CBT for ED at EoT, with improvements maintained over 6-month follow-up.…”

Section: Discussionmentioning

confidence: 65%

Results of the first randomized controlled trial of integrated cognitive-behavioral therapy for eating disorders and posttraumatic stress disorder

et al. 2021

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Background Eating disorders (EDs) and posttraumatic stress disorder (PTSD) frequently co-occur and can share a functional relationship. The primary aim of this initial randomized controlled trial was to determine whether integrated cognitive-behavioral therapy (CBT) for co-occurring ED-PTSD was superior to standard CBT for ED in improving PTSD symptoms. Intervention safety and desirability, as well as the relative efficacy of the treatments in improving anxiety, depression, and ED symptomatology, were also examined. Methods Following a course of intensive ED treatment, individuals with ED-PTSD were recruited to participate and randomized to integrated CBT for ED-PTSD or standard CBT for ED. The sample consisted of 42 individuals with a range of ED diagnoses. Outcomes were assessed at end-of-treatment, 3-, and 6-month follow-up using interview and self-report measures. Results Mixed models revealed significant interactions of time and therapy condition on clinician-rated and self-reported PTSD symptom severity favoring Integrated CBT for ED-PTSD. Both treatments were associated with statistically significant improvements in PTSD, anxiety, and depression. Improvements were maintained at 3- and 6-month follow-up. There was good safety with both interventions, and satisfaction with both treatments was high. However, there was a stronger preference for integrated treatment. Conclusions Integrating CBTs for PTSD and ED following intensive ED treatment is safe, desirable, and efficacious for improving PTSD symptoms. Future studies with larger sample sizes are needed to determine whether Integrated CBT for ED-PTSD provides benefits over standard CBT for ED with respect to ED outcomes.

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Section: Discussionmentioning

confidence: 65%

Results of the first randomized controlled trial of integrated cognitive-behavioral therapy for eating disorders and posttraumatic stress disorder

et al. 2021

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“…Finally, we have also seen the involvement of lived experience in research and co-design, specifically with regards to setting future research agendas (Obeid et al , 2020; Sharpe et al , 2013).…”

Section: Introductionmentioning

confidence: 99%

From prevention to peer support: a systematic review exploring the involvement of lived-experience in eating disorder interventions

Lewis¹,

Foye

2021

MHRJ

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Purpose The current policy landscape advocates for the involvement of people with lived experience in the co-production and co-delivery of mental health services. However, evidence on how to do this safely and effectively for people with eating disorders (EDs) is lacking. The purpose of this study was to explore and synthesis the implementation of ED interventions which involved lived-experience and to evaluate the associated benefits and risks to participants. Design/methodology/approach This study will conduct a systematic review of ED interventions which involve people with lived experience of an ED. A total of seven databases and four subject-specific journals were searched using Boolean search terms. Findings The search yielded ten eligible studies. Involvement procedures were extracted which highlighted variation with some roles being continuous and active and others being isolated and passive. Qualitative results were extracted and thematically analysed which demonstrated many benefits from involving people with lived experience, such as normalisation of experiences, inspiration to recover and the sharing of insight, as well as some risks such as disingenuity and exposure to triggering content. Practical implications The implications of this review highlight the need for policy and guidance to minimise variation across procedures and implementation of co-production to ensure positive outcomes and benefits for participants, given the current landscape. More research in the benefits and risks for those involved in the delivery of the interventions is needed to ensure that co-production and peer support is delivered as safely and effectively as possible. Originality/value This was the first systematic review since 2016 (Fogarty et al., 2016) to assess peer-mentorship programmes in ED treatments, whilst expanding the remit to include wider definitions of peer-support and peer-mentorships such as co-production and co-design in research.

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“…There have been an increasingly awareness of the challenge's patients have in the transition process between CAMHS and AMHS. Based on equal input from relatives, professionals, and the patients, the Canadian Eating Disorder Priority Setting Partnership has prioritized research topics for female patients with AN [22]; they identified that one of the top priorities relates to gaps in treatment, suggesting that research should focus on the transition between services. "Integrated care" have also been identified by clinicians and service users, as a research priority in an Australian setting [23].…”

Section: Introductionmentioning

confidence: 99%

Experiences of patients with anorexia nervosa during the transition from child and adolescent mental health services to adult mental health services

Lockertsen

Nilsen

Holm³

et al. 2020

J Eat Disord

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Background: The transition between the Child and Adolescent Mental Health Services (CAMHS) and the Adult Mental Health Services (AMHS) is identified as an especially critical time for the continuity of care for patients with anorexia nervosa (AN). However, research on this topic is scarce. In the present study, we explore the patients' experiences of the transition between CAMHS and AMHS. Methods: A qualitative explorative study was carried out based on recorded interviews from one multi-step focus group and six individual interviews with patients who experienced the transition from CAMHS to AHMS in Norway. This study is service user-initiated, meaning service users were involved in all steps of the research process. Results: The adolescents' experiences are characterized by four overall themes regarding the transition process between CAMHS and AMHS: (1) "Being unprepared and alone in the transition process" describes how a lack of preparation for the transition between CAMHS and AMHS makes them feel alone and increases stress. (2) "It takes time to create a trusting relationship" describes how time influences patients' trust in therapists and motivation for treatment. (3) "We are not all the same" describes how adolescents develop differently but are not treated differently despite their diverse ability to be self-sufficient. (4) "How they see me and treat me affects my hope for the future" describes the interaction between adolescents and therapists. Conclusions: Acknowledging the patients' needs during the transition period and considering their readiness for the transition is important. Taking into account the four dimensions described in the present study might improve the transition process and enhance the patients' self-sufficiency and maturity.

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Cocreating research priorities for anorexia nervosa: The Canadian Eating Disorder Priority Setting Partnership

Cited by 24 publications

References 24 publications

Results of the first randomized controlled trial of integrated cognitive-behavioral therapy for eating disorders and posttraumatic stress disorder

Results of the first randomized controlled trial of integrated cognitive-behavioral therapy for eating disorders and posttraumatic stress disorder

From prevention to peer support: a systematic review exploring the involvement of lived-experience in eating disorder interventions

Experiences of patients with anorexia nervosa during the transition from child and adolescent mental health services to adult mental health services

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