Codesigning a Measure of Person-Centred Coordinated Care to Capture the Experience of the Patient

Abstract

Background:Person-centred coordinated care (P3C) is a priority for stakeholders (ie, patients, carers, professionals, policy makers). As a part of the development of an evaluation framework for P3C, we set out to identify patient-reported experience measures (PREMs) suitable for routine measurement and feedback during the development of services.Methods:A rapid review of the literature was undertaken to identity existing PREMs suitable for the probing person-centred and/or coordinated care. Of 74 measures identified, 7 met our inclusion criteria. We critically examined these against core domains and subdomains of P3C. Measures were then presented to stakeholders in codesign workshops to explore acceptability, utility, and their strengths/weaknesses.Results:The Long-Term Condition 6 questionnaire was preferred for its short length, utility, and tone. However, it lacked key questions in each core domain, and in response to requests from our codesign group, new questions were added to cover consideration as a whole person, coordination, care plans, carer involvement, and a single coordinator. Cognitive interviews, on-going codesign, and mapping to core P3C domains resulted in the refinement of the questionnaire to 11 items with 1 trigger question. The 11-item modified version was renamed the P3C Experiences Questionnaire.Conclusions:Due to a dearth of brief measures available to capture people’s experience of P3C for routine practice, an existing measure was modified using an iterative process of adaption and validation through codesign workshops. Next steps include psychometric validation and modification for people with dementia and learning difficulties.

Longitudinal evaluation of a countywide alternative to the Quality and Outcomes Framework in UK General Practice aimed at improving Person Centred Coordinated Care

“…The P3C-Patient Experience Questionnaire (P3C-EQ) is a brief, 11-item patient-completed measure of patient experiences of P3C delivery, which we have previously validated 32 38 39. The tool can be used to generate an aggregate score of patient experience,32 with a range of score from 0 to 30, where a higher score indicates better experiences of care 39. It can also be subscored to previously described subdomains of P3C 23 32 34–37…”

Different Contexts, Similar Challenges. SUSTAIN’s Experiences with Improving Integrated Care in Europe

“…In SUSTAIN, we used the innovative Person Centred Coordinated Care Experience Questionnaire (P3CEQ) instrument which has explicitly been developed to measure the experiences of people with long-term conditions (e.g. older people with complex needs) with integrated care delivery [27]. Not withstanding its merits, we also encountered some challenges using this instrument that illustrate the complexity of capturing the voice of vulnerable target groups concerning complex constructs which are described in the paper by Reynolds et al [14].…”

Advancing integrated care evaluation in shifting contexts: Blending implementation research with case study design in Project SUSTAIN.

“…With this in mind and after much deliberation within the SUSTAIN consortium, we selected the P3CEQ [39] [ 40] , and the PCHC [41] , the latter validated for our population group. At the time of selection, the P3CEQ was relatively new but seemed suitable for administration across all sites and intervention types.…”