Cognitive Testing of PAINReportIt in Adult African Americans With Sickle Cell Disease

Jha, Aruna; Suarez, Marie L.; Ferrans, Carol Estwing; Molokie, Robert E.; Kim, Young Ok; Wilkie, Diana J.

doi:10.1097/ncn.0b013e3181d7820b

Cited by 45 publications

(68 citation statements)

References 34 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Included in the PAIN Report It ® is a computerized version of the McGill Pain Questionnaire (MPQ) (Melzack, 1975), a well validated multidimensional tool that measures pain location, intensity, quality, and pattern, all of which contribute to the CPI. PAIN Report It ® was recently validated in a SCD sample from another study (Jha et al, 2010). …”

Section: Methodsmentioning

confidence: 99%

Perceived Injustice Predicts Stress and Pain in Adults with Sickle Cell Disease

Ezenwa¹,

Molokie²,

Wilkie³

et al. 2015

Pain Management Nursing

Self Cite

View full text Add to dashboard Cite

Background Research evidence shows that perceived injustice is a context-based unfair treatment that has negative influence on health outcomes. Aims We examined the contribution of patients’ perceived injustice regarding interactions with healthcare providers to stress and pain in adults with sickle cell disease (SCD). Design This study was a cross-sectional correlational pilot study. Setting Included in the study were adults with SCD who received their care from a university-affiliated Comprehensive Sickle Cell Clinic. Participants/Subjects Participants were 52 adults whose mean age was 34 ±11 years (minimum [min] 20 years, maximum [max] 70 years). Most of the patients were African Americans (n = 48, 92%) and female (n = 41, 79%). Forty-eight patients (92%) reported having a high school diploma or higher. Methods Participants completed the perceived injustice questionnaire, perceived stress questionnaire, and the PAINReportIt, which includes questions to measure pain and demographics. We analyzed the data using the linear regression analyses. Results Perceived injustice from doctors was a significant predictor of perceived stress, p<.001 and pain, p=.002. Perceived injustice from nurses also was a significant predictor of perceived stress, p<.001 and pain, p=.02. The procedural, distributive, and informational domains of perceived injustice attributed to both doctors and nurses consistently predicted patients’ perceived stress, but only the procedural and distributive domains of perceived injustice consistently predicted patients’ pain. Conclusions Findings suggest that perceived injustice was negatively associated with stress and pain in adults with SCD and warrant further investigation in a larger sample.

show abstract

Section: Methodsmentioning

confidence: 99%

Perceived Injustice Predicts Stress and Pain in Adults with Sickle Cell Disease

Ezenwa¹,

Molokie²,

Wilkie³

et al. 2015

Pain Management Nursing

Self Cite

View full text Add to dashboard Cite

show abstract

“…PAIN Report It contains a computerized version of the McGill Pain Questionnaire (MPQ), a multidimensional tool that measures pain location, intensity, quality, and pattern that has been well validated (17). We recently validated PAIN Report It in a different SCD sample (11). Using pen-tablet computers, we provided patients uniform directions and practice before they completed questionnaire items by touching the screen either with a stylus or with a keyboard and mouse.…”

Section: Methodsmentioning

confidence: 99%

“…The average score also ranges from 0 to 10. The average pain intensity score has been validated in the SCD population (11). …”

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

Outpatient Pain Predicts Subsequent One-Year Acute Health Care Utilization Among Adults With Sickle Cell Disease

Ezenwa

Molokie

Wang

et al. 2014

Journal of Pain and Symptom Management

Self Cite

View full text Add to dashboard Cite

Context Patient demographic and clinical factors have known associations with acute health care utilization (AHCU) among patients with sickle cell disease (SCD), but it is unknown if pain measured predominantly in an outpatient setting is a predictor of future AHCU in patients with SCD. Objectives To determine whether multidimensional pain scores obtained predominantly in an outpatient setting predicted subsequent one-year AHCU by 137 adults with SCD and whether the pain measured at a second visit also predicted AHCU. Methods Pain data included the Composite Pain Index (CPI), a single score representative of a multidimensional pain experience (number of pain sites, intensity, quality, and pattern). Based on the distribution of AHCU events, we divided patients into three groups: (1) zero events (Zero), (2) 1–3 events (Low), or (3) 4–23 events (High). Results The initial CPI scores differed significantly by the three groups (F(2,134)=7.38, P=0.001). Post hoc comparisons showed that the Zero group had lower CPI scores than both the Low group (P<0.01) and the High group (P<0.001). In multiviariate, overdispersed Poisson regression analyses, age, and CPI scores (at both measurement times) were statistically significant predictors of utilization events. Pain intensity scores at both measurement times were significant predictors of utilization, but other pain scores (number of pain sites, quality, and pattern) were not. Conclusion Findings support use of outpatient CPI scores or pain intensity and age to identify at-risk young adults with SCD who are likely to benefit from improved outpatient pain management plans.

show abstract

“…Cognitive interviewing is an approach to better understand how the participant formulates a response to the subject matter of each item or topic and is useful to reveal problems (Jha et al, 2010; Knafl et al, 2007; Strack & Martin, 1987; Tourangeau, 1987; Tourangeau & Raskinski, 1988). Ultimately, cognitive interviewing findings can improve information gained from questionnaires and improve the quality of data collected as well as refine an intervention.…”

Section: Methodsmentioning

confidence: 99%

Evaluation of the SCKnowIQ Tool and Reproductive CHOICES Intervention Among Young Adults With Sickle Cell Disease or Sickle Cell Trait

et al. 2013

Self Cite

View full text Add to dashboard Cite

The study purpose was to evaluate a computer-based questionnaire (SCKnowIQ) and CHOICES educational intervention using cognitive interviewing with childbearing-aged people with sickle cell disease (SCD) or trait (SCT). Ten control group participants completed the SCKnowIQ twice. Ten intervention group participants completed the SCKnowIQ before and after the CHOICES intervention. Most participants found the questionnaire items appropriate and responded to items as the investigators intended. Participants’ responses indicated that the information on SCD and SCT and reproductive options was understandable, balanced, important, and new to some. Internal consistency and test-retest reliability were adequate (.47 to .87) for 4 of the 6 scales, with significant within-group changes in knowledge scores for the intervention group but not for the control group. Findings show evidence for potential efficacy of the intervention, but proof of efficacy requires a larger randomized study.

show abstract

Cognitive Testing of PAINReportIt in Adult African Americans With Sickle Cell Disease

Cited by 45 publications

References 34 publications

Perceived Injustice Predicts Stress and Pain in Adults with Sickle Cell Disease

Perceived Injustice Predicts Stress and Pain in Adults with Sickle Cell Disease

Outpatient Pain Predicts Subsequent One-Year Acute Health Care Utilization Among Adults With Sickle Cell Disease

Evaluation of the SCKnowIQ Tool and Reproductive CHOICES Intervention Among Young Adults With Sickle Cell Disease or Sickle Cell Trait

Contact Info

Product

Resources

About