Cohort Profile: Scottish Health and Ethnicity Linkage Study of 4.65 million people exploring ethnic variations in disease in Scotland

Bhopal, Raj; Fischbacher, Colin; Povey, C.; Chalmers, Jim; Mueller, Ganka; Steiner, Markus; Brown, Helen; Brewster, David H.; Bansal, Narinder

doi:10.1093/ije/dyq118

Cited by 53 publications

(71 citation statements)

References 11 publications

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“…The methods have previously been described 8. Full ethical and other approvals for the linkage, data security and analyses were granted by the Scottish Multicentre Ethics Committee and the Privacy Advisory Committee of NHS National Services Scotland.…”

Section: Methodsmentioning

confidence: 99%

Life expectancy of different ethnic groups using death records linked to population census data for 4.62 million people in Scotland

Gruer

Cézard

Clark

et al. 2016

J Epidemiol Community Health

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BackgroundFew countries record the data needed to estimate life expectancy by ethnic group. Such information is helpful in assessing the extent of health inequality.MethodLife tables were created using 3 years of deaths (May 2001–April 2004) linked to Scottish 2001 Census data for 4.62 million individuals with self-reported ethnicity. We created 8 ethnic groups based on the census definitions, each with at least 5000 individuals and 40 deaths. Life expectancy at birth was calculated using the revised Chiang method.ResultsThe life expectancy of White Scottish males at birth was 74.7 years (95% CI 74.6 to 74.8), similar to Mixed Background (73.0; 70.2 to 75.8) and White Irish (75.0; 74.0 to 75.9), but shorter than Indian (80.9; 78.4 to 83.4), Pakistani (79.3; 76.9 to 81.6), Chinese (79.0; 76.5 to 81.5), Other White British (78.9; 78.6 to 79.2) and Other White (77.2; 76.4 to 78.1). The life expectancy of White Scottish females was 79.4 years (79.3 to 79.5), similar to mixed background (79.3; 76.6 to 82.0), but shorter than Pakistani (84.6; 82.0 to 87.3), Chinese (83.4; 81.1 to 85.7), Indian (83.3; 80.7 to 85.9), Other White British (82.6; 82.3 to 82.9), other White (82.0; 81.3 to 82.8) and White Irish (81; 80.2 to 81.8).ConclusionsMales and females in most of the larger ethnic minority groups in Scotland have longer life expectancies than the majority White Scottish population.

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Section: Methodsmentioning

confidence: 99%

Life expectancy of different ethnic groups using death records linked to population census data for 4.62 million people in Scotland

Gruer

Cézard

Clark

et al. 2016

J Epidemiol Community Health

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show abstract

“…Details of the methods have been published previously (Bhopal et al 2010;). In brief, 2001 census (providing information on sociodemographic variables and ethnic group (selected from a list of 14 categories) as reported by the individual or the householder completing the form) and health data (hospital day case and inpatient discharge data already linked to death records Scottish Morbidity Records 04 (SMR04) database) were linked using the probability linkage method using the unique identifiers from the 2001 census for Scotland and the Scottish Community Health Index or CHI number (a national register of patients using the NHS).…”

Section: Methods Populationmentioning

confidence: 99%

“…The ethical and other permissions and related issues have been reported in detail (Bhopal et al 2010), including an independent assessment by an ethicist (Boyd 2007).…”

Section: Ethnicity and Health 221mentioning

confidence: 99%

Disparate patterns of hospitalisation reflect unmet needs and persistent ethnic inequalities in mental health care: the Scottish health and ethnicity linkage study

Bansal¹,

Bhopal²,

Netto³

et al. 2013

Ethnicity & Health

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Our data show disparate patterns of psychiatric hospitalisations by ethnic group in Scotland providing new observations concerning the mental health care experience of Chinese, Mixed background and White subgroups not fully explained by socioeconomic indicators. For South Asian and Chinese groups in particular, our data indicate under and late utilisation of mental health services. These data call for monitoring and review of services.

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“…The ethics, other permissions and related issues have been reported in detail 14 15 18. Data Protection Act and safe setting rules required the data set only contained cancer outcomes.…”

Section: Methodsmentioning

confidence: 99%

“…Data linkage of the Scottish census with previously linked hospital episode, cancer registry and mortality data through the Scottish Health Ethnicity Linkage Study (SHELS) provided access to self-declared ethnicity data and the opportunity to evaluate ethnicity and place of death from cancer in Scotland for the first time 14 15. Our objective was to establish the pattern of place of death from cancer by ethnic group to describe socioeconomic, demographic and clinical characteristics of patients in order to understand any differences and to evaluate several socioeconomic variables as possible confounders.…”

Section: Introductionmentioning

confidence: 99%

Policy for home or hospice as the preferred place of death from cancer: Scottish Health and Ethnicity Linkage Study population cohort shows challenges across all ethnic groups in Scotland

Sharpe

Cézard²,

Bansal³

et al. 2013

BMJ Support Palliat Care

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Cancer deaths occur most often in hospital (52.3%) for all ethnic groups. Regardless of the socioeconomic indicator used, more affluent Scottish White patients were less likely to die in hospital; existing socioeconomic indicators detected no clear trend for the non-White population. Regardless of ethnic group, significant work is required to achieve more people dying at home or the setting of their choice.

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Cohort Profile: Scottish Health and Ethnicity Linkage Study of 4.65 million people exploring ethnic variations in disease in Scotland

Cited by 53 publications

References 11 publications

Life expectancy of different ethnic groups using death records linked to population census data for 4.62 million people in Scotland

Life expectancy of different ethnic groups using death records linked to population census data for 4.62 million people in Scotland

Disparate patterns of hospitalisation reflect unmet needs and persistent ethnic inequalities in mental health care: the Scottish health and ethnicity linkage study

Policy for home or hospice as the preferred place of death from cancer: Scottish Health and Ethnicity Linkage Study population cohort shows challenges across all ethnic groups in Scotland

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