Collection of human biological samples for research purpose: Key challenges and patients’ perspectives

Verstuyft, Céline; Antoun, Zeina; Deplanque, Dominique; Barau, Caroline; Bordon-Pallier, Florence; Belon, Florent; Bertoye, Pierre-Henry; Chevalier, Marie Pierre; David, Maha; Demerville, Lauren; Donato, Jeanne-Hélène di; Echard, Estelle; Villeroché, Vanina Jodon de; Lang, Marie; Lanta, Marie; Persoz, Charles; Piga, Nadia; Pol, Stanislas; Sénéchal, Sophie; Zorza, Grégoire

doi:10.1016/j.therap.2018.01.001

Cited by 5 publications

(2 citation statements)

References 9 publications

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“…Studies amongst research participants have also reported varying attitudes towards the storage and sharing of biological samples for future research. Whereas some research participants believed that it is unethical to conduct future studies on stored biological samples (Al-Ebbini et al, 2021), others had no concerns (Verstuyft et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

Genetic and Genomic Researchers’ Perspectives on Biological Sample Sharing in Collaborative Research in Uganda: A Qualitative Study

Kaawa-Mafigiri

Ekusai-Sebatta

Munabi

et al. 2023

Journal of Empirical Research on Human Research Ethics

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Numerous ethical, legal, and social issues arise with biological sample sharing. The study explored the perspectives of genetic and genomic researchers on the sharing of biological samples in international collaborative research. Qualitative in-depth interviews were conducted with 15 researchers. Participants expressed positive attitudes towards biobanking and appreciated the benefits of cross-border sharing of biological samples but noted that this practice had adversely affected local capacity building efforts. There was limited understanding of the ethical and regulatory frameworks governing sample sharing. Researchers emphasized the importance of respecting cultural values in biobanking research. Issues concerning poor governance and inequitable benefit sharing were also raised. There is a need for fair and equitable international collaborations where all researchers are treated with respect and as equal partners.

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Section: Introductionmentioning

confidence: 99%

Genetic and Genomic Researchers’ Perspectives on Biological Sample Sharing in Collaborative Research in Uganda: A Qualitative Study

Kaawa-Mafigiri

Ekusai-Sebatta

Munabi

et al. 2023

Journal of Empirical Research on Human Research Ethics

View full text Add to dashboard Cite

show abstract

“…Studies amongst research participants have reported varying attitudes towards storage and sharing of biological samples for future research. Whereas some believed that it is unethical to conduct future studies on stored biological samples (Al-Ebbini, Khabour, Alzoubi, & Alkaraki, 2021), others had no concerns (Verstuyft et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

“It is bad because it limits capacity building here back at home”Genetic and genomic researchers’ perspectives on biological sample sharing in collaborative research

Kaawa-Mafigiri

Ekusai-Sebatta

Munabi

et al. 2022

Preprint

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Numerous ethical, legal and social issues arise with biological sample sharing. The study explored the perspectives of genetic/genomic researchers on the sharing of biological samples in international collaborative research. Qualitative in-depth interviews were conducted with 15 researchers. Participants expressed positive attitudes towards biobanking and appreciated the benefits of cross-border sharing of biological samples but noted that this practice had adversely affected local capacity building efforts. There was limited understanding of the ethico-regulatory frameworks governing sample sharing. Researchers emphasized the importance of respecting cultural values in biobanking research. Issues concerning poor governance and inequitable benefit sharing were also raised. There is a need for fair and equitable international collaborations where all researchers are treated with respect and as equal partners.

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Slower degradation rate of cytarabine in blood samples from acute myeloid leukemia by comparison with control samples

Abbara

Drevin

Ferec

et al. 2020

Cancer Chemother Pharmacol

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Collection of human biological samples for research purpose: Key challenges and patients’ perspectives

Cited by 5 publications

References 9 publications

Genetic and Genomic Researchers’ Perspectives on Biological Sample Sharing in Collaborative Research in Uganda: A Qualitative Study

Genetic and Genomic Researchers’ Perspectives on Biological Sample Sharing in Collaborative Research in Uganda: A Qualitative Study

“It is bad because it limits capacity building here back at home”Genetic and genomic researchers’ perspectives on biological sample sharing in collaborative research

Slower degradation rate of cytarabine in blood samples from acute myeloid leukemia by comparison with control samples

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