Collective empowerment: A comparative study of community work in <scp>M</scp>umbai and <scp>S</scp>tockholm

Sjöberg, Stefan; Rambaree, Komalsingh; Sen, Sucharita

doi:10.1111/ijsw.12137

Cited by 19 publications

(24 citation statements)

References 39 publications

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“…Therefore, this presents opportunities for online communities to support patient progress to specific levels of empowerment [ 78 ]. Collective empowerment through online communities has been a recurring topic of interest in previous research regarding empowerment of employee, individual or consumer motivation to create change within an organization, community or business [ 79 - 81 ] but is not explored as often in online communities for health care purposes [ 78 ].…”

Section: Discussionmentioning

confidence: 99%

“…By hierarchical levels we mean levels that can describe phases that patients are currently in, which can make it easier to evaluate paths for progression. There is a general consensus regarding progression as part of the empowerment concept, regardless of which concepts of patient empowerment are being used to discuss it [ 1 , 6 , 7 , 10 , 79 - 81 ]. Therefore, when discussing online communities in relation to patient empowerment, progression within specific phases is an important aspect.…”

Section: Discussionmentioning

confidence: 99%

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Online Communities as a Driver for Patient Empowerment: Systematic Review

Johansson¹,

Íslind²,

Lindroth³

et al. 2021

J Med Internet Res

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Background The use of online resources has changed how people manage health care processes. Patients seek information about health conditions, guidance in treatment, and support from peers online, complementary to traditional health care trajectories. Online communities have the potential to contribute to the quality of care by increasing patient empowerment; however, there is a gap in research regarding in what way online communities contribute to patient empowerment. Objective We synthesized research regarding how online communities contribute to patient empowerment to address the research question “In what ways can participation in online communities support patient empowerment?” by studying how patient empowerment is operationalized in different studies. The definition of patient empowerment used in this paper is enablement for people to develop mastery over actions and control over decisions that influence their lives. The mastery is both through processes and outcomes of the development. Methods A systematic review was conducted by searching in the following databases: Scopus, ACM Digital Library, EBSCO (CINAHL and MEDLINE), PubMed, and Web of Science. In total, there were 1187 papers after excluding duplicates, and through selection processes using an analytical framework with definitions of patient empowerment and related concepts, 33 peer-reviewed papers were included. Results Findings indicated that online communities support patient empowerment both as a process and as outcomes of these processes. Additionally, it was seen as a complement to traditional health care and encouragement for health care professionals to have a more positive attitude toward patients’ usage. There was a mix between deductive (19/33, 58%), inductive (11/33, 33%), and a mixed approach (3/33, 9%) of studying patient empowerment in various forms. The online communities in most papers (21/33, 64%) were well-established and represented patients’ initiatives. Conclusions There is a need to include professionals' perspectives regarding how health care can embrace patient empowerment through online communities. This systematic review's main contribution is the proposal of a new framework and conceptualization of how patient empowerment in online communities can be understood from different hierarchical levels.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Online Communities as a Driver for Patient Empowerment: Systematic Review

Johansson¹,

Íslind²,

Lindroth³

et al. 2021

J Med Internet Res

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“…Collective empowerment comprises a structural power perspective, including conscientizing, activation, participation, and networking as important elements aiming to unite, organize, and mobilize the community (Dominelli, 2002; Stepney and Popple, 2008). Empowerment has, however, different historical heritages and making an analytical distinction between individual and collective empowerment is of significance (Adams, 2008; Sjöberg et al, 2014). Since the 1980s, the individualized empowerment perspective has grown stronger, influenced by international neoliberal trends with strong emphasis on self-help and individual responsibilities.…”

Section: Findings and Discussionmentioning

confidence: 99%

“…Abductive methodology is based on moving back and forth between theoretical frame and empirical evidence in a pragmatic way (Dubois and Gadde, 2002; Feilzer, 2010). Atlas-ti abductive thematic discourse analysis is characterized by a pragmatic approach where the themes found in empirical data constantly result in revisions of the theoretical frame (Rambaree and Faxelid, 2013; Sjöberg et al, 2014). Although starting from elaborating a tentative theoretical frame, the framework was revised and elaborated to be a relevant analytical tool for the themes found in the empirical data.…”

Section: Methodsmentioning

confidence: 99%

Community work in Germany and Sweden in context of changing welfare models

Sjöberg

Többe-Schukalla

Singh

et al. 2016

International Social Work

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The aim of this comparative study was to explore how community work is being undertaken in marginalized urban settings in Germany and Sweden, in relation to changing contexts of respective welfare models. Semi-structured interviews were conducted in neighborhoods in Gävle, Sweden, and Paderborn, Germany, and were analyzed by abductive thematic discourse analysis, using Atlas.ti and MaxQData. The results showed that community work in the respective settings is affected by lack of sufficient resources to meet increasing levels of social exclusion, related to ongoing transformation processes of the welfare regimes, and there is a lack of collective empowerment perspectives for social change.

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“…The field of community practice encompasses activities as diverse as community organizing, prevention activities, policy advocacy, and organizing functional communities (Weil, Reisch, & Ohmer, 2012). Communityas a network of people based on geography, needs and concerns, and/or having a collective identityis central to social work practice in many countries (Sjöberg, Rambaree, & Jojo, 2015). In particular, professional social work originates from community work practice, alongside individual casework practice (Payne & Campling, 2005).…”

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confidence: 99%

Ecosocial work and social change in community practice

Rambaree

Powers

Smith

2019

Journal of Community Practice

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This special issue entitled, "Ecosocial Work and Social Change in Community Practice," focuses on an array of contexts, policies, practices, and challenges as well as successes related to an emerging vision for ecosocial work. Ecosocial work is social work, with all its depth and breadth, but it approaches the analysis of social problems, issues, and concerns with an ecosocial paradigm or lens, rather than an anthropocentric lens (Matthies & Närhi, 2016). Thus, ecosocial work is not a specialty within social work, rather all social work can, and we argue should, be ecosocial work. The ecosocial lens recognizes the interconnectedness of all life in our ecosystem, and thus, the fair and sustainable use of resources to promote these relationships and the well-being of all. This lens requires us to critically examine and question modern societal structures, values, beliefs, practices, and ways of life that lead to social and ecological injustices through over-consumerism, materialism, anthropocentrism, oppression, and exploitation of people and planet (Boetto, 2017; Coates, 2003; Matthies, Närhi, & Ward, 2001). From this perspective, ecosocial work is inclusive of structural social work in addressing the social structures causing social problems. It, therefore, pays particular attention to the socioeconomic and political structures of a society/community; and, above all, it highlights how neo-liberalization increases inequality and vulnerability in certain communities (Matthies & Närhi, 2016). Ecosocial work encompasses green social work, interprofessional green care practices that bring people into contact with nature, and degrowth perspectives (

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Collective empowerment: A comparative study of community work in Mumbai and Stockholm

Cited by 19 publications

References 39 publications

Online Communities as a Driver for Patient Empowerment: Systematic Review

Online Communities as a Driver for Patient Empowerment: Systematic Review

Community work in Germany and Sweden in context of changing welfare models

Ecosocial work and social change in community practice

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