“Coming home was a disaster, I didn’t know what was going to happen”: a qualitative study of survivors’ and family members’ experiences of navigating care post-stroke

Emerging Post-Hospital Models of Care: A Primer for Stroke Center Leaders

“…Stroke survivors often report specific and unique challenges at the time of discharge from their acute stroke event. 2 After hospital discharge, stroke survivors are at high risk for readmission to the hospital within 90 days of discharge and are also at risk for a subsequent stroke event. 3 Additionally, stroke survivors often have comorbidities that require further management to prevent another stroke and may suffer new disability increasing the likelihood of a fall or other accident after discharge.…”

“…One qualitative study reported patients and family of patients with stroke who were discharged home struggled with insufficient services and information, unsatisfactory relationships with their healthcare providers, and mental distress. 2 Because the acute stroke admission is often short, stroke survivors may lack continuity of care related to medication management and clinical management of stroke risk factors. 5 Historically, inpatient certified stroke programs were expected to prepare patients with stroke for discharge, educate the patient and family, and provide some preliminary anticipatory care.…”