Commitment to personal values and guilt feelings in dementia caregivers

Gallego-Alberto, Laura; Losada, Andrés; Márquez‐González, María; Romero‐Moreno, Rosa; Vara, C.

doi:10.1017/s1041610216001393

Cited by 20 publications

(10 citation statements)

References 39 publications

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“…Additionally, caregivers in the two groups reported similar levels of guilt, specifically feeling they should be doing more for their loved one. Such findings have been repeatedly shown in dementia caregivers (34–36), but why do companion animal caregivers feel they are not doing enough? The answer may again relate to difficulty affording treatment or could perhaps be due to time pressures and availability.…”

Section: Discussionmentioning

confidence: 85%

Caregiving for a Companion Animal Compared to a Family Member: Burden and Positive Experiences in Caregivers

et al. 2018

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Introduction: Research in human caregiving shows burden is often present in the caregiver and can be reduced by interventions that increase positive perceptions of caregiving. Recent work suggests burden is also present in owners of a seriously ill companion animal. To help determine if findings from the human caregiving literature are likely to generalize to companion animal caregiving, we undertook a comparison of burden and positive aspects of caregiving in these groups.Material and Methods: Caregivers recruited through social media disease support and information groups completed self-report questionnaires of burden and positive aspects of caregiving in an online research protocol. Owners of a seriously ill companion animal (n = 117) and caregivers of a family member with dementia (n = 252) were cross-sectionally compared. Analyses in the full sample were repeated in a subset (n = 75 per group) of caregivers with blindly matched demographic profiles.Results: Burden was elevated in both dementia and companion animal caregiver groups, though higher overall for dementia caregivers (p < 0.001 for full and matched samples). In contrast, greater positive aspects of caregiving were reported by companion animal caregivers (p < 0.001 for full and matched samples). In both groups, positive aspects of caregiving were negatively associated with burden (full sample p < 0.001; matched sample p < 0.05). Exploratory item analyses suggested the two groups show comparable experiences of fearing the future, guilt, and financial strain (p = ns for full and matched sample).Discussion: Although both groups showed elevated burden, companion animal caregivers reported less burden and a more positive appraisal of caregiving. Elements of burden showing similarities across groups provide a foundation for understanding caregiver burden in the companion animal owner. The inverse correlation between positive aspects of caregiving and burden suggests the impact of positive caregiving experiences should be considered in burden interventions, but because companion animal owners already positively appraise caregiving, enhancing positive aspects of caregiving may not offset burden as it does in human caregiving samples.

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Section: Discussionmentioning

confidence: 85%

Caregiving for a Companion Animal Compared to a Family Member: Burden and Positive Experiences in Caregivers

et al. 2018

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“…The commitment to the caregiving role, leisure, and work was associated with the formation of guilt feelings. A higher commitment to the caregiving role has been reported to contribute to lower levels of guilt[ 63 ]. Higher levels of guilty feelings are related to lower levels of commitment to the caregiving role and to leisure and higher commitment to work.…”

Section: Factors Associated With Caregiver Depressionmentioning

confidence: 99%

Depression among caregivers of patients with dementia: Associative factors and management approaches

Huang¹

2022

WJP

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As elderly people increasingly come to represent a higher proportion of the world’s population, various forms of dementia are becoming a significant chronic disease burden. The World Health Organization emphasizes dementia care as a public health priority and calls for more support for family caregivers who commonly play a significant, central role in dementia care. Taking care of someone with dementia is a long-term responsibility that can be stressful and may lead to depression among family caregivers. Depression and related behavioral and cognitive changes among caregivers could in turn affect the status and prognosis of the dementia patient. This review article explores depression in dementia caregivers and summarizes proposed mechanisms, associated factors, management and research findings, and proposes future research directions.

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“…Despite having a lack of supporting evidence from other studies within the review, the selection of these mental health constructs among studies suggests their relevance within the caregiving context. Specifically, guilt, self-efficacy and self-esteem have all previously been highlighted as themes arising from caregiving experiences, including but not limited to dementia [72][73][74]. The paucity of studies that have taken on a sex and gender lens when examining these constructs reflect the current emergence of sex-and gender-based analysis in this area.…”

Section: Plos Onementioning

confidence: 99%

Sex and gender differences in caregiving burden experienced by family caregivers of persons with dementia: A systematic review

et al. 2020

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Commitment to personal values and guilt feelings in dementia caregivers

Abstract: Our findings suggest that commitment to personal values is a relevant variable to understand guilt feelings in caregivers.

Cited by 20 publications

References 39 publications

Caregiving for a Companion Animal Compared to a Family Member: Burden and Positive Experiences in Caregivers

Caregiving for a Companion Animal Compared to a Family Member: Burden and Positive Experiences in Caregivers

Depression among caregivers of patients with dementia: Associative factors and management approaches

Sex and gender differences in caregiving burden experienced by family caregivers of persons with dementia: A systematic review

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